Hi Everyone,
I have said I would keep everyone in the loop about my treatment and this is my 3 mos post tx update.
I treated with Peg+riba+incivek. I only made it 9.6 weeks on incivek when my doctor had me stop due to rash. I was UND at weeks 4,8,12, 24. I found out yesterday that I am also am UND at 13 weeks post treatment. That is outsatnding news. We ran the test because I still break out in a rash occasionally. It comes and goes. It is around the base of my neck in the front and I have a small patch on my forearm. It is somewhat similar in appearance to the rash I had but it is different in that the old rash was deeper. This one can literally appear in seconds and disappear just as quickly. The symptoms that I still have are a very painful shoulder. I experienced a lot of joint pain during treatment and for the most part the shoulder is only joint that still hurts. I still get some physical tenseness occasionally (Jasmine coined this term- it is hard to describe but that fits it pretty well) and don't respond well to stress. I also get a little anxious. Having said all of that I will also tell you that I am very happy. Not just because of the UND but truly happy. I enjoy life every day. I am happy that I treated. Yes, my hair is way thin (it is growing back but with my hair in a ponytail I look like a dandelion in the wind- LOL), my shoulder hurts and I get stressed when I normally wouldn't, and I have the rash but I am happy. I am energetic and doing fun new things in my life.
I need to thank the people on this forum who have gotten me through so much. When I found this site I was terrified of the disease and the treatment. Your support and advice got me through this treatment. Between all of you, my doctor, my husband, and a dear friend I met on this forum I am here healthier and happier than ever before and hopefully free of hep c for good. I am still going to get the blood test at week 24 post treatment and will report the results. Meantime I will chime in here when ever I can to help.
Thank you all so much! I am praying for UND for all of you too. Godspeed on your journeys!
G