Hello everyone

[Susanne151]

Sorry I have not been on the forum lately. The last couple of weeks have been quite difficult as my symptoms are worsening. I guess there is the possibility of ALS now and it is very terrifying to me. Sometimes it is impossible for me to swallow anything primarily liquids. I have had problems with my speech and swallowing for months but over the last 3 weeks it has gotten progressively worse.  Although this has been very hard to deal with I have already been informed of how difficult this disease is for being diagnosed. Repeating my nerve conduction  tests is an option but I don't think I am going to  as the outcome will not change if I do have ALS.

This is really taking its toll on me mentally and physically and I am very frustrated with the doctors as one says that this is something we have to consider given my new developments, yet the other doesn't think really know what I have.

[Susanne151]

Thank you for your previous message and I am holding out hope that you are right but all my symptoms and hearing of ALS as a possibility frightens me. Especially sitting around and waiting and wondering.

Hope your daddy is doing ok,  and of course hope you are feeling well also.
ox Susanne

[Susanne151]

I have always been someone who hates to project my problems on others. As a result, I refrained from posting anything for the last couple of weeks. However, it must be shared that I whole-heartedly appreciate everyone in this forum. Each and every one of you displays extraordinary support on all levels. Regardless of the severity of physical or emotional challenges, they all seem to be welcome here without judgment.

Truly, it is amazing how just a few words from people you have not connected with in person can calm and warm the heart,,,, profoundly.

Again, my sincerest gratitude and thanks for not only your words but use of time as well in posting your support.
ox Susanne.

[Wobbly]

Sorry to hear your going through such a difficult time and hearing diffrent Dxs... having different Dr tell you this and that...we all know how that can drive anyone crazy...I've been there recently...

but I came onto the forum and my friends helped me with that...know we are here for you.. it must be VERY hard to hear that type of Dx and not have it definite..just hanging there ...waiting and wondering...

well, honey...come back and talk to your friends here when you need to vent and chat...whatever we are here for you... be strong...honey..

take care and let us know how you are doing

Hugs
wobbly
undx

[Lulu54]

You don't have to worry about sounding like a downer here - we all have those times and this must be your turn with all those questions hanging over you.  I know next to nothing about ALS, but I do know the people here will listen to you and support you like no other online community.  I hope you will use us to vent, rant and question, ok?  We'r tough and we can take it.

Take care,
Lulu

[Quixotic1]

I am about to take a nap here, but I wanted to tell you that I still have strong feelings that you DO NOT have ALS and will explain why as soon as I come back to the computer.

(((HUGS)))

Quix

[Susanne151]

Thank you for your support as well and the same goes here, when you need support on this end. I have not been on the forum as I didn't want to sound like such a downer. This has been the most complicated time of life and wish I could just fix it.

Make it a great day
ox Susanne

[Rena705]

Oh Susanne...I just don 't understand how doctors can play with our lives like this...I sincerely feel for you honey!  To have one doctor believe it is one thing and another to deny the possibility is incredibly frustrating honey!  Please know that my thoughts are with you and should you need any support, don't hesitate to address our forum ok?  We are here for you and although you may not have MS, we are still here for you ok?  Please keep in touch and let us know how you are doing and if there are any absolute decisions as to what ails you...we would like to know so that we can offer you support regardless of what the problem is.

Lots of Hugs,

Rena

[Susanne151]

Thank you for the post. Same for you, I hope all turns out well.
Susanne

[deborah0904]

I just read your post.  I will be praying for you!