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Avatar universal

Better & Worse

I've been gone for here for a long time.  Most of my MS-like symptoms have waned, just as they did last year in the fall after a long summer.  I also met someone recently who told me he had to stop taking Wellbutrin (which I'm on) because it gave him tremors (which I have) and made his legs unsteady when he walked down stairs (which just started happening to me--the scariest 'symptom' I've had besides the double vision).  So maybe that's an explanation?

Anyway, besides the tingly feet and occasional wallop of a dizzy spell that comes out of nowhere, last night I was hit with a KILLER pain in my right eye.  It lasted over an hour (I took a Percocet leftover from a root canal I had a while back) and it felt exactly like a bad toothache, but in my eye instead of a tooth: it would throb, build, build, build, and then feel like--well, an unbearable toothache--for minutes and then get slightly better, and then repeat the cycle.  My vision didn't go blurry and my sense of color seemed to be the same as in my left eye, so I'm guessing this wasn't an attack of ON...but does it sound familiar to anyone?  A simple migraine, maybe?  I've never felt anything like it in my eye.  When I had my eyes checked by a neuro-ophthamologist a couple of months ago, he said that I have congenital nerve crowding and something unusual about the optic disc, but that none of it was 'worrisome.'  Is it related?

Ugh.  I don't know.  I just called in sick to work because I slept in, I'm pretty sure because of the Percocet (duh).  But thank God I had it; otherwise, I might have plucked my eyeball out.  It was that bad.

:-((
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1689801 tn?1333983316
Hi, I have been reading about the Trigerminal nerve and somewere I read about awful pain (worst ever) in the back of the eyes (sorry I am not English hope you understand). So it might be what you just got. Hope it will not happen again.

My best,
Dagun
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Avatar universal
Hi there - you have been AWOL for a while.  I was hoping that was a good sign and you were doing better.

Be sure if you stop the wellbutrin to do it gradually and wean yourself off - you don't want to do it cold turkey.

best, Lulu

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Avatar universal
Hi Lulu,

Yes, I've been MIA for mostly good reasons.  Sept/Oct is also a terribly busy time at my job, so that has something to do with it...but the symptoms have improved tremendously.  I haven't stopped taking Wellbutrin, nor do I plan to in the immediate future.  I also have mood/emotional problems that my psych medications do help with.

How have you been?

And Dagun...thank you, too.  I've read about trigeminal neuralgia, as well.  I don't think that's it because it really was just my eye and not the whole right side of my face, but I don't really know.  I do hope it doesn't come back.  It wasn't fun.  At all.
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Avatar universal
Just updating this for my own records.  Awaken at 1:30 a.m. by throbbing pain in the right eye; after a few minutes, the pain had built to the same "toothache" feeling that I had last week.  Eventually it was agonizing, but the pain subsided ~30 minutes after taking Rx painkiller.  Just woke up; sitting in dark looking @ computer screen, right eye hurts a little from the light but left doesn't.  Color and focus fine in both eyes.
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Avatar universal
7:50 p.m., eyeball toothache #3.  Right eye only again.  Vision unfocused this time, very light sensitive.  The paiiiiiiiiiiiiiiiiiiiiiiiiiiiiinnnnnnnnnnnnnnnnnnnnn
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