Candy, you ask a good question - unfortunately I think it because something we will do the long haul. The demylination in the spinal pathways that interrupt the signal to the bladder doesn't repair itself easily. What keeps me going with this is the thought that I am much better doing this than allowing my kidneys to be damaged and have to do dialysis or worse. Good luck with the benefits check - I hope they figure it out fast for you.
my homexare nurse is checking into it with the social worker, to see if there is anyway for them to be covered. I have a letter from my neuro that says I need funding, but did not tell me who to go to.
Ick factor..LOL .. I like that one... yes, I guess we have to get over it pretty quickly....it is my new normal.. at least for now. I hope we don't have to do it forever. I don't know how long people usually have to do it, .... any ideas???
Thanks for the welcome.... ( I think) LOL .... we must do what we must do right?
((HUGS))
Candy
I hope this is covered under your durable medical equipment - it is here in the states. If not, it used to be that pts reused caths over and over - if done correctly, you can avoid the infections or at least contain them. Welcome to the club - it sounds like you are over the 'ick' factor - it truly can make an amazing difference. hugs, Laura
thxs guys, yes, Alex, it is amazing what we do when we have to...... but, boy oh boy, why we have to is the scarey part....
Things are going good still, but boy this is gonna be expensive....
Don't know what to do in Canada, but are trying to find out.
((HUGS)) to both
Candy
I knew you could do it! Great! I'll get back to you with the names I found
It is amazing what we can do once we get used to it.
Alex