Aa
E/R again & more sx
4 yrs ago I had a MRI that showed nothing at all & then 2 yrs later I had all of these lesions. I just recently( in August) had another MRI that showed 18 lesions but when the neuro compared it to the earlier one he said there were no changes & the lesions could be caused from anything. The largest was 6mm. I'm having the whole spectrum of MS sx & failed neuro exams but since my LP came back neg. I'm told its not MS & somethings wrong with my brain but to go back to my PCP. I guess my question is this in 2006 nothing was there & in 2008 & 2009 all of these lesions appeared so do I age that quickly?? Would my smoking habit (I'm seriously trying to quit) make lesions in that shorrt amount of time?Would migraines make that many in that short amount of time? I have looked up other diseases that cause lesions but none explain the heat intolerance & eye sx I have. It seems like every 2-3 mo I have a new sx so I'll go from head to toe with my sx & see what you all think I should do.
Head::: horrible headaches, severe eye pain with constant blurriness in one eye & double vision in the other (this is new). One episode of awful face pain (I wanted to shoot myself!), vertigo, eyes twitch all the time now, ears ring.
torso:: twitches, swallowing problems, feels sometimes like I'm getting a bear hug & makes me feel like I cant breath, bowel incontanince ( or constipation, I'm all or nothing), spasms in my stomach.When I slightly move my neck a pain shoots down to my tail bone, & aconstant burning feeling in my spine between my shoulder blades that sometimes hurts so bad that I want to vomit, nausea that feels more like motion sickness than when you eat something bad.
legs & arms:::: feet & hands are always numb, problems walking (can't walk any distance or my legs go out from under me), pins & needles, tingling, vibrating feeling, toes move by themselves, can see muscles moving under my skin, have went paralysed twice (was called conversion disorder once so I didn't go back the 2nd time it happened), my arms go dead without warning, tripping alot, drop things alot, feels like bugs are crawling on me & then that usually turns into a shock like feeling, Wake up with my hands drawn into fists & sometimes have to have help straightening them out, of course the spasms , twitches, zaps & zings are relentless, RLS syndrome, tremor in R arm ( started with hand now all the way to my shoulder).
So, if all of that weren't enough I went to the E/R yesterday with horrible spinal pain & everywhere you touch my it hurts ( like my skin hurts). I can't move my toe without it shooting pain to my spine. After days of this & horrible spasms I had to get some relief so I go to the e/r (where I lost control of my bowels again ...embarrassing) & was given a loratab ( which I clearly told them I was allergic to) & a rx for neurontin & sent home with no tests or nothing! I can sit up today but I'm still in alot of pain. I feel like one big nerve ending & all of my sx are hitting me at once . I don't know what to do!! I can't afford the $100 to see my PCP or the gas to get there. We have no groceries, no nothing. I would have preferred to go the PCP instead of the e/r but can't afford it. Any thoughts or suggestions?? Thanks for letting me whine again!!
Head::: horrible headaches, severe eye pain with constant blurriness in one eye & double vision in the other (this is new). One episode of awful face pain (I wanted to shoot myself!), vertigo, eyes twitch all the time now, ears ring.
torso:: twitches, swallowing problems, feels sometimes like I'm getting a bear hug & makes me feel like I cant breath, bowel incontanince ( or constipation, I'm all or nothing), spasms in my stomach.When I slightly move my neck a pain shoots down to my tail bone, & aconstant burning feeling in my spine between my shoulder blades that sometimes hurts so bad that I want to vomit, nausea that feels more like motion sickness than when you eat something bad.
legs & arms:::: feet & hands are always numb, problems walking (can't walk any distance or my legs go out from under me), pins & needles, tingling, vibrating feeling, toes move by themselves, can see muscles moving under my skin, have went paralysed twice (was called conversion disorder once so I didn't go back the 2nd time it happened), my arms go dead without warning, tripping alot, drop things alot, feels like bugs are crawling on me & then that usually turns into a shock like feeling, Wake up with my hands drawn into fists & sometimes have to have help straightening them out, of course the spasms , twitches, zaps & zings are relentless, RLS syndrome, tremor in R arm ( started with hand now all the way to my shoulder).
So, if all of that weren't enough I went to the E/R yesterday with horrible spinal pain & everywhere you touch my it hurts ( like my skin hurts). I can't move my toe without it shooting pain to my spine. After days of this & horrible spasms I had to get some relief so I go to the e/r (where I lost control of my bowels again ...embarrassing) & was given a loratab ( which I clearly told them I was allergic to) & a rx for neurontin & sent home with no tests or nothing! I can sit up today but I'm still in alot of pain. I feel like one big nerve ending & all of my sx are hitting me at once . I don't know what to do!! I can't afford the $100 to see my PCP or the gas to get there. We have no groceries, no nothing. I would have preferred to go the PCP instead of the e/r but can't afford it. Any thoughts or suggestions?? Thanks for letting me whine again!!
Tammy I sent you a PM with a link to free Clinics in KY. Several are within driving distance.
I hope you are feeling better my friend,
terry
I hope you are feeling better my friend,
terry
I'm just sitting here wondering how much of this could be coming from my kidney disease? I am on a low potassium diet that to be honest I haven't been following (again due to lack of finances). But with this new back pain & the spasms getting worse it makes me wonder.
Tammy,
The consortium of MS centers has an online directory here -
http://www.mscare.org/cmsc/index.php?option=com_center_directory&Itemid=528
take a look and see what MS center might be close to you.
Your comment about disability takes me back to that fact I posted a while back - 15 months from filing to being heard for SSDI- it's beyond a shame, it is morally irresponsible for people like you to have to wait to get this hearing.
Hang in there Tammy - something's got to give, and soon, for you.
my best to you,
Lulu
The consortium of MS centers has an online directory here -
http://www.mscare.org/cmsc/index.php?option=com_center_directory&Itemid=528
take a look and see what MS center might be close to you.
Your comment about disability takes me back to that fact I posted a while back - 15 months from filing to being heard for SSDI- it's beyond a shame, it is morally irresponsible for people like you to have to wait to get this hearing.
Hang in there Tammy - something's got to give, and soon, for you.
my best to you,
Lulu
I forgot to mention I saw my lawyer for my disabilty case today ( I literally hobbled in there in pain) & he says it could take months to go before a judge so does anyone know of a good MS neuro in KY? The nurse I had yesterday said I should get yet another opinion , not that my present one is a bad one but she says he is just general neurology & I should find one that specializes in MS. She said all of this in a low tone of voice like she feared getting in trouble but that she could tell something was wrong.
LOL!!! Lulu you do make me laugh & I sure needed that!! Thank you all for listening to me! I haven't filled the rx yet due to no money. I'm praying that it helps though! I will try to call my PCP tomorrow & hopefully come up with something. Thank you all again for your support it is a blessing!
Tammy I also want to respond to your story of what is going on with you. I sit here and just wring my hands trying to think of what I could say that would help. You are definitely in some type of relapse right now and it would be great if the doctors would see if solu-medrol would help get this under control.
Can you do a phone consult with your PCP? Call him/her and see what help you can get without coming in. Talk to the nurse if need be. I honestly don't know what else to do but stand up and shoult at these guys to help you get better.
What medications are you taking right now? Did you fill the script for neurontin that the ER gave you? For some reason I thought you were already taking it, but if not, hopefully it can get the newve pain under contrl.
My heart really does go out to you. Hang in there, harder said than done I know, but you'll get through this.
Gentle hugs,
Julie
Can you do a phone consult with your PCP? Call him/her and see what help you can get without coming in. Talk to the nurse if need be. I honestly don't know what else to do but stand up and shoult at these guys to help you get better.
What medications are you taking right now? Did you fill the script for neurontin that the ER gave you? For some reason I thought you were already taking it, but if not, hopefully it can get the newve pain under contrl.
My heart really does go out to you. Hang in there, harder said than done I know, but you'll get through this.
Gentle hugs,
Julie
OMG!!! Lulu i swear I read the same thing as you!!!!! er again & more sex. Haha!! Too funny.
Hi Tammy, Im new here but I just wanted to say how sorry I am that you are going through this . I am also undx for 4 years and presented at hospital with numbness from the waist down. After 5 hrs in a bed waiting to be seen, the numbness came right so they just let me go.....no tests nothing....Its totally unbelievable to me that they treated you that way ,but not surprising. I know what lack of money is like too so my heart goes out to you.
Hope you get some answers soon. Sending hugs your way..
.take care
Mistylee
Hi Tammy, Im new here but I just wanted to say how sorry I am that you are going through this . I am also undx for 4 years and presented at hospital with numbness from the waist down. After 5 hrs in a bed waiting to be seen, the numbness came right so they just let me go.....no tests nothing....Its totally unbelievable to me that they treated you that way ,but not surprising. I know what lack of money is like too so my heart goes out to you.
Hope you get some answers soon. Sending hugs your way..
.take care
Mistylee
Hi Tammy,
I read your post earlier, and honestly I am at a loss for the right words to say. You can whine all you want - we are very good listeners.
You are so stuck right now, with no insurance and having to make these tough choices. I know it is no consolation to realize that you are not the only one struggling with this type of problem.
If you want a smile, I again read your title wrong - I swear I just had my vision checked, but I thought you wrote instead of
E/R again & more sx ... I keep reading more sex. :-)
Hang in there, and keep looking for the right answers. Eventually you will get the right pieces to fit together in your puzzle,
be well,
Lulu
I read your post earlier, and honestly I am at a loss for the right words to say. You can whine all you want - we are very good listeners.
You are so stuck right now, with no insurance and having to make these tough choices. I know it is no consolation to realize that you are not the only one struggling with this type of problem.
If you want a smile, I again read your title wrong - I swear I just had my vision checked, but I thought you wrote instead of
E/R again & more sx ... I keep reading more sex. :-)
Hang in there, and keep looking for the right answers. Eventually you will get the right pieces to fit together in your puzzle,
be well,
Lulu
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