So, maybe it isn't MS afterall.

[aiMelissa]

I had a CT Monday of chest, abdomen, and pelvis and...well...I have a lesion on my right lung.  It's 1.2 cm within the right middle lobe, just anterior to the major fisure.  It has some curvilinear increased attenuation.  Whatever that means???

I also have promindent lymph nodes seen throughout the mesentery, particularly in the lower abdomen.  They don't mention any sizes though.  

So hmmm.  I don't know.  I see the neuro Sept 5.  The opthomologist doesn't think I have complex migraines (amazing huh) so I am interested to see what he has to say.  They are doing a nerve conduction study Sept 8 (ordered by my PCP) because the nerve pain, tingles, etc is getting worse.  

So what now?  My PCP has no idea what this is.  There are just so many different symptoms and I don't know.  She told me that I need to see someone outside of the town we live in to get my answers so is referring me to the Mayo Clinic in MN.  

I JUST HATE WAITING AND GETTING WORSE.  I have 4 kids a frustrated husband and would LIKE to have a life.  I don't want to have to cancel another trip because I feel like hell.  I have had pain and crappy feeling stuff for 4 years, but the past 5 months has been getting so much worse and the nerve stuff only started towards the end of May.  I can't just sit and wait and I HATE going to doctors and just leaving with more ******* questions.

Wow, that turned into quite the vent, lol.  

[Lulu54]

Isn't it funny how our brains, faulty as they are, commandeer our fingers and make us type all sorts of things we hadn't even thought of typing initially?  I think of it as a very primal form of self-directed psychotherapy.  :-)

I have those same CT's scheduled for the end of September and the neuro wants to also rule out anything that may have been hiding in all of my other tests.  

I know of an excellent sarcodoisis board if you want to ask questions later on about that disease... it's also a pain to get diagnosed from what I know. Drop me a note and I'll send you the url if you want it.

Be well,
Laura

[sllowe]

AND, no matter what it is, you are not allowed to leave, here? MOB rules were established long ago.....

xoxoxox
Shell

[sllowe]

You go ahead and vent girl.

What kind of Dr is she going to refer you to at Mayo? She mention at all.

Sitting here, wishing I could wish this away for you so you can enjoy your family and your life.  We are here w/you sweety, promise.

ttys,
Shell

[slightlybroken]

Vent away if it makes you feel better.

I would like to suggest that I would get evaluated by a good pulmenologist to find out what is going on. One thing that does come to mind that you might want to get evaluated for is Sarcoidosis. When it goes into your nervous system it is known as Neuro-Sarcoidosis and is a MS mimic.

A lung biopsy gives definate answers as to whether you have it or not. They do have a blood test (ACE) that helps with DX but it is not 100%.

Limboland isn't fun and it's worse when you can't get the answers. I hope you start to feel better soon.

Take Care