had my appt at ms clinic

[meg321]

I went to UCSF on Tuesday and was there was 6 hrs.. We talked to the DR and looked at my MRI's with her.  She said my lesions were not classic, as in they didnt jump out at you with a definite "Yes, its MS!"  So they did a lot of blood tests and a 2 hr. eye exam.  Now i need to do an MRI of my spine and if that doesnt tell us, which it could, then we will do the lumbar puncture. I felt good about the visit and she was very easy to understand, didnt complicate things. So that is where i am at now. I do feel better at least about knowing something of whats going on.  A very nice hospital , very professional yet comfortable.  For some reason i still get depressed and not really know why, i cry and then i am okay.  Go figure !  

hugs, meg

[meg321]

I hate to hear that others have to go thru so much and who knows, i am not there yet either.  I dont know if i could hang in there like some of you do.  Not to mention you have to keep paying money out for all the tests.  Its so helpful listening to all of you , it givs me some hope and keeps me going.....i was just thinking, i could just keep doing what i am doing i guess.   For the ones that are already dx do it get much better with new meds.

Thanks so much, God bless you!!!
meg

[meg321]

Hi, that is what she told me too, what else could it be, i didnt ask and dont know.  I think because it is an MS clinic they take us more seriously too.  I have to learn my way around this forum s i can keep in touch and remember names and stuff.  I am anxious to hear how yours go also.  

hugs, meg

[cjacks]

Meg

This sounds like a very positive experience..  Yes   !!!     You have a doc who's listing.  That is BIG ..    

Since your lesions aren't classic, or enhancing , its not a slam dunk , yet. They sound like mine starting out..  many questionable lesions (nothing classic or enhancing) .then.many tests

I was not fortunate to have found a good neuro starting out..   all my testing came back normal.    My less than wise neuro dismissed all my lesions and thought I needed counselling ???  Egad......   I was soo depressed

I got a new neuro ,  had a VNG which was positive , showed nystagmus and parietal ?? this was my only positive test ..     So another MRI and this time I did have a couple of lesions that enhanced.

As everyone else here , there's a lot more that happened but that's a loongg story...

The gist of this is , its usually a long process , that is filled with anger, depression and sorrow , fear... and Frustration up the $&5&@#       Then somehow we find a doc who knows something , listens and is willing to take the time to help......   I think you have found YOUR neuro.  

Good luck and best wishes
Love Light  Peace   &    a few HUGS

Jo

[Wobbly]

I'm glad your appt went alright...I too went to a MS clinic and saw a specialist..who told me thing simular to your and is sending me for more test..blood...spine MRI..bladder scan.. etc... but she didn't say she could Dx me either way...but will help and see if
she can figure this out with me??  

it's nice to find someone willing to take this on with you right... take care and keep us updated on how things go..

wobbly
undx

[Heather3418]

Hi Meg...I am glad that your appointment went well.

Meg I can so much relate to what you are going through and what you are feeling.  Unfortunately, it's a very common story, when it comes to diseases like MS.  They are so many mimics of this Neruological disease and things are not always clear-cut for everyone.

No one wants to have MS, but as we all say, having a diagnosis of something is much better than not knowing. We need to have a name so we know what we are trying to fight.  Worst of all, many people are ridiculed by doctors, told they are depressed or they are just suffering from anxiety, some even being told, to stop worrying about your body and get out in the world and start living.

There are some heartbreaking stories that we hear about all the time on this Forum.  It does sound like you have had a good experience with someone that is listening.  It's a shame that you have to go through all this testing, just to get some answers.  Imagine... many of us are actually happy when we hear we have MS.  Not happy that we have the disease but happy that it now has a name...something that we can now fight with every available medication.

I hope that you will keep us updated, throughout your testing.  Everyone's experience, from symptoms to diagnosis, is a learning experience for all of us.  Even those of us that have been diagnosed with MS for a long time.  We are always learning.

Good luck to you.  I hope you feel good about having this wonderful doctor on your side, instead of brushing you aside like so many others do.  My heart goes out to each and every person, still hanging in that land of Limbo.  It's an awful place to be.  Because of places like this Forum, at least you never have to face any of it alone....

All the best sweetheart,
Heather

[Lulu54]

Hi Meg,
It sounds good - the way you were treated during this appointment.  It is heartening to hear you are not discouraged because the dx is still not made.

The emotions of waiting and wondering while feeling cr appy are quite the roller coaster ride, aren't they? Your tears are very understandable.  We all just want answers so we know what's going on.

Be well, Lulu

[OperaMBA]

I am glad that your experience with them was a good one.

There are a few more of us who are going to MS Specialists over the next couple of weeks and I hope and pray that we have similar experiences!

I understand the depression part - for sure!

Richard