Aa
I' new & I'm Scared
Hi, I'm NEW here. I have had mri's of head and spine which were negative for lesions. I still am scared since I have all of these other symptoms. For ex: Falling, dropping things, tremors, and more. I just know in my heart something is Not right !
Let me add my welcome, VV.
Instinct. We are taught all our lives to ignore that voice inside us telling us something is wrong. Now its time to let that voice be heard. If you know that something is wrong, then something really is wrong.
Whether this problem is MS or not, only time will tell. If it turns out to be MS, remember that treatment for this MiSerable disease has come far in the past 20 years. The prognosis can be pretty good for most of us.
I hope you will come through here often. This is a great community with very compassionate members willing to share their knowledge. I'll look for you around.
be well,
Lulu
Instinct. We are taught all our lives to ignore that voice inside us telling us something is wrong. Now its time to let that voice be heard. If you know that something is wrong, then something really is wrong.
Whether this problem is MS or not, only time will tell. If it turns out to be MS, remember that treatment for this MiSerable disease has come far in the past 20 years. The prognosis can be pretty good for most of us.
I hope you will come through here often. This is a great community with very compassionate members willing to share their knowledge. I'll look for you around.
be well,
Lulu
Welcome to the forum and our merry band of MSers, et.el
>>I just know in my heart something is Not right !
no kidding
there is a lot of good information here to sift through an digest. your research will lead to more questions and there are many here who can share their experience to help you out.
try to relax, i know it is hard, you now found a good place to drop into and not feel alone.
>>I just know in my heart something is Not right !
no kidding
there is a lot of good information here to sift through an digest. your research will lead to more questions and there are many here who can share their experience to help you out.
try to relax, i know it is hard, you now found a good place to drop into and not feel alone.
Hi! and welcome to te forum! You have been great advice! Follow JJ's example and I believe in yourself! The advice given regarding the Health Pages is invaluable.
I'm sending good thoughts and wishes your way!
Let us know how things go and keep us updated! One last note...don't be scared s this is a disease that Is NOT a death sentence , just an adjustment in your lifestyle.
Please keep us update on how things go.
Ren
I'm sending good thoughts and wishes your way!
Let us know how things go and keep us updated! One last note...don't be scared s this is a disease that Is NOT a death sentence , just an adjustment in your lifestyle.
Please keep us update on how things go.
Ren
COMMUNITY LEADER
Hi and welcome to limbo land,
When i first read your name i thought it said victorian diva, it took a while to work out the D was missing :-)
First things first, BREATH!! Believe in your self and trust your heart of hearts, the answer may be simple and then in might be something not so simple, in time the answer will be forth coming, be patient it might take a while.
A time line is a good idea, and can be very helpfull, i do recommend keeping your descriptions short and to the point. So in explaining your symptoms eg: tremor - I reach for an object and often jerk just before i grasp it, then over shoot or knock it over. If i'm eating i often stab myself with my fork. This started in june of 09
There are a few different types of tremors, some are not associated with a disease but thought to be genetic. This is a great web site for explaining the different tremors if you want to know more:
http://www.ninds.nih.gov/disorders/tremor/detail_tremor.htm
I would keep each issue simple, but not too simple eg I fall over, there are many reasons why people fall, foot doesnt lift properly called foot drop, balance issues, vertigo etc
Anyway hope that gives you some ideas. :-)
Cheers.........JJ
When i first read your name i thought it said victorian diva, it took a while to work out the D was missing :-)
First things first, BREATH!! Believe in your self and trust your heart of hearts, the answer may be simple and then in might be something not so simple, in time the answer will be forth coming, be patient it might take a while.
A time line is a good idea, and can be very helpfull, i do recommend keeping your descriptions short and to the point. So in explaining your symptoms eg: tremor - I reach for an object and often jerk just before i grasp it, then over shoot or knock it over. If i'm eating i often stab myself with my fork. This started in june of 09
There are a few different types of tremors, some are not associated with a disease but thought to be genetic. This is a great web site for explaining the different tremors if you want to know more:
http://www.ninds.nih.gov/disorders/tremor/detail_tremor.htm
I would keep each issue simple, but not too simple eg I fall over, there are many reasons why people fall, foot doesnt lift properly called foot drop, balance issues, vertigo etc
Anyway hope that gives you some ideas. :-)
Cheers.........JJ
Forgot to post about the *numbness*
Have numbness both thumbs and first two fingers on both hands. I just attributed it to Carpel Tunnel, so I don't know if it's associated or not.
ALSO
in Jan 2010 a wisdon tooth extraction developed into a dry socket. Went back to dentist as Jaw was hurting STILL. He said it was TMJ. Now I don't know if this is associated to this or MS, But now almost half my face is numb. I drool on that side and anything really cold causes me extreme pain on that part of my lip.
Comments...................
Have numbness both thumbs and first two fingers on both hands. I just attributed it to Carpel Tunnel, so I don't know if it's associated or not.
ALSO
in Jan 2010 a wisdon tooth extraction developed into a dry socket. Went back to dentist as Jaw was hurting STILL. He said it was TMJ. Now I don't know if this is associated to this or MS, But now almost half my face is numb. I drool on that side and anything really cold causes me extreme pain on that part of my lip.
Comments...................
It's hard to say when things started.And please remember that I only in the last few months have been concerned that it is MS.
*Jerks*
Now that I look back, I remember some "episodes" of what I call "jerking" about five years ago. I did not really associate them to anything or even go to the doctor about it. When I say "Jerks" what I mean by that is my hands either just jerk a little or more recently...in the last 6 months I have actually dropped cups, plates etc when a jerk has happened. I have also in the last 6 months been lying in bed and actually "Jerked" the whole bed. It's like my whole body just jerked at once !
*Vision Disturbances*
June 2009 T.V. Blurry
There was also a blurry episode in between the June and Nov episodes, but I do not remember what month.
Nov 2009 This time I saw a "tunnel" behind a car and two lanes converged into one. I was driving to an appt 75 miles away and I has to close one eye to drive ! I had an eye exam and everything was fine. My primary physician did a brain scan. She thought I might have a pituitary tumor. The scan was negative.
*Bladder problems*
Feb. 2010 Developed bout where I had trouble starting to urinate. Went to ER. They did a urine specimin after I finally got to pee and said I did not have a UTI. That was the end of that.
*Bowel Incontinence*
March, April 2010 Bouts on and off. I had to resort to wearing a "depends" when I go somewhere for fear of an accident. Please note I was very stressed at this time due to my mother being in the hospital & nursing home. I have not told my Primary of this.
*Falls*
Nov. 2009 I believe this is the time when I first fell. Since then I fell twice more. I fell in K-Mart and hit a rack in the check out line. I ended up bruised badly . I think I was reaching for the cart. I also fell and thought I had broken my toe. Went to the ER and they X-rayed it and said it was a bad sprain and bruise.
I go to pain Management for Fibromyalgia and Degenerative Disc problems and so I told him about some of the things I had been experiencing and the fact that my Father died at the age of 30 from Lou Gerrigs(ALS), so he is the one that ordered the MRIs last month. I have not seen the reports but his nurse said they were negative as far as anything Neurological.
With the symptoms I have noted, would'nt you be concerned?
*Jerks*
Now that I look back, I remember some "episodes" of what I call "jerking" about five years ago. I did not really associate them to anything or even go to the doctor about it. When I say "Jerks" what I mean by that is my hands either just jerk a little or more recently...in the last 6 months I have actually dropped cups, plates etc when a jerk has happened. I have also in the last 6 months been lying in bed and actually "Jerked" the whole bed. It's like my whole body just jerked at once !
*Vision Disturbances*
June 2009 T.V. Blurry
There was also a blurry episode in between the June and Nov episodes, but I do not remember what month.
Nov 2009 This time I saw a "tunnel" behind a car and two lanes converged into one. I was driving to an appt 75 miles away and I has to close one eye to drive ! I had an eye exam and everything was fine. My primary physician did a brain scan. She thought I might have a pituitary tumor. The scan was negative.
*Bladder problems*
Feb. 2010 Developed bout where I had trouble starting to urinate. Went to ER. They did a urine specimin after I finally got to pee and said I did not have a UTI. That was the end of that.
*Bowel Incontinence*
March, April 2010 Bouts on and off. I had to resort to wearing a "depends" when I go somewhere for fear of an accident. Please note I was very stressed at this time due to my mother being in the hospital & nursing home. I have not told my Primary of this.
*Falls*
Nov. 2009 I believe this is the time when I first fell. Since then I fell twice more. I fell in K-Mart and hit a rack in the check out line. I ended up bruised badly . I think I was reaching for the cart. I also fell and thought I had broken my toe. Went to the ER and they X-rayed it and said it was a bad sprain and bruise.
I go to pain Management for Fibromyalgia and Degenerative Disc problems and so I told him about some of the things I had been experiencing and the fact that my Father died at the age of 30 from Lou Gerrigs(ALS), so he is the one that ordered the MRIs last month. I have not seen the reports but his nurse said they were negative as far as anything Neurological.
With the symptoms I have noted, would'nt you be concerned?
Oh My! I did not realize as I was typing that so many people had already posted.
Just goes to show that our Forum is on top oif the game and so willing to help.
~Tonya
First off I want to say "Hi" and Welcome you to the Forum :)
Let me invite you to look at the top left hand corner of this page under "Health Pages"
You will find some Awesome information!
Secondly: I can understand your feelings. You know your body better than anyone and what is and what is not "normal" for you. With that being said, Is your Neuro still following up w/ you? As you will read in the "Health Pages"...Just because you have a negative MRI for lesions really does not mean yes or no on dx'ing MS.
An MRI is just a Tool to Help in the dx'ing process. That's all. Can you give a little more info and history on yourself? Like....
*How long ago was MRI?
* How mant have you had?
* Have you had blood work to rule out other possible causes of
some of your sx?
* How long has this been going on?
* What other tests have you had done?
* Do you have any Pos. CLINICAL findings upon exam? (signs vs symptoms)
The reason for so many questions is because the more info givin the more opinions and thoughts of what may be going on?
Look foreward intalking w/ you some more soon And again Welcome to the Forum.
Please note that MS is NOT a death sentence. So try and relax on that part of it ;)
~Tonya
Please excuse any grammar and speeling errors as there is usually to
many for me to go back and correct.
Why don't you tell us when all theis started and exactly what symptoms you have, when they appeared, if they have ever improved and all. What other testing have they done? We all here know when things are not right with our bodies. What are the doctors telling you?
You need to remember that many other diseases can look a lot like MS. Many of them are quite common. So there is a whole process, beyond the MRIs, that need to be done to diagnose MS.
Be really specific as you give us the details. That helps us get an idea of what is going on and what things might be happening, even though no one can disagnose anything online. We are a group many hundreds large and can often give some good suggestions. At any rate you aren't alone, being in neurologic limboland.
The weekends are often slow, but others will be by to say hi, too.
Dazon - I see you are new too. I hope to see a new post from you too.
Quix, MD
You need to remember that many other diseases can look a lot like MS. Many of them are quite common. So there is a whole process, beyond the MRIs, that need to be done to diagnose MS.
Be really specific as you give us the details. That helps us get an idea of what is going on and what things might be happening, even though no one can disagnose anything online. We are a group many hundreds large and can often give some good suggestions. At any rate you aren't alone, being in neurologic limboland.
The weekends are often slow, but others will be by to say hi, too.
Dazon - I see you are new too. I hope to see a new post from you too.
Quix, MD
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