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645390 tn?1338555377

Interesting

Just got a call from Cleveland Clinic's eye institute.  My MS neuro is there, and they are a big research facility.  One of their studies is examining retinas from people with MS and people without MS.  They also want MS patients with and without a history of ON.  They are doing a OCT exam.  This is a nation wide study.

I have an appointment with neuro tomorrow.  Apparently neuro thinks I am a good candidate for the study.  The researcher called and asked if I was interested in participating as well as coming after my visit and having the OCT then.

Just thought I would pass this along.  Just found it interesting and I think it would be a helpful study.  I asked if I coyld have an eye exam as well, but unfortunately, the answer was no.

This is the study.
http://www.clinicaltrials.gov/ct2/show/NCT01774123?term=MS+oct&rank=6

Michelle
11 Responses
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1045086 tn?1332126422
Funny girl Michelle.  lol

Glad you came back around.  You can correct me if the info I gave here is wrong - or too slanted.
Helpful - 0
1045086 tn?1332126422
An OPTICIAN is a specialized practitioner who designs, fits and dispenses lenses for the correction of a person's vision.

An OPTOMOTRIST is a Doctor of Optometry or O.D. who provides primary vision care.  They must complete a four year postgraduate Doctor of Optometry program and be state licensed.  They diagnose and treat eye diseases and disorders. They also determine if vision correction is needed.  If it is they prescribe eyeglasses or contact lenses.  Most can prescribe medications for eye health.  Some states license them for laser correction surgery.

An OPHTHALMOLOGIST is a M.D. or D.O.  They study general medicine first and then go on to specialize in the diagnosis and treatment of problems specific to the eye.  They are licensed to perform eye surgery in addition to providing primary vision care.

Neuro-ophthalmologists combine the subspecialties of neurology and ophthalmology to treat vision problems having to do with the nervous system.

My personal experience has been that moving 'up' this specialist ladder meant they listened to me and the explanations I could offer abut my vision experience less and less.  What you need isn’t always the same things as the best specialist there is.


OCT is optical coherence tomography.  It doesn’t serve as a definitive diagnostic tool for MS but might help convince some neuros.  Dr. Quix gave it a good talking up at http://www.medhelp.org/posts/Multiple-Sclerosis/OCT-eye-exam/show/1226009  It’s a discussion from 2010 but I’m going to bump it up so others might see it as well.
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645390 tn?1338555377
Mary:  you are right. I re-read it, and it is only the Mellon Center docs.  Think I need my eyes checked!!!!!!! ;)
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198419 tn?1360242356
So cool! Glad you will participate! I look forward to the nationwide results!
Helpful - 0
572651 tn?1530999357
The world of eye doctors has several different types -
Opticians primarily screen for vision and fit for prescription glasses/contacts to make corrections

Opthamologists do much beyond that and are who you would want to see.

Or if you can find a neuro-opthamologist, that would be the best way to go.  They are well schooled and can handle everything, including the types of problems you describe.

Laura
Helpful - 0
Avatar universal
Okay, thankyou, so can I get this done at the optometrists or is it an eye specialist? I have been having double vision for a long time now, along with silver balls flashing around my eyes when I get really hot.
Helpful - 0
Avatar universal
it displays the eye in layers, for example, veins, arteries, is very helpful in finding optic nerve damage, things like that.  your eye doctor can display one year on the left and the new year on the right and compare things she/he sees
Helpful - 0
Avatar universal
hello, i am a limbo lander right now, can I ask what an OCT is seeing as it helped u get a diagnosis?
Helpful - 0
Avatar universal
the OCT is a wonderful device, it helped me with my dx, the doc didn't have the capability to print it or give me a copy but did write a letter to my neuro and he accepted it as a CIS.
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1045086 tn?1332126422
I took a look.  It may be a study that's being duplicated nationwide but it looks like this study is only recruiting 75 subjects from among Mellon MS and Cole Eye patients at the Cleveland Clinic.

This is a great chance to get in on some valuable research Michelle.  Wouldn't it be great to be able to check disease progress or DMD effectiveness with an OCT rather than a MRI?  I hope they'll give you a copy of your OCT.  

My ophthalmologist would never discuss doing one of these for me but my new optometrist can do them and has scheduled one during my next visit.  I'm mostly interested in having a baseline on file should it become important one day in the future.
Helpful - 0
572651 tn?1530999357
Thanks for sharing this one - I'll look into it.  Anything for an excuse to travel to Cleveland!! Seriously.
Helpful - 0
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