Neuro called me today..

[michelleric]

So I was not expecting that phone call.  I was in Walmart at the time and had know idea who was on the cell.

Apparently my Ophthalmologist/boss/friend, called her this morning about my double vision and also about my recent visual field at my neuro Ophthalmologist.  My visual field had drastically changed in my right eye, which I knew. There are more blind spots than there were on my last field.

Ophthalmologist(s) want me to change of Copaxone to something else.  MS Neuro told them there were 8 choices, including Copaxone, however, the other choices are more limited due to me being on Coumadin.  They want me to go see my Vascular doc and talk to her about switching me from Coumadin.  (MS neuro said there is another new blood thinner that doesn't interfere with other meds as much as Coumadin.)

I have an appt with MS neuro in 2 weeks, but she said I could come in earlier if I wanted to.

Anyway, don't really know why I am sharing this, just wanted to tell you that there are good docs out there. I feel like all these lady docs "have my back".  I feel comforted knowing I am getting the best care that I can get.  (Hopefully.)

Hope everyone had a good "Black Friday".

Michelle

[michelleric]

Thanks for all your responses. Lu, I had a MRI in June and there weren't any significant changes. A bit more "foci hyperintentisies" but no more lesions.

I have no idea what will be recommend, but I do not see a big change in any of my symptoms while I have been on Copaxone.   In fact, I have worsened physically.  I also woke up with my "typical Atypical" face pain today, but it is on my left side.  Of course, I am very worried about how bad the pain might get.  The right side has been MUCH improved since I had those shots in my head.

I have had the pain on the left side at times, but nothing like the4 right side. Hopefully this will be short lived. My appt. with the "pain" neuro is in Jan. and I know I cant have any more shots until then.  I have my fingers crossed today. always something going on...

Michelle

[Sparkysarah]

Hi Michelle

I am glad that you shared your news as it sounds like you are being looked after by a doctor who cares and we so often hear not such good stories on this forum. I hope that you can find a treament that works for you and at least you do not have to wait too long.

Let us know how you get on and what you decide to do.

Catherine.....if you read this please start a new post and tell us about yourself so that others can welcome you, but let me be the first..this is a wonderful forum.

With love

Sarah x

[Lulu54]

Michelle,

Thanks for reaffirming that good medical care can be found - there are doctors who are willing to be part of a team.  Now it sounds like its time to start thinking about your next treatment options.  I am so sorry that copaxone 'sounds like its not working.  Do you have a followup MRI due anytime soon?

hugs, L

[Itstime31]

Hi,
I am a newbie, just new today! Yours is the first post I read in this MS community and while I have inattentive, lacklusters doctors, just wanted to say YAY to you for having some great doctors.
Hello,
Catherine