Help please... Advise needed...

[Georgeios]

Just been to Doc’s, my local doc got straight on the phone to my neurologist who wants me in tomorrow if they can see me…. They mentioned I may need to have another MRI ASAP and worst case they may need to Op to reduce some lesions as without seeing me It sounds like either I have more lesions or one or two may have gotten bigger….. What does this mean to me??? Has anyone had this before? What does it entail??  

[Georgeios]

nope not yet, ive to go back at the end of the month to "discuss" what to do next.. they want another LP.. however im not to keen on that!! but i guess 1/3 means ive got 2 easy ones after my first LP side affects haha.x

[Mand125]

Hi again

Sorry about the diagnosis but at least you know now. Have they offered you any DMDs?

Take care
Mand

[doni54]

Hi Georgeios,

Well, I'm glad you have your dx. I'm sure you have mixed feelings, but having a dx at least gets you started on the meds.

Don't forget we are all here for you.  Anytime you need to talk we will listen.  Please take care and keep in touch so we know how you're doing.

I wish you the best.

Take care,
doni

[Georgeios]

Hello and happy new year, Its a big room mounted MRI machine, i got the DX....... More lesions..... Neuro said "When the MRI Dr saw the scan with out knowing my history he said typical MS...." so my Neuro said im going to be treated with MS but as all the other tests are clear they are going to keep looking to see if its anything else.... What else can it be really?

Im not that bothered about having MS really at least now i know (kinda) and what else can i do to be honest, its happened and nothing i can do will change that so ill just keep going......

Gxx

[Mand125]

Hi Lulu
that is pretty funny when you think, especially as we are both across the pond from most people on this forum.

George, how did it all go? Did you get your MRI? Do you know the strength of the machine that they use? Was it that portable machine that they have in a caravan? - Sorry for all the questions.

I hope all is going well for you
Mand

[Lulu54]

That is too funny that you both were at the same clinic at virtually the same time but you had to come to MedHelp to meet.  It always amazes me how small a world it is.  

Enjoy the coincidence! Lulu

[Georgeios]

I think the head honcho is a Female doc Dr. M well shes the one i see all the time in the Alan Down unit, C was a young lad, well about my age lol, he was a Registrar. Im hoping tmrw they give me a jab or somthing to take down the swelling as ive a busy couple of weeks lol....

[Mand125]

Mmmm neither of those names mean anything, the one I see is female Dr G,
I was just having a follow up appointment after starting Beta Interferon, it was fine, just a blood test and a chat. Ooh just thought, my first neuro was a C, he diagnosed me very quickly, I think he could be the head honcho.

Mand

[Georgeios]

Dr. M, she wasnt in, but the Guy was nice enough his first Initial was C... i like first name terms lol. We may have passed like ships in the night haha. how'd you get on?
x

[Mand125]

Hi there
I was at that very hospital yesterday seeing the neuro nurse and was wondering how you were getting on.

Good luck on Friday, which neuro are you seing? Just an initial will do as the site might not like us using names.

Mand

[Georgeios]

hey all, i went yesterday to see neuro, they wanted to keep me in for testing, however there was no beds free and the MRI machine was not avalible, so im going back in on friday for scan then ive to go back up to the ward and see the team, so still not the wiser....x

[Wobbly]

Its good that they are seeing you so quickly, Good Luck and keep us updated when you get home.  Try not to worry.. Hope all goes well for you.

take care
wobbly
undx

[nette573]

Good luck to ya - hope everything turns out great!  Lynette

[Sunnytoday]

hey there, you hang in there, and when you get back, know that we are thinking of you, and we would love to here how you are doing... 'k?
~Sunnytoday~

[Georgeios]

oh and he asked me to pack an over night bag so looks like they will be keeping a hold of me....

[Georgeios]

Just spoke to Aberdeen, I'm Booked in to see Neuro (hes a registrar... whatever that is) tmrw yipee at 1030 UK time... i'll let yous know.

[Georgeios]

thanks for your kind words, im still waiting to hear back if they can see me tmrw but im sure i will be seen by friday, i beleve i'll get a DX now, i feel they will kinda have to..... chin up and all that, its nearly Xmas!!! x

[doni54]

I agree with Laura and Shell, sounds like you have a great MD.  I haven't read much about surgery to reduce the lesion size or count either, that is new info for me.

Take care and good luck tomorrow!  Let us know how it goes and what your neuro has to say.

doni

[sllowe]

Hi there,

You have a very good MD.  For this guy to get the neuro on the phone to get you in, is just so wonderful to hear.  Sounds to me that everything went as it should have. You are going to get to see your neuro right away! Yay!

When were your last MRIs? It's ok to get new imaging no matter what. Don't worry, you are on your way.  If this is indeed a bad flare, or active demyelination, the doctors may put you on steroids to simmer it down.  And, as Lu says, it's going to be important to begin DMDs for your future. Hang tight today, we're here with you. You did the right thing by going to your thorough MD.

What time do you go tomorrow?

-Shell  

[Lulu54]

I am glad to hear whatever is going on you doctor is taking it serious.  I don't know anything about operating on lesions to reduce them.  I can't imagine that.

Putting you on a DMD would be the best long-term course to reduce the lesions and they could concurrently give you IV steroids to reduce the lesion swelling if that's what they suspect is going on.  I wish you well and hope you can relax while you wait to be seen by the neuro tomorrow.  Breathe and try to relax, Lulu