LESIONS

[sandie490]

Hey Everyone!
How is everyone tonite!
Okay, Can someone please tell mem, when there is a lesion present, what does it mean when the doc calls it an abnormality?  Sandie

[sandie490]

Thanks Lulu,

Yeah I'm trying to find out if I have MS, so I guess the lesion wasn't an MS lesion, she just called it an non-specific brain lesion abnormality.  I just didn't think to ask her, I didn't feel comfortable with her.  I think she thinks I'm faking, and I didn't like the way the whole exam went, so I will be going to another neuro.  She is a MS specialist, and I thought I was going to the best, but the atmoshere was so uncomfortable, my blood pressure shot up, and I went into a state of panic, and I couldn't concentrate on what she was asking me to do. The vertigo was really bad, so my everything was swirlly, and the high blood pressure gave me a headache. When they asked me the timeline, I couldn't think straight I felt like I was drugged.
It just didn't go well, if it had been in a different atmoshere, I wouldn't have gotten so nervous.  All the time waiting for this appt and I botched it.  She did suggest I go for a LP.  And then she had the nerve after telling me this is not MS and blowing me off, she asked if I wanted to go through her for the LP.  I don't trust her now, and she is too far anyway, so I said no, and I asked her for a recommedation for a neuro closer to my town up in reading pa.  She even told me that I didn't have ON after I have been getting treatment for it for the last 2months.  When I saw my Opthamalogist, I told him what she said and he said, yes you do have On, but the optic nerve isn't inflammed anymore, but you still have ON.  I told him that my eyes still bother me and he said that is normal with ON.  Plus I have lupus and chronic dry eye which caused be caused by lupus, which is usually caused by autoimmune diseases. I gave me a script for restasis.  Anyway, I'm bummed, whether this is MS or not I need a name.
My sister was DXEd with only 5% sx, ON,vertigo,1 lesion.  But she turned up with 1 positve band on LP.  I have 90% symp and I can't get dxed.  I only started the search 6 months ago, I can't imagine doing this for years.  My heart goes out to those who have. Anyway, I'll keep you posted!  Thanks so much!  Thank goodness we have this forum! Sandie

[Lulu54]

Hi Sandie,
My guess is the doctor is telling you that the lesion that is there should not be there - it is abnormal.  

Yes, people do have brain lesions appear - usually later in life - but they should never be considered normal.  When one or more show up, especially depending on their location or symptoms, their cause should be further investigated.

I hope that helps - sorry you had to wait for an answer.

be well,
Lulu