Whoa

[biowham]

I'm just posting this to say that I managed to get a question in over on the expert forum in the middle of the day, without paying for it. I guess not very many people are trying to ask questions???

Slackers!  ;-)

Sadly, it won't be as useful as the ones doublevision posts. It's pretty much specific to me. :-(  Next time I get in there, I'll try to think of something of more general interest.

Biowaddles

[essdipity]

I suggest that our members take a little time and go back over the expert forum questions and answers. Of course most questions will not pertain to your own situation, but still you'll have a reaction to most one way or another. So if you think the answer is helpful, press that key, if not helpful, do the opposite. If you just don't know or if the process is taking too much of your time, stop at that point. Ten minutes should be adequate.

This will provide some concrete info to MedHelp. We can grumble among ourselves all we want, but being proactive is better.

ess

[PastorDan]

No one's looked at my previous MRI in 12 years, and it was performed for migraine rather than MS.  Its usefulness might be borderline, but since the images are out there, we're retrieving them.

I have to agree about the doctors needing to look at the images themselves.  I'm still waiting for an explanation of the comment on a recent CT scan about "post surgical changes" and a "resection" of the medial aspect of the nasal septum, when no one's ever held a scalpel north of my navel.  It would be reassuring to know that the radiologist wasn't looking at someone else's nose, or wasn't smoking something special himself.

[PastorDan]

Gave up smoking myself many years ago, by God's grace.  I was reading down through these responses and see that you beat me to the comment about Dr. Park being a standout.  Maybe your doc should be recruited?

Julie, maybe if everyone goes a couple days without giving him a thing to read, and maybe if he prefers those nasty old 120mm things.

[Karen99]

What?  Your neuro didn't even look at the CD him/herself?  No doctor, especially a neurologist is worth their salt if they don't look at the images themselves.
I guess I've been extremely fortunate.  Do most of you folks get comparison reports from your previous MRI?  

[Eyesnlegs]

Well said Lulu, although I am waiting still to see what results Dr Park publishes here to his survey questions and then 'judge' if it is helpful or not.

I admit to also having a non-answer from the doc and lots of really helpful answers on this forum. Over here even if you don't always get 'the' answer it often provokes some really interesting discussions.

Pat

[Lulu54]

After Kathy's observation about the cigarettes, I have the urge to roll over and ask "was it good for you?"  It sure wasn't good for me and definitely was a quickie.  enough said from me about this person.

Before we bash all the experts here at MedHelp because we seem to have drawn the short straw here on the MS forum,  I do want to be sure all of you have taken the time to get to know Dr. Steven Park, who has posted a couple questions here and runs a wonder sleep forum.  Now there is an example of a doctor/expert who is providing real service here.  Go ask him a question on his forum and see the type of response you get.

thanks for the grins,
Lulu

[Quixotic1]

Bio - Brilliant!!!

All - your recourses if you feel that Dr. K's answers are 1) a waste of his time writing them and a waste of your time reading them, 2) patronizing, 3) uninformative - are to click on the helpful/not helpful button and (better) to notify MedHelp of your feelings.  I have said my piece to them.  He snubbed me completely.

Julie - Dream on!

Quix

[Sarahsmom46]

Your question was a good one, but unfortunately I agree that the response was really unhelpful.  I hope he will re-read the question and try again.

Julie

[Fluffysmom]

I'm sorry that you didn't get an answer to your question.  I read several "answers" to several questions, and most of them were non-answers.

I can't help but wonder if MedHelp pays these experts to drop in their spare time to dispense these non-answers, or answers that we already found on the internet (though the expert may express disgust at such information).

I'm sure some experts actually help some people, but I would never actually pay money, having had a few free non-answers to my own questions.

I hope MedHelp keeps track of the responses to "was this answer helpful?" question at the end of each response.

Bio, you deserve to have answers to your questions.  Keep asking, wherever you can.  Go to lectures, write to specialists, put in writing your questions to your neuro and ask why you have no answers to them.  I don't know what else to say, except that you are worth their precious time and they are too preoccupied to notice that they may learn something from YOU.

Kathy

[Wobbly]

hahaha...you got me laughing....hahahaha

but I do understand exactly what you feel...

hang in there
wobbly
undx

[biowham]

It's that infuriating "pat pat there there, our state secrets will remain our state secrets because you little uninformed layperson simply CANNOT HANDLE THE TRUTH!!!"  Therefore, we will equivocate and euphemize and otherwise treat you like a toddler because you (a) are not as beautifully educated as we are and therefore not equipped to understand and (b) obviously emotionally unable to handle whatever I might have to say to you. I also think that you are dumb enough to accept my answer prima facie and scuttle away with your tail between your legs without prodding any further. Away, little flotsam! Thou are not worth my precioussssssss time."

Phew. Sorry. I mean, what's the point of an expert board if your straightforward questions are so easily dismissed? Should I ask my neuro that question? Yes, I should. I have. My neuro HAS NOT ANSWERED ME. Why? Well, see above.

Bio

[biowham]

I guess so.

[essdipity]

I wondered if you'd comment on that. It was worth what you paid for it.

ess

[biowham]

Of course, his answer to my question was no answer at all. Irritating.

[Fluffysmom]

He posted 3 answers in 7 minutes, the second one two minutes after your answer.  About the time it takes to smoke a cigarette, as i remember from my (long ago) smoking days.

Kathy

[Wobbly]

Yeh...I keep trying to post on it...but no luck yet... I wanted to ask about Dawson fingers and how the MS specialist can not ackneldge the Radiologist report that states Dawson fingers and demylation... she said he was wrong without even seeing the CD?  not sure how that happens....

take care
wobbly
undx

[Fluffysmom]

My goodness, that Dr. on the expert forum sure is quick with his answers; I wonder if he does them on his lunch break?

Kathy