Lyme or MS

[SueFern]

I posted on here a few times a month ago and had to take a break.  I think I was driving myself crazy and decided to just stop reading for awhile.

My main question is...Have you heard of having a cervical lesion with Lyme's?

I have been having numbness in my left hand and arm and feet with tingling sensations since November.  I do have some joint pain and muscle cramping and feel like my skin is on fire sometimes (especially my hands) My nuero told me I was on MS alert.  However, after she said that I had a Lyme's test come back positive with acute (beginner stage) of Lyme.  She said this didn't make sense since it is not normal to have neurological symptoms in the beginning stage, but said it is still possible.  I was on antibotics for three weeks.  She is going to retest me in a few weeks to see if they worked.

In the mean time she still wanted me to follow up with MRI's 3 mths after my previous one.  I just got the results of those.  A small lesion that I had on my brain from the report that I am reading seems to have gone away.  However, I now have a cervical lesion on my C2 of 7mm in size.  It says right on the report that it is from transverse myelitis or MS.  So now I am confused.  I am reading a lot of articles about findings of lesions on the brain with Lyme's but I am not finding anything on the cervical.

I have my follow up appointment on the 25th with my neuro and this week is going to go by soooo slow.  I am going to post this on the Lyme board as well.  Thanks for any advice.

Sue

[jujuminx]

Read "Treatment for Lyme, Limbolanders please read" posted on March 1, 2011.

It was posted from someone who came to this board thinking she had MS and had A LOT of MS-type symptoms. Well, it turned out to be lyme. She has a great post about the experience and her recovery.

Read it, I think you could learn a lot.

Julie

[SueFern]

Thanks Lulu...I will try to hang in there...at least I have a good place to vent : )

Bob - Thanks for the info.  I am so frustrated.  I was so happy when I got the positive test for Lyme's, but nothing seems to be matching up right.  Unless I am one of those extremely rare cases.

I am going to see what my Neuro says and I think I am still going to go to a Lyme specialist too.  I just need to find one in my area

[COBOB]

Borrelia burgdorferi sensu stricto the spirochete that causes Lyme's Disease can cause neuroborreliosis.  This can cause white matter lesions in the CNS.  It can cause them in spinal cord white matter, but it is not common.  Once you have been treated with antibiotics, the lesions should resolve.  If new lesions appear or old lesions increase in size, another cause should be investigated.

"Acute myelitis accounts for 4 to 5 percent of all cases of neuroborreliosis"
Blanc F, Froelich S, Vuillemet F, Carré S, Baldauf E, de Martino S, Jaulhac B, Maitrot D, Tranchant C, de Seze J. Myelite aigue et neuroborreliose [Acute myelitis and Lyme disease]. Rev Neurol (Paris). 2007;163(11):1039-47.

[Lulu54]

Hi Sue, and welcome back from driving yourself crazy...... it happens to all of us for a while and I'm so glad you had the good sense to take a break.

Lyme doesn't include spinal lesions, from what I know.  I wish I could tell you differently.  I'm glad yo uposted over on the Lyme forum as well - they are a very wise group there.

The 25th is only a week away - you hang in there, ok?

take care,
Lulu