IT HAS BEEN A WHILE

[young at heart]

I KNOW IT HAS BEEN A WHILE BUT I NEEDED TIME TIO ACCEPT MY DAUGHTER WAS DX'D WITH MS AMONG OTHER HEALTH PROBLEMS.

MY SON WAS TO BE DEPLOYED TO IRAQ BUT RECEIVED A PARENTAL MEDICAL STAY AND HE LEAVES IN AUGUST FOR AFGANISTAN AND I WILL MISS HIM DEARLY,HE'S MY BUDDY.

UPDATE ON MYSELF I HAVE ONE SEMESTER YET AND I WILL RECEIVE MY ASSOCIATES DEGREE IN 5 SEMESTERS WITH A 4.0. SO I HAVE BEEN EXTREMLY BUSY. MY SEMESTERS ARE 2 -16 WEEKS AND 8 WEEKS IN THE SUMMER.

I HAVE COMPLETELY LOST THE VISION IN MY RIGHT EYE, I HAVE HAD TEST AFTER TEST AND IT IS DUE TO A BRAIN STEM LESION. I HAVE COME TO TERMS WITH IT.

I NOW USE 2 FULL LEG BRACES(KAFO) I NEED THEM !!!!! I HAVE A 7 MONTH OLD GRAND DAUGHTER THAT KEEPS ME MOVING. SHE LOOKS LIKE ME, POOR BABY, SHE IS TALKING BUT I READ TO HER ALL THE TIME.

I AM GOING TO KEEP THIS SHORT, I HAVE AN EXAM TO TAKE TODAY BEFORE I HAVE A 4 WEEK BREAK..

I HOPE ALL IS DOING WELL, I NEEDED TO ABSORB EVERYTHING I WAS GOING THROUGH AT ONCE, MY COLLEGE AND GRAND DAUGHTER KEEPS ME BUSY.

I WILL BE IN TOUCH IN A FEW DAYS.

MISS EVERYONE

T-LYNN

[young at heart]

WE ARE HANDLING EVERYTHING QUITE WELL, AS FAR AS MY STUBBORN 15 YEAR OLD ; NO SHE DECLINED THE DMD AND HER SPECIALIST AGREED AT THIS TIME, HE BELEIVES AT HER AGE ALLOWING THEM TO CHOOSE, I COULD BUT I WOULD BE CHASING HER AROUND THE BLOCK SIRINGE IN HAND, IT WOULD GIVE MY NEIGHBORS A GOOD LAUGH BUT IT WOULD WERA ME OUT THREE DAYS A WEEK.

MY COURSE OF STUDY IS SOCIAL WORK, I CHOSE THIS FIELD BECAUSE I ENJOY WORKING WITH A GROUP THAT MOST ASSUME TO THROW AWAY, JUNIOR HIGH LEVEL, AND AFTER 60 HOURS OF VOLUNTEERING FOR AN AFTER SCHOOL PROGRAM MENTORING AT RISK STUDENTS, THE GOVERNMENT IS RIGHT, SOCIAL WORKERS NEED TO BE IN THE PUBLIC SCHOOLS----THESE CHILDREN NEED PROTECTED FROM TEACHERS, I WAS APPAULED AND SHOCKED LISTENING TO TEACHERS CALL THESE KIDS LAZY,LIARS, LOSERS AND FAILURES. THESE TEENS MAY STRUGGLE AT SCHOOL BUT WHAT AN AMAZING GROUP TO WORK WITH.

LULU, I HAD TO TAKE TIME FIRST WITH MY DAUGHTER AND REALIZING MY RIGHT EYE WILL NEVER REGAIN THE UPCLOSE VISION, THE OPTICAL NEURITIS AND THE BRAIN STEM LESION HAS TAKEN ITS TOLL. THE LAST VEP I HAD COORELATES WITH THE VNG AND MRI'S, THE VEP CAME BACK LEFT EYE 149, NOT GREAT BUT THE RIGHT EYE THEY COULD NOT EVEN GET A RESPONSE THUS ABSENT.

I HAVE VOWED NO MORE TEST,I AM DONE THEY HAVE THEIR ANSWERS.

HAVING BILATERIAL OPTICAL NEURITIS IS CONSIDERED RARE BUT RARE WHEN IT OCCURS IN BOTHE EYES AT THE ONSET, I HAVE HAD MS, WELL DIAGNOSED IN 1998, ON IN THE RIGHT EYE, SELDOM DOES THE VEP TEST RETURN TO NORMAL. IT HIT MY LEFT EYE 10 YEARS LATER, NOW THE RIGHT EYE HAS BEEN DAMAGED ALONG THE WAY AND SOLU-MEDROL IS A 50-50 CHANCE.

I JUST KEEP MYSELF BUSY IF FATIGUE DOES NOT GET ME FIRST, I HAVE HAD A HARD TIME WITH THAT FOR A YEAR.

I WOULD LIKE TO REPLY TO A FEW POST YET, ONE ON DROP FOOT, I HAVE TWO KAFO'S NOW,BUT IT HAS REDUCED THE HIP PAIN AND THE OTHER WAS CAN ONE HAVE MS WITHOUT LESIONS ONN A MRI,YES. I RECENTLY WROTE A 20 SOME PAGE RESEARCH PAPER ON DIAGNOSING MS, THE EVOKED POTENTIALS ACTUALLY HAVE BEEN THE MOST RELIABLE BECAUSE MRI'S ARE NOT UPGRADED AND THE STANDARDS ARE 5MM SLICES AND THEY SHOULD BE 3MM OR LESS BUT INSURANCE COMPANIES DENY THE 3MM OR  LESS BECAUSE THEY COST MORE THUS 5MM MISS MANY LESIONS IN VARIOUS REGIONS.

I WILL TRY TO STAY IN TOUCH WHEN MY VISION ALLOWS, I AM ON A LAPTOP MOST OF THE DAY WITH COLLEGE, ALL MY TEXTBOOKS ARE ON CD'S SO I CAN ENLARGE THE PRINT OR MY ONE PROGRAM CAN READ TO ME, I LIKE THAT ON OCCASSIONS.

HUGS AND PRAYERS TO ALL
T-LYNN

[PastorDan]

HEY NEIGHBOR, WELCOME BACK.  STILL KEEPING YOU ON OUR PRAYER LIST DOWN HERE.  LET US KNOW IF THERE ARE MORE SPECIFICS TO REQUEST ON YOUR BEHALF.

[Lulu54]

T-
WE FIGURED YOU WERE QUIET BECAUSE EVERYTHING ELSE WAS TAKING A HIGHER PRIORITY, AS IT SHOULD.

WHEN YOU GET THE TIME, I WOULD LIKE TO HEAR MORE ABOUT YOUR DAUGHTER, HER FAMILY AND HOW EVERYONE IN THEIR HOUSEHOLD IS COPING. I REMEMBER THERE WERE A NUMBER OF MEDICAL STRUGGLES GOING ON.

KEEP YOUR NOSE IN THOSE BOOKS - YOU ARE SO CLOSE TO FINISHING THIS GOAL.  YOU CAN AND WILL DO THIS!

COME BACK WHEN YOU CAN,
HUGS,
LULU

[mokibear]

I'VE BEEN THINKING OF YOU A LOT LATELY WONDERING HOW YOU WERE AND WAS HAPPY TO SEE YOU POST.

I KNOW IT HAS BEEN A HARD ROAD FOR YOU OF LATE AND I HOPE YOUR DAUGHTER IS DOING OKAY AND THAT YOU ARE OKAY WITH IT.

MY PRAYERS WILL BE WITH YOUR SON WHEN HE LEAVES AND I KNOW YOU WILL MISS HIM TERRIBLY.

DESPITE ALL OF THIS AND YOUR OWN ON GOING HEALTH PROBLEMS, YOU ONCE AGAIN SHOW HOW STRONG AND DETERMINED YOU ARE. CONGRATS ON DOING SO WELL WITH YOUR SCHOOLING T. YOU ARE SUCH AN INSPIRATION TO ME AND I AM ALWAYS IN AWE OF HOW NO MATTER WHAT, YOU ARE ABLE TO RISE ABOVE IT AND SUCCEED.

GOOD LUCK ON YOUR EXAM BUT I KNOW YOU WILL DO GREAT. YOUR GRANDDAUGHTER HAD A GREAT ROLE MODEL IN HER LIFE AND I'M SURE YOU GET A LOT OF JOY FROM HER.

THINKING OF YOU ALWAYS T,
HUGS
MOKI

[essdipity]

HI, T!  SO GLAD TO SEE YOU BACK. I'VE BEEN WONDERING HOW YOU ARE, BUT KNEW YOU ARE BUSY AS ALWAYS. I DO UNDERSTAND THAT YOU'VE WANTED TO THINK OF MS AS SELDOM AS POSSIBLE, CONSIDERING YOUR DAUGHTER'S DIAGNOSIS. HOW IS SHE DOING? IS SHE ON A DMD?

CONGRATS ON YOUR GREAT COLLEGE SUCCESS! WHAT IS YOUR MAJOR?

ALSO CONGRATS ON YOUR LITTLE GRANDDAUGHTER, IF I HAVEN'T OFFERED THAT BEFORE.

SENDING GOOD WISHES FOR CONTINUED SUCCESS AND HOPES FOR YOU AND YOUR FAMILY.

ESS