Can MS be a possiblity ???

[ceo83]

Hello to all, I am 29 year old female, I am i need of advice , guidance, support etc.... I have an appointment to see , the neurologist Monday, the first time ever. I was recently diagnosed with Trigeminal Neuralgia. PCM concerned with a Positive ROmberg sign, and my other symptoms reffered me, he admitanlty said it was beyond his scope and referred me for a MRI as well. I receivce my MRI report and wanted to know your opinions,  so much knowledge and experience in these forum, I can get some advice from others experiences and
support,   Please excuse the typos, !!!!

THank you , In advance. I thought some background and my symptoms will be helpful. I have entered them right below the MRI Report, Please forgive if its too long

MRI/ without COntrast: T1 and T2 weighted images.

Radiologist Findings and or/ Interpretations: ( quick Summary)

Intracranial  flow voids grossly normal.

Cerebellar tonsils, border-line , low lying.

Diffuse Subtle increased white matter signal in a symmetric manner.


Deep gray and white matter differentation

Bilateral 5mm parotid nodules, likely lymph nodes.

No focal lesions to suggest  demyleniatign process.

No hydrosheplous. NO midline shaft or masses. no chronic  infarction.
V  cranial nerves and Meckel's cave normal.

They were also some measurement, but cant what is being measured.


HEre is some Clinical Background.. all symptoms not mentioned did nt want to lengthen any more.. Tried to condense as much as possible.

The  symptoms were not nerve excrutiating pain,at first. but constant headaches and jaw pain.  THought it was related to a molar, in need of a root canal,  had to be extracted , since it was unsalvageble. Dentist said , grinded my teeth and clenching can cause headaches as, well as  TMJD. For a couple of months , had difficulty open jaw, eating , talking ear pain , and contanst headaches. Then the pain started to radaiate to my neck and shoulder. Dentist belived the TMJ dysfunction was to blame for the all  symptoms. Even before the TN coordination in hands , was not normal, only notived because I kept dropping things and will get frequently cut and
my hands would painful spasm. Then my whole body went haywire. Tingling, prickly burning  sensation began. Its been a month since I had my first TN attacks, but not the last. Dentist referred me to PCM to see Neuro and MAx. Orafacial Spec. , as he explained the Trigeminal Nerve does not extend beyond the head and there may be another Neurological issue. My pain and symptoms have gotten progressively worst, the 6 to 8 hour migraines attasks for 3 days straight. Has been the longest so far headache and the most painful . Oh and my skin burning itching, pain that even my clothes rubbing against my skin causes pain. I dont understand how, I got to where I am today. Why is this all happening??? Can it all be related?? I am no stranger to pain, suffered from chronic back pain for a couple of years a  nerve conduction study showing nerve damage in my legs. Still dont know why, I would have nerve damage . Since according to all the MRI and doctors, the bulging disc  at l3/4 , l4/l5 and l5/s1 and Facet hypertrophy in my lumbar spine were not causing any nerve compression,and should not be causing so much pain  so they just hacked it to Fibro. Now can all this still be somehow be related , to same condition, disease, disorder, syndrome... ???? Whatever it is???  Am I crazy???  

THank you for Listening....

[Lulu54]

Hello to both of you and good luck with this next step in trying to find out what is wrong with you.  The neurologic diagnosis can sometimes take so long because much of the process relies heavily on connecting with a neurologist who can take your symptoms and your oral history and put the two together is some recognizable pattern.

Good for you to recognize that a diagnosis of fibro is an easy way out in your case - there sure sounds like a lot more going on.  

In our health pages we have a couple topics that might be of use to you - one is on preparing for a neurologist visit, which gives a better understanding of wht to expect.  

http://www.medhelp.org/health_pages/Multiple-Sclerosis/Doctor-Visit-PREP---Be-Prepared/show/156?cid=36

The second one deals with differential diagnosis - what else could this be besides MS?  

http://www.medhelp.org/health_pages/Multiple-Sclerosis/What-Neurologists-Must-Consider/show/1219?cid=36

Good luck today and I hope your doctor takes the time to look deeper into your problems.

be well, L

[LilMinnie]

Hi, my name is Minnie and I am getting ready to begin the process of finding out what is going on with me. I haven't even told my doctor my symptoms yet.  I am feeling a lot of the same feelings you are in that I am having all these symptoms and wonder if I am just losing my mind.

I wish I could offer insight yet I am still learning too. I do know there are MS mimics that have to be ruled out, and they are looking for lesions in the MRI that are in the area(s) of the brain that relate to your symptoms. I'm sure others who know a lot more than I will respond. Just wanted to say that I believe you and you aren't alone.

Minnie