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Sarahsmom Update

Julie is absolutely missing everyone here, but remains in the rehab section of the hospital.  This week's excitement for her was the removal of her gallbladder.

The doctor was unsure if that was the cause of her stomach discomfort and nausea - and he was hesitant to do surgery.  Finally this week the go ahead was given to take it out - they did laproscopic surgery and surprise!  the GB was extremely inflamed.  

most of you know that Julie has a special relationship with the NIH - they  follow her health closely and were excited about her GB surgery, I think I remember her saying they were downright giddy.  They came over and collected the thing once it was out, along with other pathology stuff - lots of samples, from what I gathered.  We had joked earlier in the week about her keeping her gallbladder in a jar after the surgery and now the scientists at NIH have it!

The plan for now with the rehab doctors is her discharge date is May 20.  Julie is spitting fire that she won't be there another two weeks, so if anyone is close and wants to help her escape, she is looking for an accomplice, or at least a wheelman.  

The two weeks will give her time to lay some contingency plans.  Right now she is back at PT but her right leg is still the consistency of jello and won't support her.  She will need support services if she is going to return to her apartment.  

We discussed that perhaps these recent relapses could be connected to the infections raging in her GB.  She said she is already feeling a bit better so I hope this will be the big boost to her well-being.

She said to tell all of you hello and she misses being on the forum and asked for all sorts of updates.  

that's my report!
Lulu






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Avatar universal
Hi Julie,
If you are reading this or having them read to you, I am thinking of you, what an ordeal to go through and you are still in great spirits, what an inspiration.

I hope that hubby of yours is home when you come out of hospital or that you have a good network of family and friends to support you, the MS exacerbation is enough, let alone surgery for your gallbladder as well.

Thinking of you, I hope you are home soon,

Hugs,
Udkas.

Lulu and Ren thank you for the updates
Helpful - 0
405614 tn?1329144114
Oh, my, the things I miss when I'm not on the forum often enough!  I wish I could fly over and help with the escape!

I always knew Julie was a rare individual; it stands to reason that she passed it on to her children, lol.  Seriously, I think she's a wonderful person, and hope she recovery goes smoothly.

Lulu and Ren, thanks for the updates and how helpful and supportive you are.

PD, I have a screw in a jar on top of my entertainment center that was removed from my knee when they re-reconstructed the ACL.

Julie, sending you hugs and prayers, my friend.

Kathy
Helpful - 0
739070 tn?1338603402
Just bumping so you can see that Julie's working on getting at home help when they release her, or she escapes,which ever comes first, lol.

Ren
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Avatar universal
PD - it used to be you could request those souvenirs from surgery- tonsils, appendix, gall stones, etc, in a jar of formaldehyde .... but alas, all the biohazard rules now prohibit us from bringing them home!  LOL

-L

Helpful - 0
1207048 tn?1282174304
Thanks for the updates!

Julie....I hope your recovery goes quickly and you meet your release day goal! Good luck! But, don't push yourself too hard, rest and recover!

~Jess
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751951 tn?1406632863
No joke, Lu; Dad kept a couple of his biggest gallstones in a little jar in his desk drawer at work.  Yeah, I know; it was disgusting.
Helpful - 0
739070 tn?1338603402
New Julie update. I spoke with Julie earlier today and she sounds like she is in good spirits minus the May 20th release date. I made a  call to her local NMSS chapter and they are going to help her set-up some arrangements to make her transition to home a little easier.

As for her escape date...she 's aiming for one week , possibly 10 days. She knows that she has some PT to do to strengthen her right leg before she can be released. She is NOT happy with the 2 week date set by her docs so be on the look out for  an escaped patient if they don't release her when she feels she's ready, lol.

She sends her best to each one of you.

Ren
Helpful - 0
560501 tn?1383612740

  As always Thanks for the update :)
I know she can not wait to get out of there and get some REAL food too...Lol
Can't wait to hear from her.......
~Tonya
Helpful - 0
Avatar universal
It was like a present to the researchers.  Julie and her children have been studied by the NIH for some rare genetic combinations, which they haven't seen (or are rarely seen) before.  Having the GB allows them to do all sorts of testing because they actually have a part of Julie's body, which ordinarily would not happen until an autopsy.  I hope that makes sense.  
Helpful - 0
987762 tn?1671273328
COMMUNITY LEADER
Thanks for the update, i'm currious as to why they were giddy at getting their hands on her gallbladder, was it already tied in a neat little bow?

Hopefully she will soon be better and she can start to get her leg back, fingers crossed that this relapse ends soon.

Cheers.....JJ
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