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Avatar universal

Doctors seem to be ignoring what I tell them

HI everyone...I am extremely frustrated to the point of tears...I have had endless testing this year..blood work..ecg's urine tests...xraysThe only thing that has come back odd is a high CRP. Anyways..I am  in pain quite a bit but also..my legs will go numb then pins and needles burning sensation it happened very noticeable when I took a shower then it feels like something is cutting off circulation to my arms and legs cause then its pins and needles there too. The other day I was in the kitchen  and it felt like there was cold water being sprayed on my feet and there wasnt obviously..my feet were very dry. the next biggest thing is I am severly fatigued..my university studies have been very affected by this. I am so tired all the time no matter how much sleep I get I could sleep another 7 hours If I let myself. And the last couple days I feel like I could fall asleep standing up or faint.I get dizzy but not too bad and Im a klutz which I always accepted haha...and Im constantly rolling my ankles..blah sorry to say so much,..I am just very frustrated and I dont know what to think.
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Avatar universal
Yeah!!!  Good news!
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Avatar universal
Im finally going to see a specialist and get sent for an MRI...!
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Avatar universal
Hey Thanks for the info Bio, I am looking to see who the closest neuro to where I will be moving is.The exact words from the doctor this morning were " your CRP is very high and since you have had it high before then its nothing to worry about"....
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378497 tn?1232143585
You're too young to be walking around with multiple hits of high CRP, which is a marker of inflammation. Someone needs to be getting to the bottom of that. It's one thing if you've got some kind of infection and you get high levels once. It's another thing if you've gone in on more than one occasion and had high levels.

You are way overdue for a real neuro workup here, too.

Bio
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Avatar universal
And I have these on and off for a a cpl years but its only this last year that it has gotten so bad and the pins and needles and constant headache are relatively new
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Avatar universal
No I havent seen a neuro..I have tried bringing it up with my Gp but it falls on deaf ears..I am moving soon and going to be starting this process alll over again :(..My Chiro said that My nerves are definetlly hypersensitive and a bit out of whack...I originally went to see the Chiro cause I figured I pinched a nerve some how and thats why my neck and back were stiff and sore and figured thats why I had headaches almost on a daily basis for the last little while...the last 2 days I have felt absolutely terrible and I am greatful to have a supportive and loving man to help me through it.
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562511 tn?1285904160
You are way overdue for MRI's.

Have you seen a neurologist yet?  Your symptoms could be coming from the central nervous system.  How long have you had these symptoms?  
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620923 tn?1452915648
HI...I understand ur frustration...may I ask what kind of dr have u been to?

U may want a neurologist....or a rheumatoid dr to do testing to see what may be the root of ur problem.
Have u had ne MRI's?

"selma"
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Avatar universal
My b12 levels were fine..and bloodwork was fine he didnt read anything out to me tho///:S just said the my CRP levels were high again and thats it
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1221035 tn?1301000508
I can hear your frustration. Have you thought about trying a new doctor?

Was your blood work fine? how about your B12 level?
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Avatar universal
I dont smoke and I have never had cancer or radiation treatments. I will definetly look into that EMG.
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Avatar universal
Hey Wobbly thanks for the support..I havent had MRi's yet..and my Chiro is the only one who seems to listen not the  pcp's. I am still waiting on my appt for a Rheumotologist even tho my rheumy test came back negative..they checked for Lupus  and it came back negative. I just want to feel better Im only 26..I got diagnosed with Glaucoma 2 yrs ago by fluke.They have also checked for Diabetes and my A1c was 4.8 soo I assume thats good.Thyroid and all of that is perfect and no B12 def.I am a cook and last night was terrible..I had to remake a dish cuase I dropped the food cause my stupid hands were shaking soo bad..
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Avatar universal
Sounds like neuropathy the pins and needle feeling.  Have you ever had radiation or cancer treatments?  If not do you smoke because Bergers symdrome can cause these feeling especially in the feet.  I assume your not a smoker, if I were you I would ask your GP to set you up with an EMG to see if you are having any nerve blockages that are causing neuropathy.  Good luck
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293157 tn?1285873439
Hi there, have you had any Brain or Spine MRIs.. if so what were the results of them?  Are you seeing a Neuro?  You do have alot of symptoms, but these type of symptoms could be from many different Dx?  

have you seen a Rheumotologist?  checked out for autoimmune?  

I understand the frustrating part... it can take quite awhile to find answers to our symptoms.  Your not alone and can chat here and let it all out.

I hope you feel better soon
wobbly
dx
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