Aa
My 7 yr old tells me, "We are so lucky you have MS!"
Yesterday was a fantastic day due to the buckeye chapter of the MS society. I took my 2 younger sons to a Halloween party in the park, that the MS society sponsored. I wasn't sure what to expect, but I am SO glad we went.
There was over 100 people people and lots of little kids. My kids dressed up in their costumes, along with most of the people there. They had a costume contest (which one of my kids won for funniest costume, he was a hippie.) They had a super buffet lunch, about 8 games for the kids, (which the prizes were candy for trick or treat), pinata, decorating pumpkins (they had pumpkins for all), Halloween bingo, played by all 100 people, Carmel apple station, guessing game, etc.
Most importunately, it was WONDERFUL to talk to people with MS and all their families. I overheard my kids asking other kids, if their mom had MS. I think they felt not so alone with the sick parent situation and they were "normal" to have this and it is okay. They were many conversations taking place with the kids and adults. I met a family sitting next to us, (grandparents, their children and their grandchildren.) The grandma has had MS for about 25 years, and it was so delightful to see her whole family supporting her.
My 8 year old, told one of the "orange" shirt volunteers, "thank you, I think this is the best day of my life!!!" (what candy will do to them!)
When we left, in the car, my son said, "WE ARE SO LUCKY YOU HAVE MS!", otherwise we would not have been invited!
Just an inspiring day and I was truly touched by this event with my sons and I. I thank the MS society for these wonderful programs for us. If you have not checked out your local MS society, I would do it, and try an event. I would not have known about any of this if I didn't try it out.
Just posting some happy news and I am so appreciate to the MS society. I don't think I would say I am lucky to have MS, but we are lucky and fortunate to have the MS society available to us.
Thanks,
Michelle
There was over 100 people people and lots of little kids. My kids dressed up in their costumes, along with most of the people there. They had a costume contest (which one of my kids won for funniest costume, he was a hippie.) They had a super buffet lunch, about 8 games for the kids, (which the prizes were candy for trick or treat), pinata, decorating pumpkins (they had pumpkins for all), Halloween bingo, played by all 100 people, Carmel apple station, guessing game, etc.
Most importunately, it was WONDERFUL to talk to people with MS and all their families. I overheard my kids asking other kids, if their mom had MS. I think they felt not so alone with the sick parent situation and they were "normal" to have this and it is okay. They were many conversations taking place with the kids and adults. I met a family sitting next to us, (grandparents, their children and their grandchildren.) The grandma has had MS for about 25 years, and it was so delightful to see her whole family supporting her.
My 8 year old, told one of the "orange" shirt volunteers, "thank you, I think this is the best day of my life!!!" (what candy will do to them!)
When we left, in the car, my son said, "WE ARE SO LUCKY YOU HAVE MS!", otherwise we would not have been invited!
Just an inspiring day and I was truly touched by this event with my sons and I. I thank the MS society for these wonderful programs for us. If you have not checked out your local MS society, I would do it, and try an event. I would not have known about any of this if I didn't try it out.
Just posting some happy news and I am so appreciate to the MS society. I don't think I would say I am lucky to have MS, but we are lucky and fortunate to have the MS society available to us.
Thanks,
Michelle
Service Dog? What does he do for you? There are so many times when I have "fallen and can't get up" that I wish my Josie could go tell someone.
Missy
Missy
This is a dear story.
Guess it just shows to go you---every cloud has a silver lining.
Hugs,
ess
Guess it just shows to go you---every cloud has a silver lining.
Hugs,
ess
What a terrific story to share - and a valuable lesson for everyone. We are not alone in this journey.
To quote from one of my favorites.... Kids say the darnedest things! (most of you are too young to remember Art Linkletter) - the statement from your youngest must have meant the world to you.
I wish I had been there - I love candy, too!
-L
To quote from one of my favorites.... Kids say the darnedest things! (most of you are too young to remember Art Linkletter) - the statement from your youngest must have meant the world to you.
I wish I had been there - I love candy, too!
-L
Isn't that something.
Makes me think it a good idea to get my kids involved in something besides the walk. They are teenagers, but still love candy!
What an amazing day. Feel like you gave us a part of it too!
-shell
Makes me think it a good idea to get my kids involved in something besides the walk. They are teenagers, but still love candy!
What an amazing day. Feel like you gave us a part of it too!
-shell
ahhh, such a touching story. so glad that your whole family had a blast and still giggling about your son's comment!!
xo michelle
xo michelle
That is great Michelle!
We have a wonderful chapter here as well. They have a summer sleep over camp for kids, We have outings such as the zoo and baseball game. At the walk and ride we have a whole children's section with games, climbing wall, jump house, etc. We even have four college scholarships given out yearly at the annual meeting.
For couples they have a week end workshop with a Psychologist for $5 including the hotel. My husband and I found this very helpful in improving our communication and understanding of each other.
THE NMSS was set up to find a cure for MS so that is the main goal research. Our local chapter does so much in the way of support as well.
The greatest reason I am so happy is that I got involved in volunteer work for the MS Society right after my diagnosis. I realize everyone can't and that is okay.
I have met so many amazing people with this disease. Instead of sitting with my fears about not being able to afford this disease I am trying to advocate for all of us. Polly my Service Dog and I are giving a visible and vocal reminder as we sit in legislative meetings. I had a U.S.Senator ask me what the MS Society wanted from her legislatively last month in a meeting with her and five other people. No one from the MS Society had ever gotten in to see her face to face.
I am truly humbled by the people paid and volunteering with the MS Society.
Alex
We have a wonderful chapter here as well. They have a summer sleep over camp for kids, We have outings such as the zoo and baseball game. At the walk and ride we have a whole children's section with games, climbing wall, jump house, etc. We even have four college scholarships given out yearly at the annual meeting.
For couples they have a week end workshop with a Psychologist for $5 including the hotel. My husband and I found this very helpful in improving our communication and understanding of each other.
THE NMSS was set up to find a cure for MS so that is the main goal research. Our local chapter does so much in the way of support as well.
The greatest reason I am so happy is that I got involved in volunteer work for the MS Society right after my diagnosis. I realize everyone can't and that is okay.
I have met so many amazing people with this disease. Instead of sitting with my fears about not being able to afford this disease I am trying to advocate for all of us. Polly my Service Dog and I are giving a visible and vocal reminder as we sit in legislative meetings. I had a U.S.Senator ask me what the MS Society wanted from her legislatively last month in a meeting with her and five other people. No one from the MS Society had ever gotten in to see her face to face.
I am truly humbled by the people paid and volunteering with the MS Society.
Alex
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