Stressed out and lonely

[nuttyone]

Hi All

I know i keep ranting on but getting soooo stressed out at the momemt.  I think not having a diagnosis is partly to blame and not knowing if the syptoms i'm getting is ms related or what the neuro's say is phycalogical i'm so mixed up.  at the moment over the past week my legs are very stiff and achey, i'm so exhausted i'm sleeping most of the time and the stinging at the back of the neck is painful.  Also at the moment to frightened to go out as people have the tendency to bumb into me and i fall so embrassing.  


thanks
Christine

[santana8]

I am going through the same process right now, but for me it has only been two  years! I wonder why it is so hard to find the correct dx?  The emotional toll is great while in the waiting period and it can make you sick in ways other than the physical things that you are dealing with.  Wonko is right about getting your mind on something else sometimes. Everyone told me that I was dwelling on my symptoms too much and I got mad at them for saying it, but turns out they were right.

I honestly thought I could speed things up by dwelling on it but all I managed to do was stress myself out.  I thought how can I get back into my life with all of these symptoms interfering with what I want to do. But what I found is that life was not waiting for me to get the answers, it was passing me by.

So I decided that I was going to live my life the way it is and pray that it will get better, but for now this is what it is. Not a easy pill to swallow but looks like I have no choice for now. Once I got this attitude I found it easier to get my mind into other things while I am waiting for answers.  I am still looking for the answer, but I am not stopping my life anymore to find it. This illness has took enough of my life and I am ready to live again.

It is very scary not knowing what will happen in the future, but none of us are promised a future anyway.  I have learned that my future is now!  I too got lost in this illness and it started to take over who I am. You can't let this happen to you. Take control of it and put yourself back in the driver seat.

I have 10 or more brain lesions and still don't have an MS dx.  My spinal tap was negative and so far I have shown no new lesions. Honestly, I don't think they know what happened right now and they may never find out. But for now nothing new is showing up, I am feeling better and this is the only real facts that I can count on.

Getting your mind into  other things does help. It won't make you forget what you are gong through, but it will make you more rested to deal with it when you have to.  If you need to talk you can message me anytime, OK?  I will be praying for some comfort and peace for you!

Hugs,
~Santana~

[nncdalton]

I understand what you are going through. I have never had a definate diagnosis on the MS but my new Dr is so sure that is what it is. This has been going on for 12 years. You reach a point of frustration that can't be explained to anyone that has not experienced the same thing. What I did was got involved in a book or made a bracelet just to get my mind off of it. My husband told me to do this and I laughed at him but it really did work and he commented that all of the emotional toll that this was taking could not be good for my physical health, which is true. I really hope that you will know something soon and if you don't please at least try to not get upset. I will be thinking of you and I wish you the best.

[wonko]

I am sorry you are feeling this way.  It is hard to accept, but these things really do often take some time to resolve.  It is not easy, but try to place less urgency on the situation.  Keep in mind that seeing how your symptoms change over time will be part of the diagnostic process.  I know for me, understanding that while my symptoms are upsetting they are not an emergency, helped me get through a lot of the waiting.

Hopefully if you are able to feel less stress about your symptoms, you'll also feel better about getting out.  Take your time and walk at a pace that works for you.  Hopefully people around you will start paying more attention and stop bumping you!

Take care and let us know how you are getting along!