Start meds or get 2nd opinion?

[LoveMyBostons]

My nurse told me on Friday that I have RRMS. She said she'd bet her life on it and sent me home with 3 packets for the different meds to review and choose from. So far I'm leaning toward Copaxone. I'm a little worried about the injector - I think I might try injecting manually in the beginning. But I'm wondering how many of you sought out a second opinion. My nurse said she could refer me to the Cleveland Clinic.

I guess my real question is: When do you accept a diagnosis and start treatment vs. how long do you keep searching for alternate explanations, which may utlimately delay beneficial treatment?

Thank you!!

[HVAC]

No problem. It is overwhelming at first but it does get better. I went through an emotional roller coaster for two years. Now I am happy and stable. Ironically I am happier than I have been in years. I am even learning to block the pain with my mind.

Let us know how it goes.

Alex

[LoveMyBostons]

I think it would be in my best interest to start the meds asap. Thanks for talking through things with me. Everything is so new and scary and I appreciate everyone's time!

[HVAC]

I started right away. I only wish DMDs were offered two years earlier. I have seen the progression in those two years. I had conservative Doctors who were waiting for something like Optic Neuritis or not being able to walk before they would treat.

If a second opinion will help go for it.

Alex

[LoveMyBostons]

Thanks for the response Lulu!! I feel entirely confident in my neurologist. I have thought this was MS for the last 6 months, so my gut definitely agrees with the doc. I just didn't know if it was irresponsible of me not to get a second opinion, with MS being so hard to diagnose and all.

I'm sorry to hear about your tumbles as well. I hope you're not in too much pain!

[Lulu54]

Hi LMB,
I think you look at the evidence and then listen to your instinct.  If the DX doesn't seem to fit, then by all means get a second opinion.

My MS neuro is all in favor of second opinions - in case he has overlooked something crucial in the dx process.  I haven't done so, because I really believe that he is right about my MS.

Good luck in making your decisions - both the dmd and the 2nd opinion.  BTW, I am on copaxone, and use the autoinjector with no problems.

wishing you well,
Lulu

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