Aa
losing patience now ms or not sick tired
Hi folks
im so fed up now of all this going on..
8 months now with numb left arm pins needles in fingers thumb hand.. my back on left side hurting and my leg is heavy.. lft side again. i cant work and im in massive financial difficulty i live alone ..
my ex spinal surgeon says not ms - then why refer me to neurologist.. 3 x MRIs brain scan with contrast LP and numerous bloods taken the full works been done..
still awaiting appointment to get some kind of diagnosis.. i washed my dishes last night the water was bit hot and couldnt stop my hands from shaking after.
i hung out my washing and couldnt move literally the next day, just like when you been to the gym first time in years.. the 3 x day methyl predisolone IV steroids have not worked on me at all ??????? what does this mean ??
jan xxx
i have more sx since i last saw my neuro too many to mention, besides ive forgotten most. my cognitive think is terrible at times..
im so fed up now of all this going on..
8 months now with numb left arm pins needles in fingers thumb hand.. my back on left side hurting and my leg is heavy.. lft side again. i cant work and im in massive financial difficulty i live alone ..
my ex spinal surgeon says not ms - then why refer me to neurologist.. 3 x MRIs brain scan with contrast LP and numerous bloods taken the full works been done..
still awaiting appointment to get some kind of diagnosis.. i washed my dishes last night the water was bit hot and couldnt stop my hands from shaking after.
i hung out my washing and couldnt move literally the next day, just like when you been to the gym first time in years.. the 3 x day methyl predisolone IV steroids have not worked on me at all ??????? what does this mean ??
jan xxx
i have more sx since i last saw my neuro too many to mention, besides ive forgotten most. my cognitive think is terrible at times..
Best Answer
Hi there,
Your feelings are totally called for - you want answers that include a name to what is the matter.
Was there an appt. made for follow up after the LP? To discuss results of all this?
If not, I'd call the office 1st thing tomorrow a.m. and tell the office you'd like to come in to discuss all these results and describe the problems you are experiencing now.
Audrey is right - believe you know you body - be that advocate, and then look Dr. in the eye and ask what this could be w/all info he has gathered so far.
ttys,
shell
Your feelings are totally called for - you want answers that include a name to what is the matter.
Was there an appt. made for follow up after the LP? To discuss results of all this?
If not, I'd call the office 1st thing tomorrow a.m. and tell the office you'd like to come in to discuss all these results and describe the problems you are experiencing now.
Audrey is right - believe you know you body - be that advocate, and then look Dr. in the eye and ask what this could be w/all info he has gathered so far.
ttys,
shell
It definitely sounds like it could be MS. The neurologist should be able to tell from the MRIs. It could also be something like lupus or fibromyalgia.
hi meg
yeh im under a neurologist he waiting for results of my LP he will then look at my 3rd MRI results, and outcome of the 3 x day steroid treatment i had..
im so sick of it all xxx
jan xxx
yeh im under a neurologist he waiting for results of my LP he will then look at my 3rd MRI results, and outcome of the 3 x day steroid treatment i had..
im so sick of it all xxx
jan xxx
Hi Jan,
I just got on after not sleeping all night and this was the first thing I looked at..must mean something , huh?
I feel so bad that you are going thru this, I don't have an answer for you, i can barely think..
Have you seen a neuro at all?
hugs, meg
I just got on after not sleeping all night and this was the first thing I looked at..must mean something , huh?
I feel so bad that you are going thru this, I don't have an answer for you, i can barely think..
Have you seen a neuro at all?
hugs, meg
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I can empathize with your frustration, yet encourage you not to give up. I have had sx for more than 8 years now and can no longer ignore them. I know that I have to keep pushing on until the medical community can explain what is going on with my body.
It is so easy to get fed up, especially when one gets conflicting information, shuffled from doctor to doctor and/or ends up with a doctor who can't see the forest for the trees. I gave up several times because of this, but am now bound and determined to see it through due to the decline in the quality of my life with health issues.
Believe in yourself and the fact that you are your own best advocate. While it is hard to be patient, neurological and autoimmune disorders are notoriously slow in terms of arriving at a diagnosis. You may have multiple medical issues (you mention a spinal surgeon) that complicate the picture.
Like you, many of my sx could be due to back problems, but that does not explain cognitive issues or multiple brain lesions. While we want to trust the medical community, now it seems that we have to do a lot of research on our own to lead to a diagnosis.
This forum is absolutely great in terms of support and information. I am very grateful for those who post here and watch out for all of us in Limbo Land, giving us guidance in terms of tests, symptoms, experiences, etc.
Hang in there. Based on my own experience, I know that it is hard, yet what we all want is to know what is happening to our bodies and what treatments may help us.
Please stay strong in spirit, even though your body may not be acting the same way.