Paraparesis

[deborah0904]

In my original Dx, I was told I have Paraparesis.  When I stand I have this overwhelming sense to stretch all my muscles but, most especially the legs.  Even when sitting, I have that feeling.  I was not told I have RRMS or PPMS.  Actually, my Dr. doesn't want to treat my MS, however, I am going to push for treatment.  What meds helps this problem?  Thanks!

[jensequitur]

What you're describing is a cross between myoclonus and restless leg syndrome.  I have no idea what it's called.

I don't know if I'd call it an urge to stretch my legs - it's as if my body forces itself to straighten out involuntarily.  It's especially bad in my legs, but it happens in my torso, too.  I also get a rhythmic jerk in my right leg - I try to move it, and it just jerks back and forth.  Mine happens most often in the morning, or when I've been sitting down for a while.

Typically myoclonus is treated with Clonazepam.  I also smoke, but it doesn't do anything for the myoclonus - it's mostly good for spasms and paresthesia.

[nncdalton]

If you lived in California you could use pot. It relaxes the spasms. I have the same thing but in my back. The dr gave me zanaflex but that didn't help pain. If you find a really good treatment please tell me. I hope you get your answers.

Christy D