OK.. stressed out about waiting for my Neuro....

[Wobbly]

well, I'm trying to be calm and not worry about seeing my Neuro again in Sept..re: the latest MRI results..which showed changes and suggestive of demyelinating ... My mind is going crazy thinking... "What if he says it's not enough lesions or the radiologist is wrong...or it's all in your head.. or it's not bad enough to deal with...or whatever...

and what if it takes another month or so to see him, since he didn't book an appt with me yet...he said to wait to see the results when he returns...so I don't have an appt with him yet...he's back next week...I know I will be calling his office by Thurs if I don't hear from him.

Why oh why do I let myself get stressed.... I tell myself not too... I've been doing this for a few years but no I haven't learnt who is in control...NOT ME FOR SURE.

I'm sorry, just letting loose here...venting... I feel like just tell me what you want next...I bet it will be another LP... and I'm not looking forward to that...but if necessary...I'll get it...

see....am I not loosing my mind....auuuggghhh...

I should go for a run....hahahahahahaah....if my legs would work...

have a good day..
andi

[Quixotic1]

I'll wait too.  I've got all my fingers and toes crossed for you.  Okay, so they're already crossed anyway, but I thought I could get some credit out of it.  I'm taking orders for ice cream.

The Good Humor Quix

[Wobbly]

Thank you all so much for replying to my nervous venting session.... I really appreciate the fact that I'm not alone with this...

Not that I want anyone of you to be here like this either... but we are and there isn't much we can do but be here for each other...

It just makes it so much easier to read from my friends and know they understand...thanks so much you guys...

I'll keep you updated...

andi

[bearsmum]

It's best that you do vent it out and not bottle it all up inside you as that will make things worse.  I agree with Shell, you get onto them immediately if they haven't contacted you by the end of the week, it is amazing how often you get lost in the system, I am forever chasing up my drs for results because they "forget" to ring me.  Make that appt and take matters into your own hands. I know the feeling exactly about getting the correct diagnosis.  I have been on the roundabout for over 4 years now, first it was Acoustic Neuroma, then epilespy, then mini-stroke and now they think it is MS, and my appointment to the MS specialist is not until the 4th December.  I agree with you that dr's and specialist don't understand what we all are going through mentally and physically.  It gets so hard at times not knowing how or where we are all going - darn frustrating - so talk and vent all you like - we totally understand why.  All the very best with your results, and please let us all know your updates, as we all care about each other here like one big family.  I have only been here for a few weeks and am totally amazed about how much everyone cares about each other so much, it is a wonderful place to be.  Very reassuring.
Cheers
bearsmum

[Deb61]

I have a feeling that you'll get an answer this time.  Your MRI results are extremely suggestive of MS.  I doubt they'll do an LP again.  

Hang in there.

Deb

[Lulu54]

This MS waiting game is still so hard for me to fathom .... I'm getting a little better at understanding the why of it, but still it feels like time is being wasted that could be spent on DMD's to slow it down.

Just wanted to let you know I feel your frustration.

Obviously we are meant to be marathoners and not sprinters!

Laura

[mae1]

Just curious if you have had the chance to get a hold of you doctors office yet.....
hang in there....
hugs
april

[Farrahlicious]

Honey, don't stress! I agree with Shell. It's your life, squeeze the hell out of it!
have you been dx yet? I'll be praying for you.
xoxox
Farrah

[wonko]

Wobbster,

Does it help that I'm nervous for you, too?

It is so far out of our control that so little seems to be known about these things.  Lots of doctors just don't get what people go through with slow diagnoses, dismissal, and of course scary symtoms happening the whole time!

Vent away.  I am full of cliches and corny lines since washing up upon these shores.  I really do believe that people who use tools and avenues afforded them have an easier time through these situations.  

And there are lots of exercises more accessible than running!  Heck, I'm sure I'd hurt myself more than help myself if I tried to go jogging.  

Add me to your squad of cheerleaders, I'll bring my own pom-poms even,  and hang in there!

[sllowe]

Oh, they better not be one of those "lesion counters" or, I'll get stressed along w/you...

It's almost Sept...we're losing daylight even...lol....

Call them up and get it booked.  This is your life, your Dr. appt., and your not going to take it anymore....ha/ha...

Here w/ya Wobbs,
Shell