Quick Update

[Georgeios]

well what can I say.. My Girlfriend has a wee baby boy, born 9th of Feb 7lb 14ozs nice and pink!! he is awsome... Me on the other hand... Im Falling to bits, Neuro wants me to See the Opthamoligist (Spelling) again because both my Eyes are going, Dizzy spells getting worse and more freq, and i now find it really difficult to write, type well anything thing to do with my hands and coordanation.... I phones my Neuro as its been 4 months since i last saw her and i still havent had any word from Optha... The Neuro said " they can see better in to my eyes as an MRI is only black and white" she is still holding off on the DX saying she wants to be sure its not Sarcodosis and anything else... Im starting to lose my Happy side and memory!!!

Any How an a DADDY!!!

[Georgeios]

Hello again, my last MRI was in December it showed more leasions, which went with the new symptoms, i know now if i get another MRI soon there will be even more.... I am going to see my Local Doc on Monday, he will give the Optha Department a kick up the bum!!! I'll keep you's up to date on what he says. As for Treatment im getting to the point where im going to beg them to start me on somthing as ive not really had ANYTHING, just pain relif that knocked me for six so i stopped taking it.

Babys are awsome, (hard work) but worth it... My mate said somthing the other day that sums them up...... Babys are a Waste of time...... this got my back up, then he exsplained.... You can spend all day looking at and hanging out with baby and nothing else gets done, and you just dont care... he is right, i love wasting time with my son....

[Lulu54]

yeah for babies! they are truly a bright spot for all of us.  I know you are bogged down with the NHS system over there in Scotland - can you possibly pursuade them to see you sooner?  

I would really like to see you get some treatment for the symptoms - such as an IV drip of solu-medrol to reduce the inflammation. Or some drugs to control the pain.  AND a DMD to perhaps slow the progression of this disease in your body.  

I'm sorry, but I forget - when did you have your last mri?  With all the new symptoms you are having, if it is possible to have another one w/contrast to record any new activity, by all means push for it.  

My best,
Lulu

[Janette2836]

How wonderful to hear that your baby boy made it here safely.  I have wondered if he was here yet.  Congrats!!!

I am sorry you are having all these sx right now.  Don't let them take the sunshine away that your little boy brings!!!  Take care & stay in touch.

[opie74]

Congratulations on the baby!  Boys are wonderful!  My two are rotten.  Perhaps you can call and harass the opthomologist?  

[sllowe]

Well Congratulations! Babies are so wonderful!

You haven't seen the neuro in 4 months, but will she see you now? Since you have this problem? Or, will she only see you after the Optha appt?

You should be examined for sure.

Did you call the Optha?