Rant

[bettebelle]

I'm really upset tonight. I have my dr appointment to rule out gastrointestinal problems to determine if I'm experiencing MS hug or something else. I got in a huge argument tonight with my Childs father who claims I can heal myself by eating greens.., I can't stop sobbing. I'm sorry but your a parent facing a health problem such as MS I find this not only ignorant but offensive. I know that eating healthy makes mr feel better that is why I do it. But realistically a change of diet isn't going to make all of my symptoms go away. It just hurts I dont understand how people can be so cruel to attack someone that is suffering when they really have no idea what it's like. Sorry I know this is just emotional and isn't a real question I'm just feeling lonely and terrible.

[bettebelle]

Thank you both for your support during a rough spot!  He and I have a good relationship except for when it comes to my health.  He refuses to watch any of the videos I have sent him from the MS society.  It just really hurts when someone is basically telling you something that is obviously not true.  I could see that eating greens for a difficiency (sp) would heal you, but it really just hurts.  This disease is enough to deal with aside from other peoples judgements.  Thanks again for your support!
Belle

[ku111]

I am sorry you are going through all of this.  It is difficult for people to really understand what you are going through unless they know something about it.  Legit information.  The MS Foundation sent me a great packet of info and the pamplets for work, school and family (all separate) were really good information.  My parents watched Montel and now think Jordan should drink all his meals in a heal-all shake.  I am so glad they work for Montel Williams but I think at 12 yrs old this may be difficult.  I think they just don't get it but I'm not sure they try to be mean.  Hang in there!  You just rant away!  Let it roll off your back and take care of you.  

[Lulu54]

That's why this is often referred to as "but you look so good"  - people outside of our body have not a clue what it means to live with this hidden disease.  If we are not on a walker or in a wheelchair, we must not be that bad off, right?  And certainly we could do so much more to make ourselves feel better, right?

And while we're at it, there's no excuse to not have a perfect home, gourmet meals every day, and hold down a full-time job, right?

Again, we can look so good, but not have it together internally and those close to us have no clue.  All those thoughts can be hurtful.  There is no way we can heal ourselves or take responsibility that we have  this disease because of things we have or haven't done.

There are so many ways we beat up on ourselves and then to have someone else do it too is inexcusable and painful.  

You don't say if you two have a normally decent relationship, and if you do you might try to get him some materials to educate him about MS.  Otherwise find a way to ignore his comments and keep on doing the best you can.

Either way, I am so sorry you were subjected to his ignorant bullying.

hugs,
L