Saw GP today, she gave me some sort of DX

[MrsAristotle]

Well guys I went to see my GP this morning to get my antibiotics for my bladder problems renewed. To be honest didn't feel well could have done without it.

Anyway she said "HAVE you spoken to Dr Martin yet, and I said no I see him next week. Oh did you get another test and I said yes I had to have an MRI with Gadolinium. She said "you quite shocked your neurologist as he wasn't expecting much on this MRI but it showed abnormalities and this is why he wanted the contrasting MRI. I said oh I didn't realise it definitely showed abnormalities and she said oh yes it does it looks as though it could be...................................................

Now I cant remember what she said honestly. I am sure she said vascular malformation or something or vaculitis or something, that is leaking. She kinda explained, something like little blood vessels all interconnected to main blood vessels and not working properly or leaking or something.

She said if it is this its kinda good news as there are treatments for it, surgery and stuff.

Then I said to her about going for my bladder procedure and she said to me NO I dont want you to go for that you have ENOUGH ON YOUR PLATE.

Then I said to her could I join the slimming club that has just opened at the surgery and she said NO I dont think so, you have ENOUGH ON YOUR PLATE.

When I told her that I had paid to see my neurologist next Wednesday she said thats a good idea, and I would take your husband with you.

WTH!! (what the hell is going on lol).

I mean she had completely changed her attitude to me.

So havent got a clue what I am facing.

She said that the increase in CNS is indicative of this disease.

WHAT BOTHERS ME is if it is blood vessel, then WHY IS IT ONLY SHOWING NOW?

Its been over 2 years. Did the radiologist at the beginning miss stuff? Was there something showing all along, or is this disease very slow progressive and now getting worse that it can show up.

I dont care as long as I get an answer, BUT just shows you guys that you have to keep pushing.

MY QUESTION is has anyone else been diagnosed with something to do with blood vessels etc? Apparently the symptoms are so like Lupus and MS that a lot of people are wrongly diagnosed.

I laughed at my GP and said if the neuro was so shocked at what is now showing on my MRI then he should put a piece in the LANCET for all us limbolanders a lesson to all neurologist IT AINT ALWAYS CD, DEPRESSION or FAKING IT!!!

Will keep you posted pips.  

[doni54]

Hi  Mrs. Aristotle,

I'm so glad you are finally getting some answers.  And yes it would be good for your husband to go with you.  Having my husband with me when I saw my GP, and him speaking up was the only reason I finally got an MRI and referral to a neuro.

Praying for you, and that your neuro visit will give you your dx and treatment can begin.

Keep in touch and let us know what is going on with you.

Hugs,
doni

[essdipity]

Could the doctor have said vasculitis? That's inflammation of blood vessels and it can happen in the brain. In my last round of MRIs, the radiologist said that vasculitis would be one explanation for the abnormalities.

However, I have no symptoms of vasculitis (whatever they may be), so my neuro didn't comment on that part. My MRIs are always atypical for MS, but it's always still within the differential diagnosis. That may be true of you too. Why not do a bit of internet research, if vasculitis is what your GP mentioned, and find out what else would be going on if that's what you have. Then, when you see your neuro, you'll be more prepared and can ask good questions. (Don't mention the internet or this forum, though!!)

If what the neuro tells you doesn't explain your symptoms, ask about that as well. You might want to write down a few notes to jog your memory. Do you have a timeline? They are so useful during neuro appointments.

I think your GP's suggestion that you bring your husband is a good one. That way you'll have two people listening and asking questions. It's easy to get a bit flustered and forget things that are important to you, and also, your time with the neuro may not be more than 15 minutes, so you have to make the most of it.

Please let us know how things go.

ess

[Lulu54]

Mrs. Aristotle,
You certainly do make quite the valid point that we have to keep pushing to find an answer even when the doctors are initially stumped.  I am very curious to hear the official medical explanations you are getting next week- please do keep us informed.

My best, Lulu