Hi Mrs. Aristotle,
I'm so glad you are finally getting some answers. And yes it would be good for your husband to go with you. Having my husband with me when I saw my GP, and him speaking up was the only reason I finally got an MRI and referral to a neuro.
Praying for you, and that your neuro visit will give you your dx and treatment can begin.
Keep in touch and let us know what is going on with you.
Hugs,
doni
Could the doctor have said vasculitis? That's inflammation of blood vessels and it can happen in the brain. In my last round of MRIs, the radiologist said that vasculitis would be one explanation for the abnormalities.
However, I have no symptoms of vasculitis (whatever they may be), so my neuro didn't comment on that part. My MRIs are always atypical for MS, but it's always still within the differential diagnosis. That may be true of you too. Why not do a bit of internet research, if vasculitis is what your GP mentioned, and find out what else would be going on if that's what you have. Then, when you see your neuro, you'll be more prepared and can ask good questions. (Don't mention the internet or this forum, though!!)
If what the neuro tells you doesn't explain your symptoms, ask about that as well. You might want to write down a few notes to jog your memory. Do you have a timeline? They are so useful during neuro appointments.
I think your GP's suggestion that you bring your husband is a good one. That way you'll have two people listening and asking questions. It's easy to get a bit flustered and forget things that are important to you, and also, your time with the neuro may not be more than 15 minutes, so you have to make the most of it.
Please let us know how things go.
ess
Mrs. Aristotle,
You certainly do make quite the valid point that we have to keep pushing to find an answer even when the doctors are initially stumped. I am very curious to hear the official medical explanations you are getting next week- please do keep us informed.
My best, Lulu