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Side effects of steroids like solu medrol
Hi everyone!
My sister (diagnosed with RRMS) had a relapse 3 weeks ago, so she went to the hospital, where she get solu medrol treatment. (3 days 1000 mg/day etc. etc.) Now she take 32 mg/day.
Her sympthoms are dissappeared, but after she left the hospital, she experienced some problems, like knee pain, spinal pain, she feel her legs overburdened, and she complained yesterday, when she washed her hands in hot water she feels some tinglings. These sympthoms sound like a new relapse, but it would be so uncommon, because the steroid worked well (double vision, mild swallowing problems disappeared).
So is it a side effect of steroid??
What do you think? Did you experience simillar problems?
David
My sister (diagnosed with RRMS) had a relapse 3 weeks ago, so she went to the hospital, where she get solu medrol treatment. (3 days 1000 mg/day etc. etc.) Now she take 32 mg/day.
Her sympthoms are dissappeared, but after she left the hospital, she experienced some problems, like knee pain, spinal pain, she feel her legs overburdened, and she complained yesterday, when she washed her hands in hot water she feels some tinglings. These sympthoms sound like a new relapse, but it would be so uncommon, because the steroid worked well (double vision, mild swallowing problems disappeared).
So is it a side effect of steroid??
What do you think? Did you experience simillar problems?
David
We live in Hungary (EU members). In the EU are more conservative in these things, so tysabri only "secondline" drug to treat MS in my country.
I heard about this drug, it is very effective!
I heard about this drug, it is very effective!
I have not yet began treatment as I am freshly diagnosed. I see my specialist for the first time next week to discuss my options. My current neuro leans towards to Tysarbi track, and I have a friend with MS who currently does Tysarbi treamtment as well. That seems to be the most likely candidate, but we will see...
Thank you!
The most important thing to put the flare into a silent mode, and recover! My sister will start her MS treatment. In first line she have chosen copaxone (glatiramer-acetate), she dont want to experience flu like sympthoms so she rejected betaferon, and avonex.
In second line (if the first line treatment ineffective) she may chose tysabri (natalizumab) or gilenya (fingolimod).
Fortunately RRMS'ers nowadays have a lot of effective treatments to fight against this desease.
What is your current treatment, and what experienced?
Good healt for you!
David
The most important thing to put the flare into a silent mode, and recover! My sister will start her MS treatment. In first line she have chosen copaxone (glatiramer-acetate), she dont want to experience flu like sympthoms so she rejected betaferon, and avonex.
In second line (if the first line treatment ineffective) she may chose tysabri (natalizumab) or gilenya (fingolimod).
Fortunately RRMS'ers nowadays have a lot of effective treatments to fight against this desease.
What is your current treatment, and what experienced?
Good healt for you!
David
Hi ND -
High dose steroids can indeed have side effects. The oral 32mg dose sounds like a taper. IVSM is powerful and many think it's better to gradually step down from the 100mg IV dose. It should help ease the side effects your sister is experiencing.
Kyle
High dose steroids can indeed have side effects. The oral 32mg dose sounds like a taper. IVSM is powerful and many think it's better to gradually step down from the 100mg IV dose. It should help ease the side effects your sister is experiencing.
Kyle
Hi Laura!
Thank you for the answer.
I think, it would be a side effect of solumedrol, because she never experienced simillar, only 4 days after the mega (1000mg/day) dose of this steroid.
(Her MS symptoms are double vision, and mild swallowing problems - mainly brainstem, and a mild cognitive, and urinary things, which are much better, or totally restored after this treatment.)
She have to take this steroid now, but only 32 mg/day....
Best wishes!
David
Thank you for the answer.
I think, it would be a side effect of solumedrol, because she never experienced simillar, only 4 days after the mega (1000mg/day) dose of this steroid.
(Her MS symptoms are double vision, and mild swallowing problems - mainly brainstem, and a mild cognitive, and urinary things, which are much better, or totally restored after this treatment.)
She have to take this steroid now, but only 32 mg/day....
Best wishes!
David
Hi David. Thanks for checking in on behalf of your sister. the solumedrol (IVSM0 can leave some residual problems, but from this distance it is hard to guess in her case.
It is much too soon to call this a new relapse- the time frame for that would be 30 days or more from the previous one. It also can take several weeks for the complete effect of the IVSM to kick in and for the central nervous system to settled, again.
The hard thing to understand with IVSM or even the drugs we take for our disease, is it doesn't necessarily take away all the problems we have already expexperienced. The knee and spinal pain could be from something totally unrelated to the MS.
Give her our best- I hope she continues to improve. ~Laura
It is much too soon to call this a new relapse- the time frame for that would be 30 days or more from the previous one. It also can take several weeks for the complete effect of the IVSM to kick in and for the central nervous system to settled, again.
The hard thing to understand with IVSM or even the drugs we take for our disease, is it doesn't necessarily take away all the problems we have already expexperienced. The knee and spinal pain could be from something totally unrelated to the MS.
Give her our best- I hope she continues to improve. ~Laura
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I was found to have a few more severe, negative side effects throughout the dosing such as steroid induced psychosis and trouble breathing. Nothing life threatening, but due to these I was labeled "allergic" to the IVSM.
It's wonderful to hear her symptoms cleared up so quickly... I'm two weeks post and mine seemed to have gotten worse (bad before it gets better, right!!?) The dr said the side effects take 3-5 days to clear, however I have read the steroids can take up to 30 days to leave your system, so I would believe her side effects could last the duration of the steroids in her body.