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1172359 tn?1310667693

Spinal Tap Phobia

I saw my MS Specialist yesterday and he has ordered yet another test.  A spinal Tap.  I am scared of those.

I understand and appreciate that he wants to me make sure it is MS before he starts treating me, but what else could it be?  What else mimics MS?
Because my EMG was normal and the visual part was normal I believe he is starting to doubt me.  I wouldn't make up these symptoms.  I do not want them.  They are ruining my life.  
I apologize because I frustrated and confused.
What if there are no antibodies in the fluid, does that mean I am crazy and none of these symptoms are real?
Does the lesion on my brain mean something else?

Sorry guys, I do not know what to think anymore.

Cin
65 Responses
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667078 tn?1316000935
Mine took three weeks and then they did more blood work which took another three weeks. Hang in there,

Alex
Helpful - 0
198419 tn?1360242356
Hey Gal,

It takes weeks to get results, and even longer for the O-band report.

Head better ?

Helpful - 0
1172359 tn?1310667693
Still no test results from the spinal tap!  Are they trying to make me crazy?

Cin
Helpful - 0
1172359 tn?1310667693
Hello everyone, I am still waiting for the results from my LP, but no matter what it is, I know something is wrong.
I believe I have mentioned that I passed the evoked test, and I am not sure if this has anything to do with what happened today, but I had a horrible sharp pain in my left eye.  It has been blurry all day, but when that happened it scared me bad.
Now, my eye is sore like somebody poked me in it.  
Is this normal? what in the world is happening to me?  If I passed the evoked test on my eyes then why is this happening?
More questions, sorry everybody.
Cindy
Helpful - 0
1172359 tn?1310667693
As soon as I get my results I will share them with yuou guys.  You do the same Rachel.
All I want is an answer.  I am starting to doubt myself and I do not like that.

I keep reading up on MS and I see that most people have attacks and then have good days and that sometimes they can go for a long time without a symptom.  I rarely go a day without being numb and every night my legs and my left arm is fatigued.
I just do not understand.  What happened to my good days?

You guys take care and thank you!!!
Helpful - 0
Avatar universal
Thank you for sharing your frustrations! My last lumbar puncture was negative, but I have lesions on my brain, numbness and tingling in my legs and bilateral arm pain with LOTS of fatigue and confusion. I get the results of my brain MRI tomorrow , so we can all share our most recent tests results.  I just want a definitive diagnosis so I know how to prepare my body for the fight (whatever that fight may be :)

Rachel
Helpful - 0
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