NO QUESTION, JUST AN UPDATE ;-(

[ShadowsSister]

I KNOW IT'S BEEN A WHILE SINCE I HAVE POSTED ANY THING, BUT IT'S BEEN SO DIFFICULT. I WANT  TO BE POSSITIVE AND THAT IS HARD WHEN THINGS ARE GETTING WORSE... I REMIND MYSELF DAILY SOME TIMES MINUTE TO MINUTE, " THAT GOD DOESN'T GIVE ANY OF US MORE THAN WE CAN HANDLE" I MUST ADMIT THAT LATELY I START TO WONDER.. IT DOESN'T LAST, (THE WONDERING,)

TODAY I HAD TO ENDURE ANOTHER DYE TEST FOR THE CATHE FROM THE PUMP TO MY SPINE. WE STARTED AT 9:30 AM AND DIDN'T FINISH UNTIL ALMOST NOON. THE SPASMS HAVE ONCE MORE DISPLACED THE PUMP, IT IS AGAIN OUT OF THE POCKET. THIS MAKES IT REALLY DIFFICULT FOR DR. DAHI TO LOCATE THE PORT. FOR THE FIRST TIME HE BENT A FEW NEEDLES TRYING TO INJECT THE DYE TO EVEN START THE TEST..

ALL THS TIME I HAD TO LAY ON MY SIDE, MY BODY GOES INTO SPASMS ANYTIME IT HAS TO BE STRECHED OUT.. NOT FUN !

I WILL BE GETTING THIS PUMP REPLACED. NO I WASN'T GIVEN A DATE BUT HOPE I'LL GET IT SCHEDULED WHEN I GO IN NEXT TUESDAY FOR THE REFILL. DR.DAHI DID FIND OUT WHAT PART OF THE PROBLEM IS.
THE SPASMS HAVE MOVED THE TIP OF THE CATH WHICH IS IN THE SPINE SO THAT IT IS POINTING DOWNWARDS. THE DAMAGE CAUSED BY THE SPASMS SEEM TO BE BLOCKING THE MORPHINE FROM REACHING MY BRAIN. WE'LL KNOW MORE WHEN THE RESULTS OF THE CT SCAN DONE THIS AFTERNOON ARE AVAILABLE.

TO SAY IT'S BEEN A RATHER DIFFICULT DAY COULD BE CALLED AN UNDERSTATEMENT... ;-)  I KEEP SAYING TOMORROW WILL BE BETTER.. AS SOON AS I KNOW THE DATE FOR THE SURGERY I'LL LET ALL OF YOU KNOW.

PLEASE UNDERSTAND WHY I HAVEN'T POSTED MORE OFTEN. SHADOW CHEWED TROUGH THE ADAPTER CABLE TO THE LATOP ;-( SO  I AM HAVING TO USE THE ON LINE KEYBOARD  ONE CLICK AT A TIME WITH SHAKY HANDS AND MESSED UP VISION.. HEY ARE WE HAVING FUN YET  LOL IT COULD BE WORSE...

PLEASE KNOW THAT I KEEP EACH OF YOU IN MY DAILY PRAYERS AND SEND YOU HUGS FILL WITH LOVE CARRIED TO EACH OF YOU ON THE WIND. {{{{~!~}}}}

[sllowe]

Hey DJ,

You apologize for your absence, but your presence is so big that it feels like you are here everyday even when you are not - it's a great feeling - one that embraces each and every one of us every day.

Many hugs to you friend, and prayers for strength for this next round.
Love,
Shell

[Wobbly]

I hope you are feeling abit better today, you go through so much and still come online to

be with friends here, you are a special part of this forum and I wanted to say you are in

my thoughts and prayers.  I have just been Dx with PPMS and you give me some

strength and courage to go forward and not be afraid of what might be there.

Thanks for being here and being a friend to all

take care of yourself

wobbly
dx

[Valerie64]

THAT'S A REALLY NICE MANTRA :

'' TODAY IS A NEW DAY.. . I AM GOING TO MAKE IT A BETTER ONE THAN YESTERDAY, THAT'S MY GOAL.''

AM SAYING THAT EVERY DAY NOW!

TAKE CARE

VAL X

[OllyOil]

YOU ARE ONE VERY SPECIAL & AMAZING LADY.

CHANGE SHADOWS NAME TO SPARKY!

SEND YOU & SHADOW A HUG FROM ACROSS THE SEAS.

[ShadowsSister]

HOW FORTUNATE WE ARE TO HAVE EACH OTHER. NO MATTER WHAT IS GOING ON IN OUR LIVES SOME ONE IS ALWAYS THERE OFFERING ADVISE, SUGGESTING WHERE TO LOOK FOR THIS OR THAT, JUST LETTING US KNOW WE AREN'T A LONE...RATHER LIKE A LARGE LOVING FAMILY  WHO KNOW HOW TO LAUGH & EVEN CRY TOGETHER... I FIND IT VERY COMFORTING TO NO LONGER BE ON THIS JOURNEY BY MYSELF. BY THAT I MEAN, WE UNDERSTAND (AS MUCH AS HUMANLY POSSIBLE) WHAT LIVING WITH MS IS LIKE.

I AM NOW USING THE ORAL MORP EVEN THOUGH THE PUMP WAS TURNED UP FROM 14 TO 17., WHICH WAS A PRETTY GOOD BUMP. I ALMOST FEEL A BIT SORRY FOR DR. DAHI,    HEY! I SAID
'"ALMOST"!!     I THINK HE MUST BE FEELING GUILTY FOR REFUSING TO ADMIT THAT THIS PUMP WAS A MISTAKE WAY BACK IN '06.

I KNOW THIS IS "WHAT IT IS" AND I AM MOVING FORWARD. I REFUSE TO RE-LIVE YESTERDAY. BEEN THERE - DONE THAT.
TODAY IS A NEW DAY.. ;-) I AM GOING TO MAKE IT A BETTER ONE THAN YESTERDAY, THAT'S MY GOAL.

SINCE MY SISTERS ARE COMING INTO TOWN, I DECIDED I'LL PUT THEM TO WORK AND GET MY CRAFT ROOM SET UP SO I CAN GET BACK TO SCRAP BOOKING & MAKING HATS..ETC.. I HAVE A LOT OF LIVING LEFT TO BE DONE BY THIS OLD GAL... I AM GOING TO START MOVING FORWARD AGAIN... DJ IS RATHER TIRED OF THIS CRAPOLA ;-)  YES I TRUELY AM!!

I HOPE ALL OF YOU HAVE A BETTER DAY, THAT YOU FEEL THE HUGS I'M SENDING EACH OF YOU...
IT SHOULD BE A BREEZEY DAY ;-)
THANKS AGAIN FOR ALWAYS SUPPORTING ME & KEEPING ME IN YOUR PRAYERS  {{{~!~}}}

[PastorDan]

SIS, WE'RE PRAYING LIKE CRAZY HERE IN OHIO.

YOU'RE PROBABLY THINKING OF THIS VERSE, 1ST CORINTHIANS 10:13, WHICH SPEAKS OF TEMPTATION.

No temptation has overtaken you that is not common to man.  God is faithful, and  he will not let you be tempted beyond your ability, but with the temptation he will also provide the way of escape, that you may be able to endure it.

IT DOESN'T SAY SPECIFICALLY THAT WE WILL HAVE ENOUGH ENDURANCE THROUGH TRIALS, BUT I KNOW FROM MY OWN EXPERIENCE THAT GOD WILL BE WITH ME IN ALL THINGS; ALEX IS 100% RIGHT ABOUT THAT.  HERE'S A VERSE FROM ISAIAH, 43:2.

When you pass through the waters, I will be with you; and through the rivers, they shall not overwhelm you; when you walk through fire you shall not be burned, and the flame shall not consume you.

I'LL DITTO TERRY'S DITTOES, AND EVERYONE ELSE'S COMMENTS AS WELL.  GOD BLESS, MY FRIEND.

[Guitar_grrrl]

SHEESH!  ALL THAT AND THE SMOKY AIR DOWN THERE IN SO. CAL.  I'M SO SORRY YOU'RE GOING THROUGH ALL THAT H*LL!  

I'M THINKING OF YOU, SENDING YOU LOVE, HUGS, AND TUNES!

NAMASTE,
GUITAR_GRRRL

[Eyesnlegs]

I'm late as always but just wanted to sat that you make me humble. You should never have to endure this and your resolve is truly inspired.

I too wish you peace and strength.

I am sending love and hugs and healing thoughts across the sea to join the others.

Pat x

[Lulu54]

SHADOW MAY BE THE SMARTEST KITTY - BECAUSE HE CHEWED ON LIVE ELECTRIC WIRES  AND FIGURED OUT HOW TO SURVIVE ANYWAY.

DID YOU THINK TO ASK YOUR FAMILY TO CHECK OUT THRIFT STORES IN THE AREA?  THE ONES HERE OFTEN HAVE MEDICAL EQUIPMENT THAT PEOPLE HAVE DONATED.  ITS WORTH A LOOK - DH'S BROTHER FOUND A WHEELCHAIR THAT WAY FOR THEIR MOM.

KEEP RESTING - WE'LL CHAT SOON.

L

[Tammy826]

I JUST WANTED TO LET YOU KNOW I'M PRAYING FOR YOU!! MY HEART BREAKS THAT YOU HAVE HAD TO ENDURE THIS. I PRAY THAT GOD NOT ONLY GIVES YOU HEALING & COMFORT BUT GRACE & THE PEACE THAT PASSES ALL UNDERSTANDING. YOU ARE AN INSPIRATION TO ME. YOU HANDLE ALL OF THIS WITH SUCH GRACE THAT I ONLY WISH I COULD HAVE. PLEASE KEEP LOOKING UP ALTHOUGH I KNOW SOMETIMES IT CAN BE HARD! I'M SENDING LOTS OF LOVE & HUGS AS WELL AS HEARTFELT PRAYERS YOUR WAY!
                           LOVE, TAMMY

[ShadowsSister]

another sleepless night, but figure I can rest today...
about the a/c adaptor it's already been ordered,  thanks to a very special
"EARTH ANGEL". I won't mention her name but she knows I thank her for her many acts of kindness.

The other good thing that happened this week is my son Tony and daughter Cheri are working together to replace my manual wheel chair, the one I repaired with duct tape..
Medicare will only pay for the electric w/c, and I am ever so grateful for that . this is what I mean when I say "Our Heavenly Father takes care of our needs" the tricky part is to be able to tell the difference between "wants & needs". It can sure cut down on the stress when we figure it out..

I want all of you to know how much your kindness, support and prayers mean to me. I feel like each one of you are a special gift & Blessing. thank all of you so very much..

Now how about we all find things to laugh about today, it really is great medicine,, for me that's quite easy having Shadow for my room mate, I swear he is the smartest kitty I have ever known..

all of you please have a pain & stress free day... hey the week is half over soon it will be the WEEK-END   HAPPINESS & JOY  ;-)  {{{~!~}}}}

[saveone]

DITTO TO EVERYTHING EVERYONE SAID.  I COULD NOT HAVE SAID IT BETTER.  I AM PRAYING FOR THE PEACE AND STRENGTH YOU NEED TO GET THROUGH THIS.  I KNOW YOU HAVE THESE TWO ALREADY BUT A LITTLE EXTRA OF EACH COULDN'T HURT.

TAKE CARE AND BE WELL, ((((((((((((HUGS))))))))))))))  TERRY

[Lulu54]

DJ - I ALMOST CALLED LAST NIGHT TO CHECK IN ON YOU BUT FIGURED IT HAD TO HAVE BEEN A VERY ROUGH DAY.  I HOPE YOU GOT SOME REST.

TAKE THE ORAL MEDS AND GET THROUGH THIS ONE DAY OR ONE HOUR AT A TIME.  I KNOW DR DAHI IS GOING TO MAKE THIS WORK RIGHT FOR YOU, ONE WAY OR ANOTHER.  

I WOULD SAY *HANG IN THERE* BUT I KNOW YOU WILL - YOU'RE ONE TOUGH COOKIE!

LOTS OF LOVE AND GENTLE HUGS
L

[HVAC]

THE BIBLE PASSAGE DOES NOT SAY GOD DOES NOT GIVE US MORE THAN WE CAN HANDLE. IT SAYS HE IS THERE FOR US THROUGH ANYTHING.

YOUR FRIENDS ON THE FORUM ARE THERE WITH YOU AS WELL.

I HOPE THEY RESOLVE THE PUMP SITUATION SOONER THAN LATER. I CAN'T IMAGINE A DOCTOR BEING TOLD SORRY YOU HAVE TO WAIT IN PAIN THIS LONG.

WE LOVE YOU DJ,

ALEX

[essdipity]

DJ, THERE'S NOTHING I CAN TEACH YOU ABOUT THIS AWFUL DISEASE, BUT I CAN SEND YOU GOOD WISHES AND HOPES FOR BETTER TIMES AHEAD. MAY THIS PROBLEM BE FIXED SOON, ONCE AND FOR ALL, AND MAY YOU GET A NEW COMPUTER CORD!

WITH HUGS FROM ESS

[michelleric]

I AM SORRY YOU HAD SUCH AN AWFUL, PAINFUL DAY.  IT ALL JUST SOUNDS EXCRUCIATING, AND I AM SORRY YOU HAD TO ENDURE IT.  

I AM GLAD YOU WILL BE GETTING THE PUMP REPLACED, AND I PRAY IT WILL BE SOON. YOU NEED SOME RELIEF.

YOU WILL BE IN MY THOUGHTS, ALWAYS ARE, AND I WILL BE SAYING A PRAYER FOR YOU.

SENDING YOU HUGE HUGS AND STRENGTH,

XO,

MICHELLE

[Charley123]

I'm sitting here wishing that I could take all the pain and struggle from you...and everyone else.  I hope you can hear and feel our prayers. Many hugs back to you, Charley

[LLWB]

I HOPE YOU HAVE SOME ORAL MORPHINE TO TAKE UP THE SLACK. SURE HOPE THEY GET THE REPLACEMENT SCHEDULED SOON. I'M WITH YOU, SOMETIMES I WISH GOD DIDN'T THINK WE ARE SO STRONG! BUT, HE IS ALWAYS WITH US.  I'LL PRAY FOR SOME ACTION SOON.

((((((((((GENTLE HUGS))))))))) & PRAYERS
MAGGIE