Thanks for the time and kind words of compassion in response to my post. I appreciate everything you say.
@ Pam: The TEE wasn't bad although they could not sedate me enough due to my low b/p (I was running 80's over 48's) so I had to be awake and yes I gagged a lot. It's over though and I think I will trust not to do anymore invasive tests that I know in my heart that is going to come out negative. All Im doing is allaying the PCP's suspicions and making the people who are doing the test richer and in the end, I suffer from it.
Thank you again everyone!
Lisa
Lisa,
So glad you survived that horrible test!! I can say that because I had to have it done also. I gagged so bad on that drink or whatever it was. I felt so dumb that I couldn't get it down without gagging. The drs/nurses were like, "are you ok??" but I almost lost it a couple of times, LOL
No hole in my heart either. My 1st neuro was the one that sent me to a heart dr. to have this test done, he originally dx'd me with TIA, but my heart dr. said, MS,,,, go figure! LOL
Good luck my sweets!!!
Pam
Best of wishes. I hope there's answers as to why you are not feeling well. For me, it came seven months after I saw my neuro first. The first month, prior to my MRI, he told me that it could be anything and I received a whole bunch of tests--including an echocardiograhm, LP, blood work (14 vials worth), and a CAT scan of my lungs to name a few. It was a very, very difficult time period, so I can really relate to this.
Prior to seeing this neurologist, I've been to at least three rheumatologists and have had a lot of different diagnosises (or lack of ones, too). I've also been to another neurologist who didn't run any tests and told me that I couldn't possibly have MS. So, at this point in time, I was at my wit's end having been through all of those tests thinking I was going to be blown off or diagnosed with something I knew it wasn't.
I know how difficult this is! What time do you go in? I'm praying right now that you'll have some answers . . .
Deb
Hi Lisa boy have you been thru the ringer what a invasive test you have had for no reason. I hope you get some answers today but if not dont give up find another neuro I know what you are going thru I have been in limbo land for 6 yrs now and I am trying to regroup myself and continue the fight but its exhausting to say the least I am out of work and couldnt imagine going back . please let us know what you find out today and I will keep mmy fingers crossed and a prayer for you
Kat