Good afternoon, my online friends. I would greatly appreciate it if you all would read and give any feedback on my symptom timeline. It is approximately 1 1/3 pages long in Word.
I also have a Top 3 Life Impacting List, which include my vision, weakness/pain on the right side of my body, and fatigue. I have described how these things have affected my life (very briefly, for example, nervousness about not being able to drive at night; blurriness/double vision in spite of my glasses though they help some; inability to exercise on treadmill for 45 minutes like I used to; being almost exhausted by the end of the workday). Anyway, here is the timeline:
1. February 8, 2012 – Awoken in the night by the feeling that all of the teeth, upper and lower, on the right side were hurting. Dentist found and filled a small cavity; nothing further. This pain lasted for about two days. Wake approximately every 4-6 weeks with this “phantom tooth pain” and it usually lasts 1-2 days.
2. June 6, 2012 and June 24, 2012 – Stabbing/zapping “zzt” at the base of the skull. Was so intense I could not speak.
3. Since initial occurrence of item 2, on-going zaps and “zzt” sensation extending down my spine and right arm at times when head is moved downward.
4. June 8, 2012 and June 24, 2012 – “Momentary paralysis.” Felt like someone was squeezing my middle and I couldn’t move. Since the initial episode, I have instances of a tight pressure sensation in my ribs and it feels like my ribs are poking me.
5. July 7, 2012 – Fell while walking around the pool (flat surface). Right leg “gives out.” I stumble when I walk for no apparent reason.
6. July 11, 2012 – Until this date had no problems with vision. Did not wear glasses of any type. Woke to blurry vision. While driving to work lights appeared double (traffic lights, car headlights). White lights green and red lights are most. For example, green traffic light appears to have one light on the bottom, one on the top and and two side-by-side, in a diamond shape. I also cannot read street signs, especially if the sign is white with black lettering, or if the letters are in white. Lit signs and neon signs (example: gas station signs) doubled/blurry. This has not gone away (saw Ophthalmologist on October 4, 2012 – see item 13 below).
7. July 16, 2012 – Right arm felt very weak, and when I picked up my water bottle it felt as though I’d hit my “funny bone.” Since then, my right arm feels varying degrees of being “asleep” all the time.
8. July 24, 2012 – While eating supper, sharp pain began on right side of face, jaw, cheek. Inside of mouth tingly, like Novocaine wearing off. Right eye pressure/pain, sharp pain in cheek, numbness on right side of nose. All teeth on the right side, upper and lower, felt as though they were all having a toothache at once. Sharp throbbing behind right ear. This lasted until July 29, 2012. Numbness on the right side of my nose/pain in cheek continues to occur periodically.
9. August 28, 2012 – Pinky on right hand with very decreased sensation. When I had EMG done on the August 30th, 2012, I could not feel the needles when they were placed in the flesh below my pinky. I have the “half-asleep” and “pins-and-needles” sensation in my right hand. This has not gone away and now involves the ring finger as well. Nerve Conduction study normal (report attached).
10. August 30, 2012 – Fell down the stairs. The first time I fell down the stairs was in 2006, no injury; sprained my ankle due to falling down the stairs in the October of 2010. It did not occur to me to document individual falls at that point as I thought I was just “clumsy.” On-gong “slipping” on the stairs.
11. September 1, 2012, woke in the night with my entire right side of body (including leg and foot) feeling as though it were asleep, which had never happened before. Now right leg and foot feel “half-asleep” at varying levels all the time as of this writing.
12. September 22, 2012 – Awoke to pronounced ghosting; pressure in left eye. Contacted Neurologist’s office, who recommended I see an Ophthalmologist
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13. October 4, 2012 – Saw Ophthalmologist. Was found to have 40% decreased red color saturation; refractive diplopia, and convergence insufficiency. According to report/notes DDx MS; MG, with recommendation for Neurologist to evaluate for Multiple Sclerosis and Myasthenia Gravis and send findings/reports. Follow-up with Ophthalmologist pending due to on-going testing.
14. January 25, 2013 – Woke to BOTH left and right arms feeling as though they were “asleep.” Left arm felt worse than right; pinky and ring fingers of left hand affected as well. Lasted through January 26, 2013.
15. January 25, 2013 – Dizziness to the point of needing to hold onto furniture to get around the house. Lasted through January 26, 2013.
16. January 31, 2013 – Again woke to BOTH left and right arms feeling as though they were “asleep.” As previously described in item 14, pinky and ring fingers numb/tingling. This lasted until February 2, 2013. As of this writing, the left arm is no longer affected.
17. March 1, 2013 until Present – More ghosting/doubling of vision. Left eye tired and achy, no extreme pain; just minor discomfort. When covering right eye, vision double in left. Vision blurry when covering left eye and looking out of right.
Thank you again for reading and any replies/feedback.
Minnie
Minnie :)
For what it's worth, here's what I came up with.
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History of falls down stairs in 2006 and 2010
February 2012
Awoke with pain in all teeth on right side. Lasted 2 days.
Continues to occur about every 4-6 weeks lasting 1-2 days each time.
June 2012
First experience of intense stabbing/zapping “zzt” at the base of skull. Presently have on-going zaps and “zzt” sensations that extend down spine and right arm.
Episodes of “Momentary paralysis.” when it felt like someone was squeezing my middle and I couldn’t move. These episodes continue to occur causing a tight pressure sensation in my ribs.
July 2012
Fell while walking on flat surface. Right leg “gives out.” I stumble when I walk for no apparent reason.
Awoke with blurry vision. Lights appeared double when driving. Neon signs appear doubled/blurry. This has not improved.
Right arm felt very weak, and like I’d hit my “funny bone” when I used it. My right arm continues to have varying degrees of being “asleep” all the time.
While eating supper had sharp pain on right side of face, jaw, and cheek. Inside of mouth tingly. Right eye pressure/pain. Numbness on right side of nose. All teeth aching at once. Sharp throbbing behind right ear. This lasted five days. The numbness on the right side of my nose and the cheek pain continue to occur periodically.
August 2012
Pinky on right hand had severely decreased sensation. (couldn’t feel insertion of EMG needles). I have a “half-asleep” and “pins-and-needles” sensation in my right hand that hasn’t gone away and now involves the ring finger as well. Nerve Conduction study normal (report attached).
Fall down stairs.
September 2012
Awoke in the night with my entire right side feeling as though it was asleep. Right leg and foot still feel “half-asleep” continuously but the intensity varies.
Have had pronounced image ghosting and pressure in left eye. Contacted Neurologist’s office. He recommended I see an Ophthalmologist
October 2012
Saw Ophthalmologist. Report available.
Found to have 40% decreased red color saturation; refractive diplopia, and convergence insufficiency. Requested neurology evaluation for possible MS and/or MG before further follow-up.
January 2013
Woke to BOTH left and right arms feeling as though they were “asleep.” Left > right; pinky and ring fingers of left hand also involved. Lasted 2 days
Identical incident 5 days later lasted 3 days
Episode of dizziness (needed to hold onto furniture to get around the house) lasted 2 days
March 2013
Ghosting/doubling of vision worsens. Left eye tired and achy, no extreme pain; just minor discomfort. Vision appears blurry in right eye and double in left.
I’m a very different person now than I was 2 (?) years ago. Back then I was exercising… (highlight a few things that describe your life quality then). Today I am have lost some of my independence. I can’t drive at night… (highlight how your quality of life has changed). Keep this VERY brief. It’s your ‘impact statement’.