Aa
Thinking back "What were your presenting symptoms?
Just curious. :)
left eye pain, Optic neuritis was never confirmed and minor balance problems,
It all started in March 2008.
Johnniebear
It all started in March 2008.
Johnniebear
COMMUNITY LEADER
I'm not sure what came first, odd things have happened and resolved for 20 years, if I look back I can work out things that was no big deal when I first noticed something but is a big issue for me now. One example, (possibly first), I started having periods of blurry vision, It would last a few days and go away again. I was told i read too much, (strange but true) I didn't do more or less than before so I couldn't work it out. Nothing was picked up during eye tests, my sight was perfect!
It progressed to having trouble focusing and sometimes i would be caught staring in to space, that led to having my toncils out at 29. Thoughts at the time were that the persistant toncilitus through out my life was now poisioning me, yes no toncils and still I was having issues with intermittent blurry visson and trouble focusing, though my sight was always perfect when tested so there was no concern.
Fast forward through the years and i'd added quite a lot more issues apart from my sight, they too would come and go, always a little worse than the time before but they went away and no dr had a clue. A couple of years ago, for the first time the optometrist picked up a problem, I now had a pale optic disk in my right eye, my sight was still perfect, though light sensetivity was worse than the test prior, pressure normal etc so thought to be early glacoma, i didn't get told, it was just noted in my chart.
The last test I had at the same clinic but different optomitrist, was only a few months back, and i've now been dx with unilateral adult acquired Nystagmus (MS related), diplopa which is double vision (MS related), significant unilateral deficit, unilateral pale optic disc (ON = MS or glacoma = not) and cork screw ocular veins (??). Now that I know I have a pale optic disc, and with my eye pain and everything else, ON is the more logical explanation, where as for it to be early glacoma and totally unrelated to anything else and even presenting in an inconsisten fashion to glacoma, would not be logical.
From my perspective, an early sx progressed through the years but is only now detectable, so now the damage is there for all to see (pardon the pun), not just me saying this is happening, its finally proven and now that 15+ year old complaint is validated and neurological in causation lol.
Cheers..........JJ
It progressed to having trouble focusing and sometimes i would be caught staring in to space, that led to having my toncils out at 29. Thoughts at the time were that the persistant toncilitus through out my life was now poisioning me, yes no toncils and still I was having issues with intermittent blurry visson and trouble focusing, though my sight was always perfect when tested so there was no concern.
Fast forward through the years and i'd added quite a lot more issues apart from my sight, they too would come and go, always a little worse than the time before but they went away and no dr had a clue. A couple of years ago, for the first time the optometrist picked up a problem, I now had a pale optic disk in my right eye, my sight was still perfect, though light sensetivity was worse than the test prior, pressure normal etc so thought to be early glacoma, i didn't get told, it was just noted in my chart.
The last test I had at the same clinic but different optomitrist, was only a few months back, and i've now been dx with unilateral adult acquired Nystagmus (MS related), diplopa which is double vision (MS related), significant unilateral deficit, unilateral pale optic disc (ON = MS or glacoma = not) and cork screw ocular veins (??). Now that I know I have a pale optic disc, and with my eye pain and everything else, ON is the more logical explanation, where as for it to be early glacoma and totally unrelated to anything else and even presenting in an inconsisten fashion to glacoma, would not be logical.
From my perspective, an early sx progressed through the years but is only now detectable, so now the damage is there for all to see (pardon the pun), not just me saying this is happening, its finally proven and now that 15+ year old complaint is validated and neurological in causation lol.
Cheers..........JJ
Migraines, the a single seizure then vertigo/balance issues.........but if i look way back ten years I had attacks of dizziness and muscle spasms that I think now may have been the true start.
I had basically your same situation. I had espisodes of Trigeminal neuralgia for several years, but nothing else until ON hit.
LA
LA
I had horrific sporadic facial/scalp pain for the last 7 years or so. It was very infrequent episodes for the 1st 5 years, and then really changed for the worse in the last 2 years. Turned out to be trigeminal neuralgia with some other neuralgia's mixed in.
I had Optic Neuritis about 2 years ago, and that was the 1st symptom that got me worked up for MS. That was in 2008.
Michelle
I had Optic Neuritis about 2 years ago, and that was the 1st symptom that got me worked up for MS. That was in 2008.
Michelle
When I was 2 1/2 in 1965 permanent double vision and trouble swallowing due to lesion on brain stem.
Have an Answer?
You are reading content posted in the Multiple Sclerosis Community
Top Neurology Answerers
Australia
ON
Queensland, Australia
Queen Creek, AZ
Find out how beta-blocker eye drops show promising results for acute migraine relief.
In this special Missouri Medicine report, doctors examine advances in diagnosis and treatment of this devastating and costly neurodegenerative disease.
Here are 12 simple – and fun! – ways to boost your brainpower.
Discover some of the causes of dizziness and how to treat it.
Discover the common causes of headaches and how to treat headache pain.
Two of the largest studies on Alzheimer’s have yielded new clues about the disease
