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Tinnitus and/or Vascular Tinnitus

by goofysmom1, Oct 23, 2008 04:49PM
Anyone experience tinnitus (ringing in the ear) or vascular tinnitus (pulsing or whooshing sound in the ear) as a symptom?

I have recently begun to experience the pulsing/whooshing in my ears - a little disturbing.  I have dealt with the whine or whistle in my ear for some time...pretty sure they are related to my other symptoms, just wanted to see how common it is.

Thanks!
Chrisy
Member Comments (15)

by jensequitur, Oct 23, 2008 06:37PM
Yup, I get the whooshing and the ringing, which is disconcerting when it's REALLY loud in my left eardrum.  Then sometimes it cuts out like a bad speaker, which is even weirder.

by mary_kay, Oct 23, 2008 06:43PM
Yep~ I keep thinking I have allergies or an ear infection, but when the dr. looks...nada.  It is worse in my left ear (of course) but I don't think my hearing is compromised. I never really considered it to be related to my other symptoms...hmmmm

by GrannyJo6, Oct 23, 2008 09:52PM
Yes, I have too. The whooshing like your heart beat is called pulsitine tinnitus I believe. Very annoying sometimes! I've not thought it to be related to MS, but am curious to see what others think.

by Lulu54, Oct 23, 2008 10:03PM
I have tinnitus in my right ear that comes and goes.  My right side of my body seems to be the one that has the symptoms....   Fortunately it doesn't stick around and rarely gets loud.  

I'm interested what others have to say too!
Lulu

by Sailorsong, Oct 23, 2008 10:59PM
I also have tinnitus in both ears with the right ear being the worse one. I do have hearing lose in both ears as well. The loudness in the right ear seems to be constant while the left ear varies quite a bit. When the left ear gets really loud I wish I could rip out the inner ear.

Dennis

by goofysmom1, Oct 24, 2008 10:35AM
To: all
The majority of my symptoms have been on the left side of my body.  I do have some tingling that I get in both legs, but the majority of my symptoms have been on my left side.  The ringing & whooshing is in my left ear - that is the only reason that I am attributing it to whatever is wrong with me and not a separate issue.

Mine comes & goes too - and it is usually ringing or whooshing - not both at the same time.  

Something to add to my list for the new neurologist...

Hugs,
Chrisy

by elia1806, Jul 30, 2009 09:07AM
To: all
Hi,
I'm writing on behalf of my dad who has been experiencing a very loud whooshing noise in his head for the last couple of years (he's in his 60's) as well as the 'bells' in his ears. After looking it up on the net, (thank heavens for the net), I discovered it has a name - pulsatile tinnitus. Dad says the whooshing sound gets so loud that he can't sleep and sometimes it's so bad he feels like smashing his head against the wall! At night, even though he's exhausted from lack of sleep, he has to sleep semi awake because if he sleeps too long on one side ie: longer than 20mins, he experiences a painful ,freezing cold sensation on the top of his head ,on the side on which he has been lying down. Due to a lack of sleep, he is extremely lightheaded and sometimes feels like he's going to fall over.I rang him to let him know what I had discovered about his condition and it was comforting for him to know that there were other people out there experiencing similar symptoms. I'd like to help him so if you have any suggestions that would be greatly appreciated. A recent CT scan revealed nothing, kind regards, Elia

by Tammy826, Jul 30, 2009 11:52AM
I get the ring & sometimes the whooshing in my L. ear & sometimes things sound muffled then it kinda pops ( like you have been at a high altitude). I drive everyone nuts by saying "huh" all the time. Mostly I have the ringing & read on another ms forum(facebook) where alot of people  with MS have complained about this.  I have had the DR. look also but never been give an explaination.

by Ufrustrated2, Jul 30, 2009 01:31PM
To: goofysmom1
Sure, count me in this boat too. Some years back it started to get worse. i was in denial for years about my hearing. finally had had enough of saying "what?" to people and went and got tested.

VA tested me and gave me hearing aids. They couldn't find anything wrong though. They help but the ringing is there and some days you notice it more than others.  Then one ENT doctor I saw for my ear issues while viewing notes on the VA computer saw a note from my local neuro and he said, "you got MS, get out of here, that's your problem with the ringing and hearing, stick with the neuro, ENT can't help you, God Bless". he's a good guy and he wasn't being mean. That was the first time that i stated to put pieces of the puzzle together about a disease that could actually be the root of so many of my symptoms

I move my head more now in acknowledgment to people speaking to me because i just got too tired of asking what the heck they said.

The ringing at night when going to bed is the hardest. I have a few fans blaring away to help wiht that.



by cydney27, Jul 30, 2009 02:23PM
I have also had the ringing in my ears for about the last 6 months.  It was driving me nuts, couldn't hear anyone talking to me, with  background noise, and still had trouble in silence, trying to discern what was being said.  

Went to my neuro, and described what was going on, he sent me to an ENT.  Had the complete going over including the test in the "booth" .  The result was that I have "great" hearing, and the ENT said that tinnitus can be caused by Baclofen, and or naproxen, or other nsaids.  

Unfortunately, I cannot reduce the amount of Baclofen that I am taking, so I have informed everyone I know that they will have to talk louder, and I guess I'll just turn the TV up...LOL

Cyd

by Sarahsmom46, Jul 30, 2009 05:17PM
I've got it too, both ears.  This questions comes up from time-to-time on the forum and we have discussed the connection between MS and tinnitus.  It seems more than a coincidence that people with MS or pre-MS might have tinnitus.  

If anyone finds anythng that supports a connection between the MS and tinnitus, please sahre it with us.  

by Suzie9, Jul 31, 2009 06:41AM
To: all
I think they say around six % of people with MS have these kind of hearing related problems.

I had muffled hearing and the whooshing and ringing tinnitus the other week for a few days. Not sure if it was related to MS though.

by supermum_ms, Jul 31, 2009 06:58AM
To: goofysmom1
Hi and count me in too, not once have i thought of it being connected to MS, very interesting. For years i've had the occasional ringing, whooshing and intermittent hearing loss in my left ear, my MS symptoms start on the left before they also include the right. I'll be paying more attention to it to see if i can find a connection.

cheers.....JJ

by whoosher, Sep 26, 2009 10:41AM
HI everyone, I am also a sufferer of pulsatile tinnitus.  Mine sounds like a whooshing heartbeat noise in m ear and it is constant.  It's important to have it checked out, but a lot of doctors are not as familiar with pulsatile tinnitus as they are with regular tinnitus.  There are differences, the most impt of which is that the cause of pulsatile tinnitus can often be identified and even fixed.  Do a Google search for "whooshers" for more information.  You're not alone!

by fdmh, Oct 02, 2009 03:14PM
Usually I have tinnitus in both ears I think, at least daily, and the vascular tinnitus occasionally as well, but that seems to always be in my right ear.
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