Tinnitus and/or Vascular Tinnitus

[goofysmom1]

Anyone experience tinnitus (ringing in the ear) or vascular tinnitus (pulsing or whooshing sound in the ear) as a symptom?

I have recently begun to experience the pulsing/whooshing in my ears - a little disturbing.  I have dealt with the whine or whistle in my ear for some time...pretty sure they are related to my other symptoms, just wanted to see how common it is.

Thanks!
Chrisy

[Cosima37]

I've had both and altho' my doctor says there's no truth in it I have found Zinc supplements to help

[vamanos]

I have the sensation in my left ear, of fullness and pressure, like I am driving up in the mountains...Because it only happens on the left side, I suspect it could be related to my right side lesions.
My hearing has taken a hit on that side, and I have intermittent strange pains in my throat.
I read that hearing issues are not usually MS related, but who knows if that is credible.

[lindy87]

Had a bad cold this week and now ringing in my ears.  Could it be related?

[socrates2k1]

I have had it, since my accident back in July 2009.
Some days, it's quite louder than others, but what makes matters even worse, is I start to hear "other sounds" along with it (ex. a telephone ringing).

I just purchased a sound spa, that is a clock with 6 white noise sounds (rain, ocean, etc.), when it arrives, I will place it in my bedroom, maybe it will help me sleep at night.

From everything I have read about it, unfortunately, it's something that we just have to "learn to live with".

Please know, you are not alone.

Take care and may God bless, each of you.

-- Socrates2k1

[Eyesnlegs]

sorry guys - that will teach me to answer from my iPhone I've just realised I answered an old post too!!

Pat xx

[Eyesnlegs]

I have had the same for a while now on my rigbt side which is where all my sx are. I did not reply before as I had an ENT appt yesterday, not specifically about that, bit I thought I would mention it  and wanted to wait until I had been to answer you.

He insisted I had a hearing test which was normal but said he would be writing to my neurologist since MS is known to cause this type of issue. He will also refer me to the tinnitus clinic as he feels that may hep.

Not bad considering I had gone for my cogh problem.
Hope this helps.

Pat x

[cainer]

looks like its common-  me too  constantly, at first i couldnt take the sound, he put me on ???
caNT remember, but i got use to it.   it never goes away

[julysmom]

Not sure if you're going to read this but I have the same problem.  Had a hearing test done by ENT and it is perfect.  One thing that has helped a great deal for me: it could be air in your eustacian tube (probably did not spell that right).  So pop your ears, just hold your nose and blow for as long as possible.  The noise goes away for me and I hope it helps others.  Let me know how it goes.

[ord1226]

Tinnitus has effected me since 2000 and subsequently I found I had a pituitary tumor.  The Tinnitus got so bad that I could not sleep.  I did a lot of research and found out to take certain things out of my diet.
1.  No Alcohol
2.  No Cigarettes or be around Cigarette smoke
3.  No Chocolate
4.  No Coffee with Caffeine
5.  Avoid being around loud noises

Now Tinnitus is in the background.  It is constantly there, but it is part of my life and I can sleep and live my life.  I have a problem hearing around loud noises, being in a crowd, in the car listening to someone else.  Other than that I am fine.

[mj111169]

I have tinnitus.  I always have ringing or buzzing or humming in my ears.  Worse on the right.  I went to an ENT and they did all the tests and say the ringing and dizziness do not come from the inner ear.  

I am going to a new neuro on MOnday. I will bring this up, AGAIN!  

Maureen

[Deb61]

I have different types of tinnitus.  I do get the vascular tinnitus.  When I get it, I know my blood pressure is high.  I also get a high-pitched tinnuites which started in one ear and after a few years, it began in the other.  I have sensorineural hearing loss in both ears with mild to moderate hearing loss.  The audiologist recommends hearing aids for both ears, but I can't afford them.  

I've also had really weird sounds like a telephone ringing in one of my ears.  I would go to the telephone and pick it up, and discovered that it was all in my head!  

Another disconcerting symptom would be complete loss of hearing for a short period of time.  I only heard a low-sounding pitch ring in my ears, and saw people's mouths moving but no sound.

[Weatherbee]

Wow!  My story is exactly the same.  I didn't know there were so many others dealing with the same issues.  Tinnitus in right ear for years, the heart beat, whooshing in my left ear started about a month ago...just went to the VA...no real answers.  Nothing really new there.  Recently swollen nodes under my left ear.  It's been years of dealing with these health issues with no answers...I turned 28 yesterday...and my body feels old.  I feel like I'm at my wits end here!  At least I know I'm not alone.

[fdmh]

Usually I have tinnitus in both ears I think, at least daily, and the vascular tinnitus occasionally as well, but that seems to always be in my right ear.

[whoosher]

HI everyone, I am also a sufferer of pulsatile tinnitus.  Mine sounds like a whooshing heartbeat noise in m ear and it is constant.  It's important to have it checked out, but a lot of doctors are not as familiar with pulsatile tinnitus as they are with regular tinnitus.  There are differences, the most impt of which is that the cause of pulsatile tinnitus can often be identified and even fixed.  Do a Google search for "whooshers" for more information.  You're not alone!

[supermum_ms]

Hi and count me in too, not once have i thought of it being connected to MS, very interesting. For years i've had the occasional ringing, whooshing and intermittent hearing loss in my left ear, my MS symptoms start on the left before they also include the right. I'll be paying more attention to it to see if i can find a connection.

cheers.....JJ

[Suzie9]

I think they say around six % of people with MS have these kind of hearing related problems.

I had muffled hearing and the whooshing and ringing tinnitus the other week for a few days. Not sure if it was related to MS though.

[Sarahsmom46]

I've got it too, both ears.  This questions comes up from time-to-time on the forum and we have discussed the connection between MS and tinnitus.  It seems more than a coincidence that people with MS or pre-MS might have tinnitus.  

If anyone finds anythng that supports a connection between the MS and tinnitus, please sahre it with us.  

[cydney27]

I have also had the ringing in my ears for about the last 6 months.  It was driving me nuts, couldn't hear anyone talking to me, with  background noise, and still had trouble in silence, trying to discern what was being said.  

Went to my neuro, and described what was going on, he sent me to an ENT.  Had the complete going over including the test in the "booth" .  The result was that I have "great" hearing, and the ENT said that tinnitus can be caused by Baclofen, and or naproxen, or other nsaids.  

Unfortunately, I cannot reduce the amount of Baclofen that I am taking, so I have informed everyone I know that they will have to talk louder, and I guess I'll just turn the TV up...LOL

Cyd

[Ufrustrated2]

Sure, count me in this boat too. Some years back it started to get worse. i was in denial for years about my hearing. finally had had enough of saying "what?" to people and went and got tested.

VA tested me and gave me hearing aids. They couldn't find anything wrong though. They help but the ringing is there and some days you notice it more than others.  Then one ENT doctor I saw for my ear issues while viewing notes on the VA computer saw a note from my local neuro and he said, "you got MS, get out of here, that's your problem with the ringing and hearing, stick with the neuro, ENT can't help you, God Bless". he's a good guy and he wasn't being mean. That was the first time that i stated to put pieces of the puzzle together about a disease that could actually be the root of so many of my symptoms

I move my head more now in acknowledgment to people speaking to me because i just got too tired of asking what the heck they said.

The ringing at night when going to bed is the hardest. I have a few fans blaring away to help wiht that.

[Tammy826]

I get the ring & sometimes the whooshing in my L. ear & sometimes things sound muffled then it kinda pops ( like you have been at a high altitude). I drive everyone nuts by saying "huh" all the time. Mostly I have the ringing & read on another ms forum(facebook) where alot of people  with MS have complained about this.  I have had the DR. look also but never been give an explaination.

[elia1806]

Hi,
I'm writing on behalf of my dad who has been experiencing a very loud whooshing noise in his head for the last couple of years (he's in his 60's) as well as the 'bells' in his ears. After looking it up on the net, (thank heavens for the net), I discovered it has a name - pulsatile tinnitus. Dad says the whooshing sound gets so loud that he can't sleep and sometimes it's so bad he feels like smashing his head against the wall! At night, even though he's exhausted from lack of sleep, he has to sleep semi awake because if he sleeps too long on one side ie: longer than 20mins, he experiences a painful ,freezing cold sensation on the top of his head ,on the side on which he has been lying down. Due to a lack of sleep, he is extremely lightheaded and sometimes feels like he's going to fall over.I rang him to let him know what I had discovered about his condition and it was comforting for him to know that there were other people out there experiencing similar symptoms. I'd like to help him so if you have any suggestions that would be greatly appreciated. A recent CT scan revealed nothing, kind regards, Elia

[goofysmom1]

The majority of my symptoms have been on the left side of my body.  I do have some tingling that I get in both legs, but the majority of my symptoms have been on my left side.  The ringing & whooshing is in my left ear - that is the only reason that I am attributing it to whatever is wrong with me and not a separate issue.

Mine comes & goes too - and it is usually ringing or whooshing - not both at the same time.  

Something to add to my list for the new neurologist...

Hugs,
Chrisy

[Sailorsong]

I also have tinnitus in both ears with the right ear being the worse one. I do have hearing lose in both ears as well. The loudness in the right ear seems to be constant while the left ear varies quite a bit. When the left ear gets really loud I wish I could rip out the inner ear.

Dennis

[Lulu54]

I have tinnitus in my right ear that comes and goes.  My right side of my body seems to be the one that has the symptoms....   Fortunately it doesn't stick around and rarely gets loud.  

I'm interested what others have to say too!
Lulu