Treatment for DSD

[Cache916]

5 hours in the Urology Community
I have MS and urinary retention due to neurogenic bladder. My current diagnosis is "detrusor sphincter dyssene...
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[Lulu54]

Welcome to my world - the UTI problem from detrusor dysfunction is an ongoing problem for me.  Hesitancy, frequency, urgency, retention - the damn bladder couldn't just settle on one problem.  :-)

Intermittent self -catherization to empty the bladder completely may be a solution for you.  Yes, I know there is a huge ick factor to the thought, but it really does make a difference. i have also had bladder botox twice to handle the mixed messages and am so glad they have approved that use.  Both of these are game changers and i no longer fixate on where the nearest bathroom might be.

-Laura

[Cache916]

Thank you Kyle!  I appreciate your response. I will keep it in mind if Oxy ER doesn't work.

Thanks again.

[kwarendorf]

I'm not exactly how Flomax works, but I do notice that the urinary hesitancy i much less with it than without. Less hesitancy, more easy and complete voiding. Although nothings perfect :-)

Kyle

[Cache916]

Thanks for your response. How does Flomax help you? Are you able to fully empty your bladder now?

[kwarendorf]

I was under the impression that this bladder disfunction was the result of MS. The muscles that control the bladder get corrupted messages as a result of MS damaged nerves. I've seen 3 urologists and all have been unable to find anything structurlly wrong.

I am not at the self cathing point yet, but I have had 2 UTI's in the last year. THey were the result of old, unvoided urine sloshing around in my bladder. The only treatment I'm getting is .8mg Flomax erveryday. It seems to help.

KYLE

[Cache916]

Thanks Kyle. I have RR MS and recently diagnosed with Detrusor Sphincter Dysserie. My bladder does not fully empty. I cath several times per day/night.

My Urologist informed, like MS, this condition is not curable. The symptoms may or may not go away at some point. Are you aware of any treatments for this condition?

[kwarendorf]

Hi Cache - Welcome to the group.

It looks like the rest of your post didn't actually post :-) There are lots of us here with neurogenic bladder issues. Do you have a question?

Kyle