What the heck is this?

[mokibear]

Hey all,

I know I don't post much these days except to come on and ask questions but I was at a point where I just didn't know how to support anyone anymore as I'm so lost myself. But here I am asking another question.

I did do a post recently about some balance issues as I've been in a flare of whatever for a month now. My legs were wonky, both doing different things, left hand tremors, stuttering and slurred speech and then the balance thing which at least that part thank goodness only last a few days.

My speech was finally getting better with only a bit of residual slurring left and I was thinking finally I'm on the mend. Nope, apparently not. Something new now.

I've had hoarseness and squeaking of the voice off and on for years but what's happening now is bizarre even by my standards. I go to say something and the first word or part of it will come out okay and then it's gone to a whisper. The only way I can describe it is if you were listening to the radio and kept turning the volume up and down. It's this constant back and forth thing and driving me more batty then I already am.

My family doc is trying to get me into a new neuro which can take a while so I'm waiting to hear from them when the appointment is but meanwhile I have no idea what the heck is going on. Would this be neurological? Does anybody have a clue what's going on? If you have any insight, I'd appreciate it.

Bizarro Moki

[Guitar_grrrl]

Ooohh, good luck, Moki!  Big hugs to you...

[mokibear]

Thanks, that is sweet of you. I hope too that they get to the bottom of this and fast but in Canada, things tend to move pretty slowly. lol  It's been a month now since I've been able to speak normal and it's getting really old.  I probably won't shut up for a month once it's back though. lol

Hugs
Moki

[michelleric]

(((Moki))),
I am sorry things are not going well and your voice is nill.  I do hope they will get to the root of the problem and fast.
Michelle

[mokibear]

Hey Lulu, my voice is now a whisper with the odd normal sound coming out once every 8-10 sentences. So basically it's worse then it was. At least with just the whisper, it's easier to understand me when I speak. The other was really hard for anyone to understand me as the constant up and down of my voice was throwing them.

I called the doc's office and spoke to the nurse. They are working on getting me a new neuro and he has a couple that he's looking at and has sent on my info and is waiting to hear back to see what they think and who would be willing to take me on. The nurse does think this is some type of dyphonia as years ago when I was having a lot of voice issues, I had gone to a specialist who ended up doing surgery as I had a cyst on the vocal chord and he thought that was the problem.

Long story short, it wasn't the problem and he could find nothing else wrong so the nurse is figuring that there is no point going that route again until I see a neuro and get their take on it.

So I'm waiting once again. She had no idea how long it will take to get me in somewhere. I'll let you know when I find out.

Hugs
Moki

[Lulu54]

moki, Did you call?  Or are you doing better?  -Lu

[anon07072023]

Alex,

That's exactly what I was talking about in my post that my partner has.
It's called Spasmodic dysphonia or laryngeal dystonia.  
You can have dystonia in multiple areas on your body.

-Kelly