Neuro Appointment today.....nervous

[territorial]

Going to see my neurologist today. Last time I was there after my first bout with left sided numbness/tingling, he told me see you in a year when we will do a repeat MRI.   First MRI showed at least six lesions, but they did not "conform to a particular diagnosis".   Well symptoms did go away for about a month, but came back later and have now been with me for almost 3 months, and worse than before. Numbness has turned into a burning pain, facial numbness, a few bouts of extreme fatigue where I felt like I was drugged, a week of extreme chest tightness.  

So am I am heading there this afternoon to discuss my issues. I am really scared he is going to pat me on the head and send me on my way. Just looking for some support and a cyber hand to hold.

[COBOB]

That is an MS dose.  Typical MS Pulse dose is 500-1000 Mg a day for 3-5 days.

Bob

[territorial]

Good Morning...or I guess it is afternoon now.

The prednisone he has me on is an extremely high dose.  I am taking 25 tablets each day for 3 days and I want to say each pill is 25 mg...or was it 50?  I can't remember. I do know that after 6 hours, I feel like crap!  Not a huge fan of the Prednisone. Hopefully it settles things out.  But doesn't that sound like a huge dose?????

[Lulu54]

All in all, this sounds like a good appointment.  Remember that neurological time moves slowly, and in Canada I think it slows down even more.  :-)

The steroids are a good thing to try - they might give your body a break.  Here's hoping.

Bravo for a neurologist who recognizes that the LP won't seal the deal for you - it can be used as supporting evidence but it won't give you a diagnosis on its own.

I hope they can get you in sooner for the followup MRI.
Lulu

[territorial]

Thanks for the comments.  He feels this is definitely going down the MS trail.  I was scheduled for another MRI in the fall and he is going to try and have that done sooner than later. Canadian Health Care moves a little slower when it comes to MRI and other tests...it's free...but you wait.  

In the meantime he has started me on a steroid treatment starting tomorrow morning, though I am thinking after having this flare (at least that is what I am calling it) since January, the steroids are a little late, but he doesn't think so. He is the doc so I'll will follow his lead and go from there.  

I asked about a lumbar puncture and he said he really wants to wait until after the 2nd MRI and see if we even really need it.  He has also sent me for a lot of blood work to rule out lupus and other autoimmune issues.

I didn't get a definite answer, but at least I have a plan.  I am okay with that for now.

[anon07072023]

I hope your appt goes good. And they don't give you a shove off.
Your concerns seem valid, I hope they take it all into consideration. You definitely should get another MRI - not only on your brain, but perhaps on your c & t spine, too.

Good luck!
Kelly

[SueFern]

Good Luck!  I hope everything goes well and you get some answers.

I would try to push for another MRI sooner.  My neuro recommended me to get another MRI three months after my initial one.  Everyone's situation is different but a year seems like a long time.  Especially when you still aren't feeling well.

Let us know how it goes!

Sue