You might need something besides Baclofen since it is for muscle spasm and TN is nerve pain. Are you also on something like Gabenpentin?
Alex
Does anyone take baclofen for trigeminal neuralgia?
Hi Kerri,
You have good solid information here from everyone else. I just want to add that this diagnosis is still so new for you and it takes time to figure out how you and this MiSerable companion will coexist . And it often takes even longer to find the right combo of drugs and dosages to be effective.
Be sure to be in touch with all of your doctors and work through your treatment plan until you get the right lineup that works for you.
hugs, Lulu
Thanks everyone. So i think i get it. The burning and such is probably separate from the spasticity. A couple of people mentioned the neuron tin to me for cns issue. I was also very foggy today. I have cognitive issues up the a&@! I notice them when I am having conversation with someone.
Thanks everybody. Ill call the doc about the baclofinl. I mm seeing th psychiatrist next week qnd will discuss the cognitive stuff with him. I used to tke Concetta so maybe i will start qgqinl. My legs are so messed up. It's hard to believe that just a few months ago I was dancing and playing. No I cant even walk at q fast pace.
Half of the Baclofen is out of your blood after 6 hours. That is the published average half-life for bioavailability. Baclofen doesn't work for some people. For those folks, Zanaflex may work.
The other question to ask is: Is the pain caused by spasticity? There are other forms of dysesthesia that can mimic spasticity. Paresthesias are any abnormal sensation. Dysesthesias are painful sensations (intense itching, burning, and/or "small fiber" sensations.) They are not really small fiber issues, but the CNS (brain/spinal cord) fails to interpret the sensory information correctly and reads the data as painful burning. This issue can be treated with GABA drugs like Gabapentin and Lyrica.
By the way, they incorrect sensory signals can cause concurrent spasticity with the pain, and you may require anti-spasmodics and GABA drugs together to treat this. You may require the skills of a pain management specialist to sort things out. Many neurologists take a shotgun approach to pain issues.
Bob
Baclofen helps with pain and is an antispastic agent. Baclofen can sometimes have a side effect of causing some weakness (your risk of this side effect goes up the higher the dosage & how sensitive you are to the med). Your deep leg pain in the PM could be caused from spasticity, so Baclofen could help. I already have weakness in the leg due to spasticity so the Baclofen helps with this. I do notice that in the evening my legs ache something awful, but they're usually spastic as well.
Zanaflex doesn't cause any weakness and does help with the spasticity pain, but it does have a sedative effect.
I would see about either of these meds, weighing their pros and cons.
Now, I'm wondering if you mean spasms, or twitches. Spasms are charlie horses, and twitches are spontaneous little movements of the muscles. They feel like you've got a tic, but it's big and in a large muscle, not in your face.
Is Baclofen for spasm and leg pain? I take Gabapentin for pains, but it doesn't help the Deep Leg pain I usually get in the PM or evening..
not sure if I should ask about Baclofen? Does it make your leg weaker?
wobbly?
By last 4 hours in your system...I'm only meaning that you start to feel the muscle tightness and spasticity to come back...not that the Baclofen is entirely out of your system. ☺
Hi Kerri,
I've been using Baclofen since 2007. I think you might have 2 issues going on here, and 1 of your issues Baclofen will not help.
First the "burning legs and numb feet", this is Paresthesias. Here is a Health Page about it.
http://www.medhelp.org/health_pages/Multiple-Sclerosis/Paresthesias---Things-That-Go-BUZZ-in-the-Night/show/378?cid=36
I have the same issue and I'm currently taking Neurontin (Gabapentin) for this problem. It helps with the pain and all those weird sensations. Others have had good results from Cymbalta.
As far as the increase in spasms/spasticity activity, *and do run this by your doctor first*, my doctor suggested upping the dosage to get me by. I have been told by several neuros that I'm on a conservative dosage of Baclofen, which for the most part works on most days, but on other days, whether I did too much or my symptoms are just active in an episode..The current dosage doesn't work.
I've also spread my dosage out during the day (3X daily ..20mg before bed). One pill throughout the day might not be enough to get you through it. I've also noticed that Baclofen seems to only last 4 hours in your system. The neuros that I have been to agreed that this was about right.
Speak with your neuro about this, and see what they suggest. I would complain about the burning legs too. I imagine they would let you up your dosage throughout the day to help.
Take Care