Drs LIE AND FOLLOW YOUR GUT

[ErinZoe23]

Do you have a feeling in your gut ever since you where diagnosed that it wasnt right? Well i did...and i asked and fought and continued that for 2 years with drs saying straight to my face noone in pgh gets lyme when in fact i knew manyy people and my own dog got it that month, and no one could expain all my beg. symptoms and just threw them away like nthing, i wasted almost 6 years of my life from 22 yrs old and will be 28 in june form these doctors. I am getting a second opinion from a dr not afraid of lyme and the whole fda and cdc mess up and conspiracy. I FOUND A PAPER FROM GETTIN A DUI BC I HAD A BREAKDOWN FROM BEING BED RIDDIN AND ALL THESE WEIRD THINGS THAT NOT ONE MS PERSON COULD EXPLAIN OR RELATE.....

I DID THE FINAL STEP TO CLARIFY IN MY OWN EYES, AND STOPPED ALL MD MEDS   AND WHAT HAPPENED????          I CAN WALK AGAIN! I CAN TALK NORMAL! I COULD EVEN POSSIBLY WORK AGAIN! I DONT TWITCH NOMORE I DONT SHAKE.....HOWEVER I HAVE THE FEW SYMPTOMS THAT SEPERATE LYME AGAINT MS AND THEY ARE THE ONLY SYMPTOMS I GET AS IN MASSIVE JOINT PAIN.

With dui of being sick non stop never going into remission and my dad going into 3rd stage dementia and me yelling for help and noone lisented i almost perished in my car. But i belive i t was GOD and this heped me sooo mcuh bc the e.r  ( the same place my MS speaciaist and neuro work) printed out a paper saying MS ad a past history or LYME DISEAES???   IM SORRY BUT WHAT? WHAT DID THEY JUST PRINT??? SO MY DOCTORS ALL THESE YEARS HID FROM ME THAT I HAVE LYME? AND NEVER TREATED ME? When i told them to test me and i got me own test from Igenex and everything and still was told NO< NOONE IN OGH GETS LYME! even with all those symptoms they ignored? who the F are they to hide this from me? to do this to me? to feed me injections and infusions knowing it makes LYME a million times worse..knowing im so sick everytime.more then the usual MS patient and never go into remission but still i get call RRMS but never remitted from day one?

The did print that paper.. i beieve to cover their own ***** when i do finally find out b.c i was fightin my heart out the first 2 years with n help from noone...emotional disabled mentaly and physcialy.. alreay using a cane 24/7 and going into a wheel chair that they put this diagnoses on paper and in my file and hid it from me... WHY? WHY WHY? WHY?   so they can make money from MS meds? please tell me why i dr would hide a file that i would of never seen unless i got a dui in july? why? thats all i want to know..i go to see my neuro who wrks for my ms secialist the 23rd ..and i dont even know to bring this up. I know if i do they will start hiding stuff and so on. I knew deep down this was all wrong i knew it in my heart. It took so much life from me and why would i dr put that i have a history of yme disease when he stated straight to myyy face im negative and noone in pgh get lyme. I read sooo much about it and over 250,000 in pgh/pa are misdiagnosed wih MS from Lyme

So follow your hearts. I will sue. and i know he put that so i couldnt sue. but i looked it up and out of the 10 questions you can sue for misdaignosis, my doctor fitted all 10. And now  hiding files from me more and likely to cover his *** when i find out i do have lyme...calling me an idiot and stupid to even think? putting me down bc i thought so making me stop fighting and mental brainwashing me. I have ha d 4 months of no symptoms since i stopped all my MS meds and its unbelievable the change like totally a 180.  So i havent been on here in a long time because i felt and was disrespected by many of you. thinking im nuts and stupid. Thing the ruler os this site know it all and reading what yyou ntell people and judge people. I was mentaly and emotional messed up from my disease pus with drugs being pumped into me making it 100 times worth.

Should i tell my neuro what i founs? shes new, im on welfare, im going to be under a bridge bc of these people and having W from college 3 times, i dont even know wh i tried... but damn when m pcp said when was the last time you felt normal like when u where 22 i just startes to cry and i said 3 days.  I COULD COUNT THE NUMBER OF DAYYS ON MY HAND IN THESE MANY YEARS? but now 3 ddaays and 4 months.

ALL IM SAYING HERE IS FOR YOU ALL WHO ARE WONDERING IF OU GOT MS OR LYME OR W.E. ..OU DO YOUR OWN RESEARCH AND DO IT WELL. WRITE IT DOWN FROM SYMPTOM ONE YOUR VERY FIRST AND DONT STOP FIGHTING, PLEASE DONT STOP. IM GETTING A SECOND OPINION AND HOPFULL BY THE END OF SUMMER IL GET THE APT. MY BASKETBALL COACH AMOST DIED FROM LYME AND THIS GUY SAVED HIM. HE HAS A YOUTUBE VIDEO AND THE WAITING LIST IS ABOUT 8 MONTHS MY OLD COACH TOD ME BUT HES PUTTING A WORD IN FOR ME.

[ErinZoe23]

Thank you guys, very sweet of you both. and i do apologize for what i said. it was mainly inboxes and some comments bc they wanted nothing to do witha  girl diagnosed with MS and knowing it was lyme and they where the ones who would comment and inbox me... i was an emotioanl menal wreck from the drugs and yes i said some cry hings but true..in my journls.. how i felt and noone could understnad. i just felt abandoned in a way. but i do not meanthat to you guys at alland a lot. so i am sorry for that. If i was trully hat amd i would nt be trying to find the money to found and MS website different from them all with great ideas and new things to help i ee to get paptent. depending on how fundraiser goes and no ide how to od that. i hope u all love that site hwen it is completely, for ill ppl with MS and lyme and other and any... great ideas to help us be more confotable. thank you guys and love always. i will keep u poted bc if i was misdiangised its on. he failed all 10 questions. i dont even think im mention it to my neuro. i might just say what would u think if u found a paper stating u have aback history of lyme bu was never treated for it? whats kind of dr would that and record it. i belive ur allowed to ur say htis will be recorded. idk. i just need this guy.. hes ssoo good. saved sooo manya nd hes a rheumo and lupus dr. i cant wait to see him.!

[Lulu54]

Wow, ERin.  that is quite some story and I am glad you have finally stumbled on the answer - so sorry it took a DUI to find it though.

like you, I would be beyond anger and be looking for someone to pay for putting the wrong name on somehting that you questioned over and over.  I always wonder how do those 'mistakes' happen - does the doctor just get lazy and stop trying once they have a simple name?

You're right about treating MS and aggravating the lyme, from what I understand, but don't quote me on that.

I'm saddened to think you felt you were mocked and abused while coming here to this forum - I hope perhaps you confused us with another group online because all I see is support for you over the years. And all of us over and over will tell someone who feels that something else is wrong, to not give up, listen to their instinct and keep looking for those answers.  

I'm glad you are feeling better and I hope you find the good to come out of this, like the website support you want to give to others.  This is a crappy way to learn this lesson in life - Laura

[supermum_ms]

Hey there Erin,

I really really wanted to say, hey babe it's so great to hear from you after such a long time away and then I read your posts..........I don't know very much about Lyme and honestly I don't understand and cant answer any of your questions but i still wanted you to know, that I heard you and can almost feel how upset you are!!

I was quite shocked and confused about your specific comment regarding your experience with our community, "So i havent been on here in a long time because i felt and was disrespected by many of you. thinking im nuts and stupid. Thing the ruler os this site know it all and reading what yyou ntell people and judge people."  So i went back through your posting history, just trying to find out how this could of happened to you and apologise but all I see are the communities supportive responses and your seemingly happy reactions.

I still feel it necessary to apologise to you for how you feel you were treated, i am very very sorry you feel we let you down and I hope we can still help and support you through your journey!

HUGS...........JJ

[ErinZoe23]

DO I BELIVE I HAVE THE RIGHT TO SUE? HELL YEAH I DO. YOU WANT TO KNOW THE ?'S TO KNOW IF U CAN SUE I CAN FIND THEM AGAIN FOR YOU...THESE PEOPLE TOOK MY LIFE AWAY AND MADE ME FEE CRAZY FOR YEARS TOOK MY OUTH AWAY TOOK MY PASSIONS AND DRIVE AWAY TOOK IT ALL AWAY. I NEVER COULD ACCEPT BC I KNEW DEEP DOWN THIS AINT HOW MS WORKS AND HIS AINT RIGHT AND I SHOULD OF NEVER STOPPED FIGHTING..SO DONT EVER STOP HEN YOU KNOW. PEASE DONT

IVE LEARNED SO MUCH ABOUT LYME AND MS IN ALMOSY 7 YEARS ITS INSANE. AND 4 MONTHS AND 3 DAYS I FELT NORMAL. MY PCP COULDNT TELL ME WHAT TO DO ACCEPT FOLLOW WHAT YOU FEEL. I COULD GO IN A MASSIVE RELAPSE IN A WEEK OR MONTH IF I STOP, BUT I DIDNT, BUT I STILL COULD AND I DONT CARE IF I DO I GOT 4 MONTHS SO FAR OF NO NOTHING ANTHING BESIDES LYME SMPTOMS AND BARELY ANY OF THOSE BESIDE THE JOINTS AND A FEW OTHERS.. BUT FUNNT THOSE ARE THE ONLY ONES THAT STAYED..THE ONES NOT RELATED TO MS STAYED..ISNT THAT IRONIC?

IM GOING TO BE STARTING A WEBSITE HOPEFULLY BY THE END OF THE YEAR AND IF I CAN FUNDRAISE THE MONEY. CLOTHES, ANIMAL STUFF, PORTAITS , ARE JUST AFEW TABS ON IT. BUT WIL BE PATENING A FEW CLOTHING IDEAS I HAVE THAT WILL HELP PPL WITH LYME OR MS .  ONCE EVERYTHING SETTLES DOWN ILL BE ON THAT AND CANT WAIT TO GET IT GOING AND HELPING OTHERS AND THE PROCEEDS GOING TO HELP PEOPLE WITH BUYING EQUIPMMENT OR A VACATION OR ANYTHING THEY NEED. I TRURL CANT WANT WAIT AND I KNOW IT WILL BE A SUCCESS. I DONT KNOW HOW TO HAVE A FUNDRIASER BUT I WILL.  RIGHT NOW IM SPENING AS MUCH AS TIME WITH MY DAD AS I CAN FOR HE GOT DEMENTIA LIKE A SAID AND WITHINA YEAR WENT FROM 2ND STAGE TO 3RD STAGE AND ITS GOING FAST AND I WANT TO STAY BY HIM.... LONG POST BUT I HAD TO SAY SOMETHING AND THATS IT. NOW I HAVE ANOTHER PROLEM FROM AL THOSE MEDS THAT MAYBE THIS SITE WILL COME IN HANDY. THANK YOU ALL AND GOD BLESS. IF YOU NEED ME AT ALL OR SOMEONE TO TALK TO I AM HERE AND I DO OT JUDGE IF U JUST NEED T YELL OR SCREAM OR CRY TO SOMEONE AND BE HAPPY AND JOYFUL OR ANYTHING . JUST TO GET IT OUT BC DONT HOD IT IN, I WONT EVENT EMAIL BACK IF U DONT WANT ME TO. JUT A RELEASE U MIGHT NEED,  PUT SPACES AND SUCH SO MAYBE IT WILL WORK BC THE NEXT TIME ILL BE ON HERE IS IF IM SUEING THE DR AND WILL LET U NO WHAT THEY DID AND HOW THEY WEN ABOUT COVERING IT INCASE U MIGHT NEED TO DIG UP SOME FILES AND TRUST ME I ASKED FOR ALL MY RECORDS AND NOT INDICATED THAT MY MS DR SAID I HAVE BACK HISTORY OF LYME.... MY *** MYY "BACK" HISTORY WAS THE DAY U SAUD MS...  MS DONT JUST BAST U , IT PROGRESEES ANDU CAN TEL NOT JUST WAKE UP ONE DAY HALD DEAD... OKA GOODBYE EVERYONE AND GOD BLESS AND FIGHT FOR YOURSELF.... JUST BC WE AINT RICH WE DONT GET CURES ...FUNNY IF YOU REALLY LOOK AT THE FAMOUS PEOPLE AND BILIONARE AND MILIONARES AND SEE HOW MNAY ARE SICK? FUNNY HOW ABOUT NONE IS? FUNNY HOW THAT B BALL PLAYER GOT AIDS THEN THE NEXT FEW MONTHS NOLONGER HAD AIDS NOMORE? FUNNY HOW A GUY WAS ASSISNED FOR TRYING TO THE PRESS SAYING HE FOUND THE CUE FOR AIDS YEARS AGO. ALL JUST MESSED UP. MONEY MAKING SCHEME AND POPULATION CONTROL.... THINK IM NUTS W.E. BUT WHEN THAT MAY YRS OF M LIFE WAS STOEN AND U FIND OUT YOU WERE LIED TO AND THEY KNEW ABOUT IT AND COULD DARE DO THIS HOW WOULD U FEEL?  HERE YOU GO IF U NEED TO JUST TALK ( IF YOU GET IT LOL) LOVE ALWAYS  ERINZOE ( MY FAVE NUMBER IS 13)          @       ^$#%&*$#^(  GMAIL