good bye for now, all

[heljell]

Im done.

I can no longer go from doctor to doctor anymore.

Im getting no where.

The last neuro I saw basiclly stated most health care professionals have " high energy gene", including him self, and we just have to learn to deal with it.

For 1 im not suffering from too much energy. He gives me this paper about "high energy gene" and it talks about bipolar, manic depressive, dysthimic and what not and how medication is not found to be effective on this.

So he is telling me he is bipolar, unmadicated and I am too.

Well I was a mental health professional and I was 1st hand bipolar unmedicated and medicated and I will say medcation is effective.

I dont care if Im bipolar, but what will help with my fatigue weakness, fine motor tremors, and all the other weird crap.

Im not getting help and I cant continue to focus on whats wrong. Im just going to ignore it and keep moving and living.

I have no other choice.

All of you have been so helpful
THANK YOU

P.S. I may return when I get over all this =)

[Starryeyes2]

I'm so sorry this Dr blew it all off. Please pop back on here once in a while to let us know how you're doing.

Hugs
Kristi

[jensequitur]

Mirror, mirror... I once had a neurologist tell me that his feet hurt too, after I told him about my feet hurting so bad.  Well, he dropped a piece of drywall on his foot.  I hadn't done ANYTHING to make my feet hurt.

Sounds like it's time for a break.  Rest and gather your resources for another attempt later.  Come back when you're ready!

[Lulu54]

take a health break from this is often necessary.  When and if you feel you need more guidance, you know where to find us.

be well,
Lulu

[HVAC]

Everyone has a right to a vacation. I got labeled with a bunch of psychological disorders and no one bothered to investigate until my PCP finally realized I had something Neurologically wrong. I never was nuts. I just was coping with MS. It made me depressed dealing with Neurological symptoms. I still dislike specialists especially ones who jump to quick judgements.

Alex

[RedFlame]

many of us here have been through hell and back before diagnosed with MS or other disease.
Taking a break is OK, you really need it right now.  Take care of yourself and let go of all this stuff.  And yeah, come back whenever you are ready

Take care,   Red

[Sumanadevii]

I searched ten years going to specialists and more specialists.  None found a thing wrong with me except a little arthritis.  Included in this mess was my own family doctor of twenty years and the internist I ran to for help after he told me it was my age and I was doing too much.  It was then I began going to specialists...too many to name...that found nothing.  

We finally went to a neuro who ran tests.  His dx was a pinched nerve.  I remember not believing him and asking if it could prevent me from walking.  I was in a wheelchair for any distance walking by this time.  He answered yes and some how made my husband and me believe it.  I left the office angry at myself.  How could I allow a pinched nerve in my neck to put me in a wheelchair?

On the way home we stopped to grocery shop.  I had decided I would walk past the pain.  I wouldn't let my husband drop me off and find a mobile cart.  I walked from the car.  Before even getting into the store my pain level was a ten.  I continued.  I grabbed a cart.  I went through produce and down the aisle to the next.  Half way down my legs began to give out.  I cried for my husband to run for a mobile cart.  I held onto the shopping cart my knuckles turning white before he returned.  I sat down and just cried.

My husband gently talked to me (as always) explaining that we may never know what was wrong with me but we would do the best we could.  Forget doctors.  Forget the dx.  We will just do what we must do.  I calmed enough to finish that trip.  However, I continued to be filled with tears that night.

It would be nearly four years later when my dominate hand gave out.  I finally got angry/mad enough to do something.  I called a second neuro and made an appointment.  There is where the dx was finally made...the very next day!!!

However, giving up wasn't the answer.  A lot of damage has been done to my body.  Today I wish I had only taken a month to recover and gone back into battle.

It is my wish for you.

Sumana

[Auspiciousme]

I dont' know if this would help ...but this lady has helped me before..and a friend of mine as well....just ck it out....www.*********.com  
I don't go to her anymore...I live too far now but I do some of the stuff she told me to do...and I do feel better....I hope it helps....best of luck to you.  If you need more info, send me a message.  Do not give up on you....you are all you've got...!

[heljell]

Can you give me the web address it was blanked out on your post

Thanks
Pam

[nikki861]

that is pretty much what happened to me........gave up on all of it. Doctors were telling me it was physcological and I needed to see a therapist. REALLY!! I could not walk without assitstance and its due to a mental state? Come to find out my husband, (now ex-husband), was telling them I was depressed. Well, no s@#$!!!! Im depressed because I dont know what is wrong with me and no one is helping!! Finally, my husband didnt want to be married to me anymore. He was miserable......well, I'm so sorry. So, I packed up and left. I should have made him leave, but thats another story.
I left, moved an hour and a half away, went to school, and just dealt with it the best I could. And to be honest as I got stronger mentally, seemed that I got stronger physically. Not to say I didnt have problems, just maybe I was mentally better able to deal with it.

So, here I am today, had horrible vertigo 5 wks ago and lost vision in left eye for the 3rd time over the years........suddenly I'm sent for MRI. It came back with large lesion on left lobe of brain with Dawson Fingers. Common in MS. or something to that effect. Wow, the ball started rolling.......so, I will know my outcome on Friday..

I pray you will gather your strength and come out fighting!!!

Beth

[kerrtelli]

I know exactly how you feel!

I too have had enough.  I had decided to just stop looking for answers and to just deal with this.

I think if you take a couple of weeks or so, you will get your thoughts together.  It took me a while to realize that although I don't want to constantly think about not feeling well, I don't want to progress to the point where there is no turning back.

I am taking it slowly but not giving up.

I am just not in the rush I was in when this all started because i know that it is going to take time no matter now fast I want everything to move.

And...the bottom line is if it is in fact ms, there will not be a lot I can do a bout it anyway.

So, I go through my days realizing that it is most definitely ms, and that I will get the diagnosis when it comes.

I wish you luck and hope that things work out for you either way.

Kerri

[Sumanadevii]

"And...the bottom line is if it is in fact ms, there will not be a lot I can do a bout it anyway."

I am going to strongly disagree with you  If you have MS you need to be on a DMD which will slow the progression of the disease.

I didn't know what MS was but had I, the battle for an answer would have continued.  Too much damage can be done to your body if left untreated.

[kerrtelli]

I know, I know.

I think I say that all the time to make myself feel better about not being diagnosed.

I am still seeking out a doc who will agree with me.  LOL!

I am actually looking into a 3T MRI in ct.
Maybe it I'll see a spinal lesion that the oer MRI missed.

What do you think?

Kerri

[Sumanadevii]

I think there is a possibility of having the shock of your life....that is what I think,

I sat with a neuro for three and one half years.  He ordered a 1.5t of both my spine and brain first appointment.  I was already in a wheelchair for any distance walking.  I could hardly make my way with a walker to his every three month exams which took place with him behind a desk and then writing prescriptions for the pinched nerve in my neck that he dxed.

I had been to so many other specialists before him that I just gave up (he was the first neuro I had visited).  So I asked him was he POSITIVE that this pinched nerve would prevent me from walking.  Somehow he was able to convince both my husband and me that it could.  It never made sense to me, my husband, my sons, my extended family or friends.  

I finally had another huge flare.  It took the use of my right hand.  He told me I needed more vitamin D and that was all any other neuro would tell me.  I finally got mad...really mad...Whatever I had took my legs but wasn't going to take my arms.

I sat waiting a little over three months to see a new neuro.  At the first appointment she examined me.  She knew it was serious.  By morning I had a 3t of both my spine and brain.  My spine and brain stem had lesions.  By the afternoon we knew it was MS.  I began treatment the next morning.

So what do I think?  There is a damn good chance something was missed and getting one done may just enable you to begin treatment.  

Just my take....What ya think now?