Haha Sumana... I'm a paramedic and I think doctors get annoyed with me cause I talk to them in medical jargon. I think thats why I tend to google more about symptoms. It's very frustrating when no one believes you. =/ Thanks to this discussion group I've got a date with a neurologist who specializes in MS. So we'll see how it goes =)
Dr. Google dxed me. After searching ten years, one night I sat and wrote every symptom I had into google and up MS and ALS popped. I left the neuro I had been seeing making an appointment with an MS specialist that practiced at a major hospital. A day after my first appointment with her I was dxed.
That Dr. Google is a smart woman.
you are definitely in the right place - we are happy to kick around ideas and answer questions. Family history of aneurysms? Me too and I have a small one of my own. Good for your doctors to take a closer look. Come back and tell us what else is going on. -L
Thanks Kyle. I have an MRI scheduled for the 18th of this month. I have a history of brain aneurysms in my family so they are making me do it lol. But hopefully one will be enough and my neurologist can check it out. I've had numerous blood tests for things already with no luck. No Lyme, no myastenia gravis, and most of my blood work always comes back good, which stumps everyone.
I'm excited because I got a membership to the Y today so I can do water aerobics =) Feels great working out in the pool. Hopefully I will be back to running and normalcy.
Thank you guys for listening I really appreciate it!
Ashley
there is a limbo page if u click on forums go down to bottom hun xx
Hi Ashley,
Sorry you needed to find us :-) Much of what you describe, in terms of the symptoms and timeline, sounds familiar. I had a bunch of niggling little problems that I never connected and on their own didn't seem to merit extensive investigation.
I did have a couple of 'major incidents, one 21 years ago and the other 3, that while investigated did not yield answers. Last summer the bottom dropped out (exhaustion for no reason, muscle weakness, double vision, inability to walk in a straight line). It was, and is, MS; all of it including the niggling little things :-)
You are at the start of what can be a long journey. Write everything down; symptoms, duration, conditions when the appeared. Get copies of all of your test results including blood work and radiology reports. It is very helpful to have your history and results together. This way you can provide copies to all of the docs you may see.
The MS diagnosis includes blood tests to rule out all of the many MS mimics like Lyme disease. It will also include MRI's of you brain and c-spine. These MRI's should be done both with and without contrast. You may need a lumbar puncture (spinal tap). These are not necessarily as scary as they sound. Mine was pretty uneventful.
As others have said, MS is a slow moving disease so there is no need to rush breathlessly :-)
Good luck on your journey. Keep us posted.
Kyle
Thanks Tammy and Bubbles. :-)
hey iam also in limbo, so here if u wish to chat its so hard being here. ive spent hours and days researching and drove myself mad! we really have to just wait for a dx and i know its hard. there are so many things it could be sjogrens, lupus, fibromyalgia on and on lol.
wish u all the best and hope u get a result soon :)
ky xxxx
It certainly won't hurt to have a neurologist assess you. You should probably type up a history if you can remember approximate month/year and duration for your symptoms. He or she may recommend an MRI to rule out possible lesions. Then other tests from there. Just be prepared, because MS is a slow disease, and the dx can be very slow too. Don't give up though. Eventually whatever is wrong will be figured out. But before they can diagnose ms, they have to rule out all the mimics first.
Welcome, please feel free to stick around.
Tammy
Thank you :-) I'm not getting my hopes up or down but trying to get results.
hi
looking on the internet at symptoms is a bad thing, you will always come up with aids, cancer, m.s and all the other diesease's that scare us senseless,
your symptons sound the same as my daughters who has seen a few doctors but a month ago she saw a neurologist who diagnosed her with fibromyalgia, which as i said displayed all the things you metioned, so please dont freak yourself out just wait to see your specialist and let them do the working out. its not always the worse things
best wishes
deb
Welcome Ashley! There are lots of us here who are diagnosed and lots of people who are still in limbo. I think you are on the right track scheduling an appointment with the neurologist. There are lots of diseases that mimic MS, but he/she will be able to help you decide what tests need to be done. The symptoms you describe are very similar to many of mine. I was diagnosed in November 2011 after having symptoms for over 6 years. In October I finally had a relapse that didn't leave much room for doubt. Although many of the symptoms got better, there are also those that haven't completely gone away.
There are health pages on the right side of the screen that offer lots of information and people here are always willing to help when they can.
Getting into a neurologist is never a quick appointment. If it is MS though, it moves very slowly so be patient and take good care of yourself with nutrition, rest, and exercise that you are able to do without causing yourself further issues.
Chris