Still in the "Slammer"! - An Update

[Sarahsmom46]

Hi Everyone,

Last week I posted that I was in the hospital for what started out as a possible flare and bad reaction to the drug I was given during a cardiac stress test.  Thank you all for you support during that difficult time.  I am sorry to say I am stil lin the hospital, albeit  the rehab side of the house right now.  I came to rehab a few days after my heart catheterization, which fortunately only showed a small blockage. Since that test I have developed a blood clot in my arm. Fortunately it was in an artery and not the vein so it should resolve more quickly.  I am on a blood thinner right now to help resolve the clot and and getting good rehab to get back on my feet and correct some serious balance issues.  I think we can all be a little concerned about being on a blood thinner and being a high fall risk.  

I just wantedd to update you guys and was wondering about a few things. Has anyone else here been diagnosed with a heart issue that is not the classic Coronary Artery Disease for example, you have chest pain and told they are heart spasms? The cardiologist thinks the spasms are related to the MS and not necessarily cardiac per se.  I spoke with my GI doctor and he said he hghly doubts that it is coming from my esophogus as this type of chest pain is almost always connected to swallowing or during meals.  

Also, and I've asked this before, who else in our group has gastroparesis without a known origin, idiopathic?  I am struggling with this greatly right now.  Thanks and I hope you are all staying cool.  It is brutul out there I hear.

My best,

Julie

[Sarahsmom46]

Thanks for yd as our feedback, it ist always helpful when we senhare our stories whether we have MS or not.

JJ - I had a gastric empltying study and  my results were moderate gastroparesis. I get severe flare ups t has been q.uite aof pain well after I eat and am now on liquids pretty much as solids make me nauseous and I throw up.  It has been quite a battle getting it under control this time. We initially thought this would be temporary, but it has been around this long so my GI thinks it will be permant at this point.

Dennis, Jes and Wobbly - The pain I get in my chest happens when I am walking upstairs or for some reason have to pick up the pace like when I am walking across the street and the light is about to change.  I will get a sudden pain like someone has hit me in the chest and it knocks the wind out of me. I literally feel out of breat and then get nausea.  It only lasts for a few minutes but boy is it scary.  I used to get it only once or twice a month but decided to tell my PCP about it when it started happening 2-3 times a week.  The cardiac cath showed my heard was having spasms, but they don't know what is causing it.  So, like Lulu, I am having these spasms for unknown reasons. Once of the cardiologists thinks its MS related and ust left it at that. They did start me on a high blood pressure med and an angina med as needed.  I never get these spasms when I eat or only mild pain when I am resting and that only happenes once in awhile.  

Thanks again for your feedback guys. You are the best.  Really!!!

Julie

[HVAC]

Thinking of you. I had a good day today.

Alex

[supermum_ms]

Your another one i seem to have missed, sorry about that and everything you've been going through, sound like he!! on wheels :o(

I can't really help, the only chest pain i have are the intercostal muscle spasms (hug) nothing heart related. I was thinking of what happened to Dennis when i read your post, sounded too similar. Do you think its possible that its the MS Hug, intercostal muscles spasming, mabye?

I was wondering how you or they could come up with "gastroparesis" though because your sx doesn't seem to fit? My daughter had her appendix out, apparently that was unnecessary because it was perfectly fine. Her pain etc was put down to idopathic gastroparesis, and she has had and still does have many gastric and other sx's so that actually fits for her. see http://digestive.niddk.nih.gov/ddiseases/pubs/gastroparesis/

Hope they get it all sorted soon!!

HUGS............JJ

oh golly, i just realised the women in my family seem to have a lot of different idiopathic dx between us, how cool you've prompted all these dots to pop into my head, hope they end up connecting, could make all the difference for DD :o)

[Wobbly]

I am at the present time waiting for tests as I'm having the same type of problems.   Fast Heartrate, low blood pressure, it changes quite abit.  my heartrate gets faster when I'm in bed trying to sleep or while I'm sleeping.

they are giving me a Holter for 48 hrs.  to track my heart.  I get pains it feels like heartburn, but I'm on Pariet for GERDS, so they don't think it' heartburn.

if it gets bad again, I'm to go to ER.  I've had alot of blood tests this week and a ECG.  Waiting for all the results on these.

Not sure what is going on...the GP said no caffine, alcohol, stimulants.
I haven't had a bad time this week, but will go for more tests to see what happens.

take care of yourself
wobbly

[Lulu54]

you already know my answer - my MI was due to vasospasms of unknown origin.  No further explanation available other than I am a mystery case.

keep working that rehab and getting stronger - being on your back all that time really drains the energy.
hugs, Lu

[Sailorsong]

I think I'm the only one here with something near what you are talking about concerning the heart. A few months back I ended up in the ER with all of my usual heart attack symptoms (I've had 2 in the past). But all tests indicated no problem with my heart. The ER doctor and all of my doctors decided the symptoms were from MS Hug. I didn't really believe this since I could not figure out why my left arm would be numb and tingly from MS Hug.

But since this heat wave started about a week ago I have been having those same symptoms every day which resolve once I get cooled down. And now when I think back to that trip to the ER I remember that I was cold while there with the same resolving of the symptom after a while. So while I still don't understand the left arm bit I do now agree with my doctors that it is cause by my MS.

Dennis

[jensequitur]

Hey, I seem to remember that Lulu's doc told her she was having cardiac spasms.  Drop her a line and see what she says.

I get esophagus spasms that seem to center right behind my sternum - very painful!