B6 Toxicity

[chimey]

This is more of a comment than a question, but I would welcome info from anyone who has any experience with this situation. I took a prescription called Folcaps (which had 25 mgs of pyridoxine in it) for a year. In February of 06 I began experiencing symptoms which have now been diagnosed as Pyridoxine (b6) Toxicity Induced Neuropathy. I did not get this diagnosis until August 15, after four MRIs, several specialists and balance testing. My b6 blood level was 81 - the maximum safe level in this test was 32. When reading about b6 toxicity one reads about tingling hands and feet and being "wobbly on your feet" and things of that nature. It can be much more than that. Be careful with Vitamin b6. It's not known if the neurological damage is reversible. Some studies show it is, some show it is not. The damage I have suffered extends to my thyroid, my blood pressure has been lowered (to an unsafe level - it was healthy before), my balance has been damaged - I don't know where my right foot is in space, I've had insomnia, my symptoms are too lengthy to list here. The fatigue that I have been experiencing for the past several months has started to lift now that I've stopped taking the medication, but it is still profound...another hallmark symptom of b6 poisoning. This is a serious toxic situation and one that is not understood by the medical community. I am waiting to find out how much of my life I will get back. I am rebuilding my stamina & neuropathways with an optimistic outlook. And getting the word out. MD's don't know about vitamins. Work with nutritionists. Don't go it solo

[conzo87]

Hey everyone i was on this forum had set new profile up.  Im over 2 years healing still have lot fatuige issues lot tingling pain is gone no more burning.My fatuige is worse after exersise im trying to eat healthy diet high b6 foods dont cause me anymore pain.      

[gsualum]

Please provide links or information as to diets for B6 toxicity. I'm currently greater than 100. I'm not sure how to drop B6 outside of diet and water. Any guidance would be helpful.

[Droolybear]

I too am searching for information on how to drop my current toxic levels of B6 which have been attributed to the extreme dizziness and nausea/lack of appetite that I have.Sometimes the symptoms are severe and other times they are minimal, but wither way they preclude me from having a normal life.
Please advise. Thank you whoever is out there reading this and has the compassion and experience to offer suggestions.

[fussyfussy]

Hi,

yes it gets MUCH worse before it gets better.

[Katya73]

Hi, there. In short. A week ago I had a twitching eyelid and went to the doctor on friday. He gave me, without performing a bloodtest, a high dose of Befact forte (Europe). Instead of one pill a day (recommended) I had to take two of them. The first day I felt a little twitching in my cheek and lip. On day two and three I felt twitching in my arms and calves. On day four and five I felt twitching, cramping and jidderness all over my body. It is driving me insane. So I took my last dose yesterday and I drank a lot of water today in the hope that it will flush out of my system. Ironically, my eye is much better. I only had twitches when moving or touching that muscle (yawning, sneezing, laughing). So, in my opinion: I didn't need that high dose of B-complex (B1, B3, B6, B9, B12). The eyetwitch was just an oversensitive muscle. Of course I am hypochondriac and I begin to worry that I have some neurological disease. I have bloodtests every three months because of other healthissues. I hope it will subside. But the most poignant question I have right now is: is it possible to have a reaction of the vitamin complex after just a few days? I am glad I quit though. Thanks for your input!

[m_artifact]

It's possible you needed some of the other B-vitamins, just not the B6.

[phylisrn]

How there is a FB group called B6 Toxicity. You can join.

[kevinsito24yrs]

did anyone suffer from acute symptoms in weeks on only a low dose and with a PROXIMAL instead of DISTAL

feature, where pain began not at toes or soles of feet but at the knee or buttocks, and that has been more than 6 months - 1 year, with no change?

only superdoses are supposed to cause dorsal root sensory neuron loss not 50mg a day, but 500mg or in grams a day, a distal far away neuropathy can recover easily in a couple years but a proximal dorsal column will never recover.

neuritis vs ganglionitis