B6 Toxicity

[chimey]

This is more of a comment than a question, but I would welcome info from anyone who has any experience with this situation. I took a prescription called Folcaps (which had 25 mgs of pyridoxine in it) for a year. In February of 06 I began experiencing symptoms which have now been diagnosed as Pyridoxine (b6) Toxicity Induced Neuropathy. I did not get this diagnosis until August 15, after four MRIs, several specialists and balance testing. My b6 blood level was 81 - the maximum safe level in this test was 32. When reading about b6 toxicity one reads about tingling hands and feet and being "wobbly on your feet" and things of that nature. It can be much more than that. Be careful with Vitamin b6. It's not known if the neurological damage is reversible. Some studies show it is, some show it is not. The damage I have suffered extends to my thyroid, my blood pressure has been lowered (to an unsafe level - it was healthy before), my balance has been damaged - I don't know where my right foot is in space, I've had insomnia, my symptoms are too lengthy to list here. The fatigue that I have been experiencing for the past several months has started to lift now that I've stopped taking the medication, but it is still profound...another hallmark symptom of b6 poisoning. This is a serious toxic situation and one that is not understood by the medical community. I am waiting to find out how much of my life I will get back. I am rebuilding my stamina & neuropathways with an optimistic outlook. And getting the word out. MD's don't know about vitamins. Work with nutritionists. Don't go it solo

[Meganamy]

boots, I sent you a note and two messages but they're not showing up in my "Sent" box. I think you might have accidentally clicked the word "Block" next to my username somewhere in your browser and so my messages are not coming through to you. I don't know how you can unblock my username.

[Meganamy]

Worse, gfragile. I'm still here. It's been 7 years since my pain started and I'm not better. I've seen 22 doctors now, have no official diagnosis and no answers. And still have a lot of pain and setbacks. I hope someone else has better advice.

[gfragile]

No one can help or advise me right? You have moved on another forum and you are healed?

[gfragile]

I took 6 months for high-dose vitamin b3 1g 1.5g, then I added b6 high dose for 1 month and I began to feel itchy feet ... I've stop it, but the itching does not pass .. is tremendous, what can I do? there any doctor who understands peripheral neuropathy?

[boots625]

I try to send you a message and it will not go through and says that you are a blocked user.  Check your inbox.

boots

[Meganamy]

I do feel worse - more tingling and extra sensitive - when I have a cold or the flu. I have been explaining it away as "my skin and muscles are just more sensitive, in general, when I'm sick so all symptoms are worsened."