OPERATED ON 1-1/2 YEARS AGO..DOING WELL AFTER LAST SERIES(GEMZAR AND CISPLATIN) BUT I AM ALWAYS IN DISCOMFORT IN MY ABDOMEN. DOCTOR SAYS IT'S PROBABLY ADHESIONS.. AND THERE IS LITTLE THAT CAN BE DONE UNLESS THERE IS A BLOCKAGE.
ANYONE HAVE ANY INFO? I FEEL THAT I GET MORE HELP FROM OTHER PATIENTS THAT I GET FROM DOCTORS.
Yes...there is hope. I had to tell MY doctor about it after being told there was nothing they could do for me since doing surgery just to remove adhesions would only create MORE adhesions...
I will print my material. It is exhaustingly long, but who cares, right? I suggest you print it and take time to read it so you can check with your doctor to see if it is okay for you to do this type of aggressive massage. The day I stumbled onto this information is a day I will always be truly thankful for!
(I copied most of the body of this letter from a recent post from me to another poster, thus all the "sincerely, Mary's :))
I wanted to hurry and get this to you since you might want to show it to the doctor. He or She might have you wait a period of time. WHen I did this it was over a year out from my surgery....actually more than that. But check and see. My doctor had never heard of this and I had a top doc. They thought there was nothing they could do for me.
Talk to you later.....Mary
Here is my information on Body Rolling.
This is an aggressive type of massage (that totally saved my life...I could not even walk...things had gotten that bad) and I would check to make sure it is okay for you to do it. I told my doctor about this and he took notes (this was the doctor who told me there was nothing they could do for me. The doctor who did the Colonoscopy recommended I get a Colonoscopy every six months to keep the adhesions from closing my colon, which was happening and was discovered during a colonoscopy. AH, WELL....I would rather lay on a little ball for twenty minutes a few times a year than go in for another test such as that (which, I will add, without Surgical Adhesions is no big deal once you get past the prep :))
Let me know if you have any questions.
Here is my information on Adhesions, which in my case were horrible...for about 2 years I suffered and they started after my radical hysterectomy (started about 3 months after the surgery) and were discovered during a colonoscopy, which made that procedure very uncomfortable...otherwise it would not have been too bad.
I put updated info at the bottom just verifying that this really did work (for me at least!)....hoping this helps.
The woman who taught me how to do this is an Exercise Instructor. She said that one reason she wanted to learn this was so that she could teach elderly people how to do it since some of our insides "glue together" as we age and that this releases much of the gluing because of all the blood, thus oxygen, it brings to the area.
In my case, I had a total hysterectomy in 2000 and suffered from surgical adhesions for about a year. The pain from the adhesions started about three months post-op. This technique seems to break up the adhesions and it worked for me. I figured that if it worked for adhesions that formed naturally in our body, it should work for surgical adhesions. It did!
It is truly amazing. I noticed a HUGE difference immediately. When I sat up after the fist time I did this (about a 15 min. session) I could feel a "FLOOD" or a Rush of blood or something! going to that area. After having pain about 40 times an HOUR for over a year and a half after my surgery, my pain decreased to only about 10 times a DAY for a few seconds at a time. I did this procedure again about a week after the first one and that gave me even more relief. I think it was about four months til I had to do it again.
The idea is you want to get the blood to the bone, not just the muscle....so it floods the tendons and gets lots of oxygen there to start healing and breaking up the adhesions.
*******My instructor told me to think of a steak and how the tendon is sort of splotchy with blood where it is attached to the bone...well, you want to get the blood totally to the bone so as to really break things up. Regular massage is not "deep" enough. ********
The ball I used measures 16 inches. Again, though, I did not get the ball thru the website Bodylogic but you can go there and check it out if you want. The website is all about body rolling and about the woman (her name is Yumana and I think she is from Russia) who developed the technique. Anyway, I got just an ordinary ball in a toy section at Target and it looked similar to the one the instructor had used. The ball I have has a picture of Blues Clues on it! Hey, it works. It probably is bigger than the ones they recommend, but, if you think about it, it is squishy to the point where once all my weight is on it, it probably shrinks down to about ten inches. And, I just put my "front" onto the ball for the pelvic pain and not my back.
Here is how I did it...leaning my body wt. into it, literally placing the ball underneath me and "rolling" on it...slowly.
I would lay on the pubic bone and then take about four minutes or so to SLOWLY (while remembering to take deep breaths now and then) work my way out to the right side where the ovary once was on that side. After you get there, go back slowly to the pubic bone...breathe deeply. When you get to the pubic bone again, then go to the other side, following a path, if you will, of where you imagine the falopian tube once was. So, you are rolling in something like a "V" formation. After you get to the left side where the ovary once was, then go back to the pubic bone...and, you are done. But, take about 15 minutes to do the whole procedure.
At first I did this technique twice in two weeks. Then I had to do it about once every two months or so...then about once a year. When my doctor did the laparscopy on me in June,07 (hoping to find adhesions so we could figure out why I have been having pain, which they now think is from a ruptured disk) he was shocked at how "clean" my insides were. He said he actually consulted another doctor about it. He said that you always see evidence of any type of abdominal surgery no matter how invasive the surgery. And, since I had such a huge surgery back in 2000, he expected to see some type of adhesion debries...but did not see anything. A great testimonial to Body rolling!
I always suggest checking with the doctor. I am not a doctor, just a person miserable from the pain of
It does hurt a little while you are doing it, that is for sure, since you are initially pressing on the pubic bone with all the weight you can manage to put on the ball. And then you roll slowly to where the ovaries once were and yes, it is not the most pleasant feeling, but it is a "good hurt" if you know what I mean.
Star, on this forum, has talked about her daughter using a Squishy (NOT the hard kind) Medicine ball. I have used that, too, just to test it, but have not had to do any type of rolling for years now. AMAZING!
OK...I did edit the info, believe it or not. I am embarrassed by the typo (Disc) since it was this little ruptured disc that caused me so much pain last year...and here I was hoping it was an adhesion...a few months after the lap last June, they did an MRI and found the problem. But, my pain was all referred to the front, thus the thought it was an adhesions. And, I meant to say that the doc said they always see some type of debris NO MATTER how little or big the surgery....HE was STUNNED, he said. He said that the only way he would have even known that I'd had surgery (other than the fact that he was very familiar with my case and of course knew that I'd had the hysterectomy) in that area was because I had NO organs in there...seriously.
I am sad that this technique is such a well-kept secret (or so it seems) since I know so many women who suffer from surgical adhesions.
Take care and let me know if you are able to try it....I hope you start to feel better!
So glad you were on line to get this info! I appreciate your enthusiasm, and I don't mean to sound anxious....(although I guess I do :)) but, do what you are comfortable doing...I am not a doctor, as I said. I did not check with my doctor before doing this, but I was desparate and could barely walk. I would have probably tried this even if they'd told me no....but then, I am kind of stubborn, too.
However, since I have never had Chemo, I am not well-versed in some of the side effects of Chemo. Do you think you should check with your doctor before trying this? OK.... Now I just sound like a Mom! My initial dx was Ovarian Cancer based on malignant cells found in a cyst that was drained during an exploratory lap back in Aug. of 2000....a hysterectomy followed soon after that, and no more cancer was found. Thus I have had no experience with Chemo....
You all know best....Just wanted to throw this out there....In my case I never hurt myself...and, the relief I got was amazing.
Very informative post!!!
I read your post last year..about excercise with a ball and I used it right away and sure enough did help me tremendously. I used soft ball at first and than switched to a basketball. My Oncologist wanted me to take pain killers because he said it will get worse. He laughed at me and said"you will do anything to contradict me" well I did!!!!! and I am better now.
Mary It is a very essential info and every woman should use it after hysterectomy especially. .
I am thrilled to know that you were able to use this technique and that you had such luck with it! Thanks so much for letting me know. I agree that it should be standard "Send home" information as hysterectomy patients are leaving the hospital.
I would not have thought of using a basketball. I had such a great visual of that!
After the bodyrolling, you could just get up and shoot a few baskets :)
This has worked really well for a lot of people and it is so simple and way less painful and less expensive than surgery. Although I don't have adhesions, I do use this to keep my stomach muscles from knotting up and it keeps them "massaged" in between workouts. Who knows, maybe I don't have adhesions because I have always done this. With a Gallbladder surgery, 2 bikini line cyst surgeries, 3 belly button surgeries, a hysterectomy and removal of everything else they could take out you'd think I'd have adhesions, but I am good to go on that front. Mary, we should start talking more about that as a preventative exercise. If a lot of women get adhesions within a couple of months of surgery than maybe it would be helpful to tell woman going into surgery to try it after they have recovered a little bit.
I am definitely going to try this after my surgery. While I've been suffering from my cyst and fibroid I've had a lot of pain from the adhesions from my previous intestinal surgeries and it was so uncomfortable just under my ribs. My massage therapist did a special massage on that area for adhesions and it brought me great relief. I'm not going to let this next round get to that point. Thanks Mary!
thanks for the info on the massage ball. i had 2 surg. in sept/oct 08 for ovarian cysts removed on right & left ovaries/endometriosis removed everywhere, right ovary untwisted & put back were it belongs, then 4 weeks later the right ovary got another cyst and twisted back up again so i had the ovary and tube removed. I never stopped having pain on the right side after the surgery. But the pain is in my right side lower groin area. kind of confused by that since no ovary on that side to cause problems anymore. I thought it was just typical after surgery pain but it's been 5 months now. I read alot on the web but the only thing that might make sense is scar/adhesions. i have an appt with my O.B. on Friday 4/3 so hope to find out more then. After I talk to my Doc I plan on using that massage ball. thanks soooo much for posting that.
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