Lot's of Pain!

Hello ladies,
I was wondering if somebody could help shed some light on pelvic cyst. I have had my uterus and ovaries removed (3 seperate surgeries), and I have had a ovarian remnent removed after those three surgeries. Anyways.....I have more pelvic cyst. The doctors don't know if it is another ovarian remnent or just cyst that have formed on scar tissue/adhesions (I have had numerous ultrasounds). My question........has anyone had these cyst and can help me decided if I should have surgery to removed it/them, or is there another treatment instead of surgery?  I have had so many GYN surgeries that I don't know if I can take anymore scar tissue. Can anyone help me with this issue.

[fungirl1011]

I am so sorry you are in so much pain.  I too have ORS and it *****.  I am getting ready to have a cyst and remnant removed in July.  Have you tried getting on birth control?  Sometimes that will help to keep cysts from developing.  My doctor said that there is something they can put in your abdomen that will help you NOT to develope scar tissue.  She said it is successful in about 40% of the time.  Also, you may want to search this site a little, as Mary53 is an EXPERT in scar tissue.  She can tell you of ball rolling that will help break up the scar tissue.  How many surgeries have you had?  This will be my 8 or 9 (hard to keep track lol) in 7 years.  What does your gyn have to say about all of this?  Please let us know what you find out.  

Hugs,
Kasie

[Buckeyegirl]

Thanks for the response. I knew I wasn't the only person with ORS, but it sure does feel like it out here in this big world. It is so weird to describe ORS to anyone, and sometimes even to doctors. I actually have a ultrasound in about two hours to find out how large the cyst(s) have grown. I should purchase a ultrasound machine...ha ha, because it seems like I am always going in for one.
I have had probaby 12-14 abdominal surgeries over the past 8 years, and I am only 34 years old. My doctor has talked to me about acupuncture, and physical therapy for the pain. I usually am not into those types of "medicine" for pain, but at this point I will try anything. I am so tired taking narcotic after narcotic for this pain. I would love to say just go in and cut everything out, but like I stated before it can only make things worse.
I have heard about the surgeons placing mesh into the body after surgery to help prevent scar tissue from forming so fast only people whose body produces scar tissue/adhesions so very quickly.
I feel like I am at my whits end with all of this. I never have been one to sit and cry, but I broke down the other day at the doctors office, because I am just overwhelmed by all of the pain, and of course I just found out also yesterday that I have melanomia (skin cancer). This is my second bout with this. The first bout was in January and they were able to remove all of it, but it was so very small. This time the spot is a lot larger and will take a surgeon to cut it out. It goes to figure this would happen to me. Oh well I guess better me then somebody else....I guess.
Thank you again for your post and I will look for Mary53 to get some new insight into scar tissue.

[Sharon2714]

u both give me more courage than i deserve
u are so beautiful to me

holding u in prayer
sharon

[Buckeyegirl]

I had my ultrasound yesterday and to my amazement my cyst wasn't located. I have no idea what happened, but I'll take that news. I guess all the pain is for sure coming from my scar tissue/adhesions. My GYN oncologist stated that the type of cyst that I have goes up and down from time to time like a balloon. It must be down at this point. Hey...any good news is enough for me. I just wish my pain would end just as quickly. I am scheduled an appointment to have accupuncture done. I am optimistic about this procedure as I have to be. I have no other option at this point for all of this pain. I must keep working therefore it is all I can do to keep the pain at a manageable level. On a scale from one to ten I would love to have a pain level of about a seven.
Thanks for all of your postings.
Tracy

[earthstar11]

Since you are delving into the alternative holistic world....you may want to try Castor Oil Packs to your abdomen.....  there's alot of info on the net, just google it.... its an old old natural remedy.....  it works for softening up the tissues inside the organs, also could soften up "scar tissue" "adhesions"..... which would lessen the pain....  How do I know this, well, I was preparing my body for a laparoscopy (9 days) ago, I started doing a castor oil pack every day for 2 weeks prior.... oddly enough, the "pelvic pain" that I was experiencing before which led me to the doc in the first place started going away...  I still had the lap, they also repaired my bladder, they did find adhesions, which they took down.....  but I think that doing the castor oil packs prior really helped everything.....
Just my 2 cents...
Ciara

[Mary 53]

So sorry to hear you have been having such a hard time.

I will put up my (exhaustingly) long post on Adhesions. I think I already say this in the post, but do print it up so you can keep it handy. Plus, it might be overwhelming at first, but I do feel I need to give all of the details and such, so there is a lot of information.

Take care... I will be back in a moment.

Mary

[Mary 53]

This is a bit difficult to explain, but I am thinking it would be helpful to copy this information and read it while comfortable so you can try  to visualize the whole thing.

I wrote of the way I did this whole thing. I am sure there might be others with a bit of a different technique, but I did not order anything...just followed the lead of the exercise teacher who was helping me.

The exercise teacher had just taken a course from a woman named Umana and she is from Russia..she developed a program called Body logic. It is a ******* at Bodylogic. But, again, I did not order anything from her, but you should certainly look at it.

I had no idea how painful adhesions are! I am very grateful I found this tecnique. Check with your doctor to make sure you can/should do this type of intense abdominal massage.

Well, I guess that is the best I can do...but, I think it is probably just a little confusing at first...so, take a look again and I am sure you will get a visual in your head. I mean, I felt like Superman lying on this ball...as if trying to fly!

Sincerely,

Mary
********************************************************************************
I put updated info at the bottom just verifying that this really did work (for me at least!)....hoping this helps.

Mary**********************************************************************************************************************************************************
The woman who taught me how to do this is an Exercise Instructor. She said that one reason she wanted to learn this was so that she could teach elderly people how to do it since some of our insides "glue together" as we age and that this releases much of the gluing because of all the blood, thus oxygen, it brings to the area.

In my case, I had a total hysterectomy in 2000 and suffered from surgical adhesions for about a year. The pain from the adhesions started about three months post-op. This technique seems to break up the adhesions and it worked for me.  I figured that if it worked for adhesions that formed naturally in our body, it should work for surgical adhesions. It did!

It is truly amazing. I noticed a HUGE difference immediately. When I sat up after the fist time I did this (about a 15 min. session) I could feel a "FLOOD" or a Rush of blood or something! going to that area. After having pain about 40 times an HOUR for over a year and a half after my surgery, my pain decreased to only about 10 times a DAY for a few seconds at a time. I did this procedure again about a week after the first one and that gave me even more relief. I think it was about four months til I had to do it again. Now I do it about once a year, if that. I have been virtually pain free, ,aside from a dull ache now and then, from adhesions since learning this technique.

The idea is you want to get the blood to the bone, not just the muscle....so it floods the tendons and gets lots of oxygen there to start healing and breaking up the adhesions.

**My instructor told me to think of a steak and how the tendon is sort of splotchy with blood where it is attached to the bone...well, you want to get the blood totally to the bone so as to really break things up. Regular massage is not "deep" enough.


The ball I used measures 16 inches. Again, though, I did not get the ball thru the website (Bodylogic.com) but you can go there and check it out if you want. The website is all about body rolling and about the woman (her name is Yumana and I think she is from Russia) who developed the technique. Anyway, I got just an ordinary ball in a toy section at Target and it looked similar to the one the instructor had used. The ball I have has a picture of Blues Clues on it! Hey, it works. It probably is bigger than the ones they recommend, but, if you think about it, it is squishy to the point where once all my weight is on it, it probably shrinks down to about ten inches. And, I just put my "front" onto the ball for the pelvic pain and not my back.

-------------------------------------
Here is how I did it...leaning my body wt. into it, literally placing the ball underneath me and "rolling" on it...slowly.

I would lay on the pubic bone and then take about four minutes or so to SLOWLY (while remembering to take deep breaths now and then) work my way out to the right side where the ovary once was on that side. After you get there, go back slowly to the pubic bone...breathe deeply. When you get to the pubic bone again, then go to the other side, following a path, if you will, of where you imagine the falopian tube once was. So, you are rolling in something like a "V" formation. After you get to the left side where the ovary once was, then go back to the pubic bone...and, you are done. But, take about 15 minutes to do the whole procedure.

**********************Udated information....August 2007***********************

At first I did this technique twice in two weeks. Then I had to do it about once every two months or so...then about once a year. When my doctor did the laparscopy on me in June,07 (hoping to find adhesions so we could figure out why I have been having pain, which they now think is from a ruptured disk) he was shocked at how "clean" my insides were. He said he actually consulted another doctor about it. He said that you always see evidence of any type of abdominal surgery no matter how invasive the surgery. And, since I had such a huge surgery back in 2000, he expected to see some type of adhesion debries...but did not see anything. A great testimonial to Body rolling!


I always suggest checking with the doctor. I am not a doctor, just a person miserable from the pain of
adhesions.

It does hurt a little while you are doing it, that is for sure, since you are initially pressing on the pubic bone with all the weight you can manage to put on the ball. And then you roll slowly to where the ovaries once were and yes, it is not the most pleasant feeling, but it is a "good hurt" if you know what I mean.

Simply Star has talked about using a Medicine ball for this procedure...but not the hard type. She mentioned the type of Medicine ball that is "squishy." I bought one for the sake of weight training and for a just in case those nasty things return!

Take care and good luck!

[Buckeyegirl]

Thank you both for your comments. I will try all of them as I cannot stand this pain. I think being ran over by a car wouldn't hurt as bad.
Thanks again,
Tracy