I will try to keep this short, but I think I'm loosing it! I went to a friend's vacation home about 3 & 1/2 hours away from my home, but then thought I had to come home two days later because I "literally" forgot what day it was... and came home an entire day early! To an organized person who traveled almost to excess for business before I had my daughter about 5 years ago, this seems almost frightening to me. I had a TT in Sept '07, RAI in Nov. and been trying to level out on meds ever since. I take 137mcg of Levothyroxine and 25 of Cytomel daily. On March 11th (my last endo visit) my numbers were:
free T3 - 5.7
free T4 - 0.94
Thyrogolobulin <0.1
Anti Thyroglobulin <4
TSH 0.80
Since I never took thyroid meds b4 surgery, I have no frame of reference for all of this. I do know for cancer suppression that I should have a TSH close to 0, but that's about it. I question the Cytomel and how effective it is vs. Levothyroxine only. I asked my doctor if I could go on Levothyroxine exclusively, as I was having difficulty remembering to split my 25 Cytomel dosage into two. It also made me feel a little jumpy late in the day and hard to sleep at night, when I forgot to take the second dose in a timely fashion. He didn't want me to stop the cytomel, but asked that I take the entire dosage in the morning after the Levothyroxine. Said we should try that first. Then he patted me on the head and sent me home for the longest res pit between visits I've had thus far... 3 months!
I have since exprienced a couple of senarios, one of which I stated above. But I also had the feeling I was going to faint about two week age. Completely unexpectedly, while shopping (I'm not a fainter, but I thought hey, this must be what fainting feels like...) Everything just went black. I didn't actually fall to the ground, and I was fine, but the episode did scare me. I know this can happen with low blood pressure and did in fact, happen to me many times when I was young getting up from a laying down postion. But it hasn't happend to me in at least 20 years and my blood pressure is always at the tall end of normal. This fainting thing seemed to happen for no reason while I was standing up!
I had another experience while visiting my friend (above) that I went from feeling fine, or so I though, to "I'm going to pass out (this time food related, I guess) if I don't get some food NOW!" Also weird for me. I felt woozy and slightly disoriented, and felt I could have fainted if I didn't get something in me or go directly to bed. I have the feeling as well, that I'm exerting myself too much just walking up a slight incline for a couple of blocks. The feeling is like I'm not going to get enough air in my lungs and passout. Never had that pre-TT. I have suffered from low calcium and very low vit. D. Both which I self-diagnosed and brought to my endo for confirmation. I am subsequently being treating for these deficiencies with modest success right now. Lots of joint pain, most of the time moving really slow getting up from a resting position. Does all of this seem normal? Sometimes I feel like I have a ton of energy, but it doesn't come to me like it used to, or as often... where before I could clean the whole house (and not a small house) in one day, top to bottom! And I mean REALLY CLEAN! Other days, ok most days now, I feel like the couch is where I'd like to grow roots.
Anyone (with more knowledge on these thyroid test numbers, than I... or just plain experience with something like it) have any information for me about this? I thought I was doing well post cancer. These recent events have scared me and gotten me to question myself and really "look" at my symptoms and dig a little deeper. I tend to focus on how "right" everything is going, and ignore what could be wrong... Usually a good trait... I thought...
Your help and input is truely appreciated! And thanks for all your help in the past as well!