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Hashimoto's Encephalopathy
Anyone have experience with Hashimoto's (or Steroid-responsive) encephalopathy?
Can you tell me how it is diagnosed? Or how it is ruled out?
Thank you!
Can you tell me how it is diagnosed? Or how it is ruled out?
Thank you!
If you have been diagnosed with Hashimoto's and have high anti-thyroid antibody test numbers, then it might be worth looking at.
It is very rare, but that doesn't mean much if you're the one with it.
It is very rare, but that doesn't mean much if you're the one with it.
Wouldn't it be great if everything was straight forward?
2 years ago, out of the blue, I started to have seizures that no one can explain.
I am also hypothyroid.
In the past 2 years I have had:
7 MRIs - all normal.
4 CT scans - normal
2 PET scans - normal.
1 Cerebral Angiogram - normal.
6 EEGs - All abnormal.
So, I have been exploring the relationship between my seizures and anything that might explain them.
As I read about Hashimoto's encephalopathy I just can't find anything that makes me lean towards 'this might be me' or 'no, there is no way this is me.'
I will mention it to my PCP and my epileptologist. Perhaps they can shed some light.
2 years ago, out of the blue, I started to have seizures that no one can explain.
I am also hypothyroid.
In the past 2 years I have had:
7 MRIs - all normal.
4 CT scans - normal
2 PET scans - normal.
1 Cerebral Angiogram - normal.
6 EEGs - All abnormal.
So, I have been exploring the relationship between my seizures and anything that might explain them.
As I read about Hashimoto's encephalopathy I just can't find anything that makes me lean towards 'this might be me' or 'no, there is no way this is me.'
I will mention it to my PCP and my epileptologist. Perhaps they can shed some light.
I've read quite a bit about it, and due to short term meomry problems, I did a bit of reading about it again today.
I fear it.
The symptoms for the most part mimic thyroid problems, other than the seizures and paralysis, but nothing says you have to be suffering with paralysis or seizures to have the malady. The disturbing part is that an MRI may not detect damage, which would impede a proper diagnosis.
It seems elusive to diagnose unless you are having extreme symptoms, and it sounds like something you want to catch early.
Even a thouroughly informed medical professional may have to flip a coin.
I fear it.
The symptoms for the most part mimic thyroid problems, other than the seizures and paralysis, but nothing says you have to be suffering with paralysis or seizures to have the malady. The disturbing part is that an MRI may not detect damage, which would impede a proper diagnosis.
It seems elusive to diagnose unless you are having extreme symptoms, and it sounds like something you want to catch early.
Even a thouroughly informed medical professional may have to flip a coin.
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