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Hashimoto's and Hives

by Crcastro, Sep 04, 2008 09:20PM
Hello everyone I'm a 24yr old female who has been suffering from Hives for over 7months now and I've seen allergy and Endroconology doctor's and dermatologist and no one seem to know what it is. I was diagnosed with Hashimoto disease and when I had a biopsi done of my thyroid it seems that the left thyroid was enlarge so now I'm getting ready for surgery to remove both because they are no sure if its cancerous or not. Can by me having my thyroid removed help my hives go away? They are painful at times and burn and itch.Has anyone used Olux-E is a foam cream and it actually works when I get my hives. I've also notice if you put an ice pack on when its burning it helps the burn go away...


This discussion is related to Hives and Hashimotos.
Member Comments (19)

by ChitChatNine, Sep 06, 2008 07:27AM
Try doing an archive search .. I've seen hives like this before being posted.   Let us konw how you are doing and WELCOME!

C~

by Trill, Sep 09, 2008 10:55PM
To: CrCastro
Your problems are almost identical to mine.  I had severe  hives 12 years ago that lasted for 1 year and then disappeared entirely.  They returned 8 months ago and this time I was diagnosed with Hashimoto's disease.  I also have several large thyoid nodules that are to be removed in a few weeks.

I have researched this and seen many specialists, and unfortunately I have been told by my ENT surgeon and endocrinologist that there is no guarantee that the surgery will cure the hives.  The thyroid antibodies found in Hashimoto's and chronic hives are definitely related but your body will continue to produce the antibodies after surgery.  I'm still hopeful that there will be some relief.

I found ice packs to be useful in my first bout but it is different this time.  I also have painful angioedema, and my hives burn and itch.  The only good thing is that they seem to be easing recently and responding to antihistamines much better now than a few months ago.  Good luck!  They usually do go away on their own eventuaully.

by helen1207, Sep 10, 2008 11:59AM
i had hives now an then when i was synthroid, normally it would be all over my body. i switched to armour like 2 weeks ago, i felt pretty good, but 3 days ago, i got up and within one minute, there were a lot of white hives on my legs, it worsen when i was standing. three days in the roll, i had the same hives at the same place. those hives look different from before and doesn't itch too much. it went away by itself in the early afternoon.

i have no idea what that is, if it's armour, wouldn't i have hives after i took it? but i only had it in the morning when i first got up.

by Sassy9192, Sep 16, 2008 05:59PM
My husband has the same thing and has had some relief with Levothyroxine.  He was hive free for over 18 months and then his body became used to the dosage and the are coming back.  WE are hoping that the new increase in Levo will knock them out again.  It takes several weeks (3-5) to see the results of the meds.  Wishing you all the luck.  This is a horrible ailment.

by kdcdcd2, Oct 04, 2008 09:31PM
I also have Hashimotos diagnosed in 1994 and for the last 9 months have developed hives all over. I have seen the Dermatologist and Allergy Doctors who call the hives Chronic Urticaria. I have had some success with the antihistamines but lately the hives are coming back stronger and stronger. Could the thyroid be going out of whack again?? This whole thing is very frustrating.

by Cynnieb4, Oct 04, 2008 10:44PM
My sister has had a problem with this too. She refuses to get herself tested for the thyroid that runs in the family. I have some, but not that bad. I have hashimotos as well. The only thing I have found to help is zyrtec. Also try and stay away from scents, perfumes. Many people are allergic and they don't realize it. I doubt if you get your thyroid removed it will help. I have one side that is larger as well. I don't want mine to go anywhere, but if they are suspicious its better to be safe. Have you taken any medicines for thyroid, sometimes people are allergic to fillers in those.

by Dnmh, Nov 20, 2008 08:43PM
Just found out I have hasi and was reading up. Found this post... very interesting! I've had the same problem for about 3 years (hives) and have found that benadryl at bedtime along with Sarna lotion works for me. During the day sometimes, I've used a hydracortisone cream as a lotion - but not often as it is steroid based.

by rigelbee, May 24, 2009 07:09PM
To: All fellow Hashi / Hive sufferers:
I have had Hashimoto's thyroid for ~26 years.  Although I have had two or three episodes of this horrible itch / hives, this is the FIRST time I have learned that hives ARE connected to Hashimoto's.  I have been trying to deal with this horrible itch from my current episode for about 3 months.  Interestingly, I have also been dealing with a fluctuation in my TSH, and T3, T4 levels.  I am about to go crazy with the itching.  I am hoping to find some relief by taking all the good suggestions you have all presented.  I sometimes take HOT showers to make my itching areas "angry" because it seems that after they get really "angry" the calm down for several hours.  Of course, then I have to moisturize like crazy to keep my skin from getting dry.  Has anyone else ever tried heat?  Even my hair dryer sometimes helps....

Thank you all for your suggestions and support.  

by goolarra, May 24, 2009 07:41PM
To: rigelbee
Can you cite the specific reference that states that hives are related to Hashi's?  Are they caused because you are hypo?  Very interested in your sources.  Thanks.

by flikchik76, Jun 09, 2009 08:29PM
I have most or all of the symptoms everyone is discussing & I have been diagnosed with Hashimoto's as well, although my thyroid is functioning ok (they just see the presence of antibodies).  I am curious if any of you are extremely active & eat well.  If you're like me, exercising inconsistently or not at all, and have a poor diet (I have for the past 2 years) then you may want to think about the research that supports toxins in the body being responsible for diseases/symptoms like these.  I would love to know if any of you are actually in incredible shape, etc... There is a book called "The Master Cleanser" by Stanley Burroughs that talks about doing a cleansing diet to avoid these kinds of problems.  I may be speaking for myself, but it seems to completely fit what I have done to my body.  It would make sense to think that too many toxins have built up & perhaps a cleansing diet can rid my body of the very thing that is causing me problems.  I know that I have not felt HEALTHY for a long time.  I have seen every kind of doctor (allergist, gyno, neurologist, dermatologist, etc) NO ONE has an explanation except for the fact that my cells are "spitting out" histamine, which is why many of you have been prescribed high doses of antihistamines to help control the hives.  The book I mentioned talks about the way that cells become "clogged" so to speak, they can not cleanse & renew themselves.  You may notice your skin breaking out, you can develop cysts, etc.  There is a firm belief out there that diseases such as cancer, MS, Hashimoto's, etc, whose causes cannot be explained, are simply related to a build up of toxins that must be removed from the body.  Not to be too graphic, but apparently there is "junk" just sitting in our intestines & it has been there for YEARS & can be quite damaging to overall health.  I keep going back to the notion of doing this cleansing fast since I am as desperate as all of you & willing to do anything to get rid of this problem.  For goodness sake, I have a 2-year old & would like to enjoy outdoor activities without worrying about an attack of hives!!!  So far, I have not been strong enough to go 10 days on liquid, but I am becoming more & more convinced that there may be light at the end of the tunnel if I do.  Has anyone tried it before?  If I make it & it works, I will be sure to let you know!!!Hang in there...

by helgih88, Jun 11, 2009 08:00AM
To: flikchik76
If your digestion is slow then that could mean your body is absorbing toxins from your food that it shouldn't. This is because the food stays in there for so long. I have read similar things that you but I don't particularly believe in liver cleanses because most of the sites have so much inconsistent data and lies (like hundreds of green stones from your gall bladder that has only room for like 5 in real life). This slow digestion could be caused by a number of things like hypothyroid. Your problem could also be totally unrelated to your thyroid so what I'm saying, don't believe in everything you read (I've done that mistake far too often). Remember, poor diet isn't always as unhealthy as you might think (it might lack nutrients but it certainly doesn't contain as many toxins as those cleansing sites try to make you believe). You should talk to a doctor that is an expert in this matter and get a blood test.

by sweetnsassie74, Jul 14, 2009 08:00PM
Gosh, I can't believe I am not the only one going thru this. I have had hives for 5 months and they are driving me crazy. My Doctor gave me a steroid injection and a steroid pak. It helped a little then did the same treatment again. He told me to go see an allergist. The allergist ordered a bunch of bloodwork. My WBC was high along with the thryglobulin antibodies &  thyroid peroxidase. The thryglobulin antibody result is supposed to be less than 20 and mine was 2499. Two years ago I was sent to a cancer specialist due to my WBC being high, they thought I had Leukemia or Lymphoma. I had a bone marrow biopsy that came back negative. I am now told I have Hashhmoto's disease and that it has been going on for years. If they would fo found it 2 years ago, I wouldnt of had to go thru the cancer testing, which was not fun. I am 35. I have been on Armour Thyroid for 2 weeks now. A few days after I started it my hives went away. I was sooo happy and thought they were gone. Not, They started up again a few days ago. This really *****. I take Atarax 50 mg every 6 hours and take Benadryl in between. When I go to bed I also take 3 Benadryl so I can sleep. I take alot of hot, hot showers. It really helps them.
I am very discouraged in reading everyones comments that the hives last for along time and are recurrent. There has got to be something out there to help with the hives.  

by rigelbee, Jul 15, 2009 01:21AM
To: sweetnsassie
I am so sorry about your hives.  I wish I had some magic answer.  My hives episode that began in February JUST faded.  That's 5 months.  I know EXACTLY how you feel.  I do not know what causes the darn things and I don't know what makes them go away.  Like you, I find that hot showers brings me some relief (after the initial MADNESS when the hot water first releases those histamines!).  I tried benedryl as well.  It really didn't appear to do anything for me.  I took citrus out of my diet.  I took every food that anyone said could cause an allergic rash.  No change.  

So, I have no answers for you.  Just empathy.  And I agree...   SURELY there is something the medical profession can do about these HIVES!

by sweetnsassie74, Jul 15, 2009 08:09AM
To: rigelbee
Good Morning,
Thanks for the reply. I think the combination of both atarax and the benadryl help me. Benadryl alone does nothing. I take 50 mg atarax every 6 hours and 1-2 benadryl in between. I also will take 3 benadryl before I go to bed and that helps me sleep. If I am itchy from the hives during the nite I am too tired to care. Occasionally I will wake up during the nite and take a super hot shower and I am able to fall back asleep.
I know that my hives do not have anything to do with allergies. I went thru that before I ever went to a doctor.
I hope your hives do not come back, they are miserable. Keep in touch and let me know how things are going as seems like our issues are similar. (hives since february)

by sweetnsassie74, Aug 16, 2009 12:47PM
Hello. I posted on the websire in July. I have done alot of research and went to my doctor. I have been diagnosed with Hashimoto's and have had hives pretty bad since Febuary. One of the this I had found while researching the relation between hives and Hashimoto's was a trial study. I tried and and have not had any hives. What a difference in my life with out them. I was miserable.
Medications like benadryl or atarax are labled a H1 histamine blockers. Meds like zantac, pepcid or tagament are H2 histamin blockers. I take 25 mg of atarax in the am along with a pepcid. In the pm, I take another pepcid. Coincidence or not since I have been doing this combination my hives have gone away. Just thougt I would share this.

by thelma201, Aug 17, 2009 06:12AM
This subject is very interesting. So many of us with Hasi/Hypo have skin problems. I had hives that were pretty much confined to my face and neck area for many years, during my 20's and 30's. I could never figure out what the cause was, it seemed to be triggered by stress. It went away for quite some time. Then 3 years ago I was told I have Hasi's. I didn't have a hive problem at the time, but I have had in the past 2 years...mine are usually in small bunches. I noticed a pattern with rising TSH..I'll get an intense ITCH, when I scratch, it gets worse and I then get tiny hives, and the more I scratch the wider the area of little hives gets. Must be associated somehow. It seems that if we can have so many other skin related problems--I also get boils in strange places when things aren't right.and we've all had the dry skin thing!!! Makes sense to me that the hives and hashi's are related.

by TamraW, Aug 17, 2009 08:20AM
To: flikchik76
I was a very healthy person before becoming very ill over a year ago. I ate healthy. I exercised about 5 days per week. I was my ideal weight. Then I had a stressful episode with family issues last summer. That's when I got this rash on my head along with extreme fatigue, and the doc said I had Shingles without testing my rash. I kept getting this so called 'Shingles' monthly and I became more ill. My D dropped to an 18. My rashes were even worse.

Now I am on Synthroid and able to exercise again. My scalp rashes are better since I went to a dermo and he gave me Nizoral.

Now I keep breaking out in these hives on my right side, but it's not as severe as when my D was low. I am taking several vitamins, including B12 and D.

Tamra

by sweetnsassie74, Sep 30, 2009 09:51AM
I have posted before about having hashi's and the hives. I found a study done that I explained in a comment above. Just thought I would touch base and give you all an update. It is sept. 30 and still no hives.

by TamraW, Sep 30, 2009 09:59AM
To: sweetnsassie74
I take Zyrtec and Flonase.

I also take Zantac. I have Pepsid, but don't take it as it doesn't help heartburn much.

So are you saying I should return to the Pepcid?

What about my Zyrtec? Should I switch to Benadryl?

This is wonderful information! Do you have the internet link for the study?

:) Tamra
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